Hello,
I am Arina Baboshina's mom. My name is Lena. Arina is only 9 months old.
She was born on June 1, 2009, on International Children's Day.
She was a long-awaited child and we were very excited to meet her.
Since birth, Arina had low hemoglobin. We took her for an examination
at the Regional hospital several times, but the diagnosis was never
determined. In December 2009, Arina was finally diagnosed in St.
Petersburg: myelodysplastic syndrome, plus another very rare genetic
disease related to pancreatic function.
Because of this, Arina does not eat well and weighs only 7 kg at 9
months of age. The only chance to save Arina is for her to
receive a bone marrow transplant. Unfortunately, the search results
at the International registry showed that she has no matching
donors and transplant will have to come from the parents.
In our family only Arina's father works, and unfortunately, we
cannot afford to pay for the transplant. We spend a lot of money
for nutrition for Arina (NAN formula and formula with fruit)
and diapers (for 4-9 kg). We will also have to pay for travel
and living expenses in St. Petersburg, and we may need to pay
for post-operation treatment.
This is why we are asking you for help. Please help us save our
little girl. Arina is a happy, lively and bright girl, and
for now she does not know what is happening with her and what she
still has to go through.
We are very hopeful for your help and will fight for our girl
with all our might.
Update as of May 19, 2010.
Arina is now at a rented apartment. She is preparing for transplantation.
We are sincerely grateful to Russian Help Fund for deciding to raise funds
for Arina for a cylinder for cleaning of the donor's transplant. Arina
was prescribed Vfend, 100 mg daily.
Update as of July 1, 2010.
Due to aspergillosis infection, transplantation was postponed.
Arina is taking Vfend. Based on puncture results, there is no process
escalation, but Arina needs frequent blood transfusions. She feels
well and is being monitored as an outpatient.
Correspondent Bank:
Deutsche Bank Trust Company Americas,
SWIFT: BKTRUS33
Beneficiary Bank:
OJSC Bank Petrovski (f. EEFC Bank Plc.)
SWIFT: PETRRU2P
Account No. 04096265
Beneficiary:
Non-Profit Organization
"AdVita Charitable Foundation",
account # 40703840712001000468
*,**
Correspondent Bank:
Deutsche Bank AG,
SWIFT: DEUTDEFF
Beneficiary Bank:
OJSC Bank Petrovski (f. EEFC Bank Plc.)
SWIFT: PETRRU2P
Account No. 100 9497918 1000
Beneficiary:
Non-Profit Organization
"AdVita Charitable Foundation",
account # 40703978312001000468
*,**
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