Hello!
My name is Oksana Azup, I am married and we have a 7-year-old daughter
Alena. She is a very social and lively girl who loves playing with friends
and skate on her roller skates. Alena has been asking us for a little
brother or sister for a long time, because she really loves little kids and
she promised to help me if her dream comes true. Alena finished a
preparatory class of a music school where she played flute. This year she
was supposed to start the 1st grade and continue studying at music school.
Unfortunately, it was not meant to be.
One evening at the end of July, Alena complained of a bad headache. She
also developed bruises on her legs. The next day we were admitted to
Vologda Regional hospital. There she started feeling worse and spent a
night in intensive care unit. After series of tests, Alena was diagnosed
with acute lymphoblastic leukemia.
We were referred to Gorbacheva Institute for further treatment.
Currently, Alena is undergoing high-dosage chemotherapy, and in the future
she will have transplantation from an unrelated donor, and long-term
therapy.
This is all in the plans, and now we really need Vfend medication. During
high-dosage chemotherapy, Alena caught aspergillosis (fungal infection).
The doctors told us that treatment of infection will take a long time and we
will need a lot of this medicine.
Vfend costs 27,000 rubles a pack and lasts Alena a week. We cannot afford
even a single pack a month, as I am expecting a second child and do not work
at this time.
On behalf of our whole family, I am asking you to help us save our little
daughter, our Alenushka. We will be very grateful for any help!
Update as of October 26, 2009.
Alena completed another round of high-dosage chemotherapy and suffers
from severe headaches. The cause for them is being determined. Alena is
also continuing Vfend therapy at 400 mg a day.
Update as of October 27, 2009.
Alena's condition is rather serious. She did not tolerate Vincristine
well and suffers from headaches and stomachaches. The results of the
spinal fluid test for aspergillosis are not yet ready.
Update as of October 26, 2009.
Alena completed another round of high-dosage chemotherapy. She suffers
from severe headaches, the cause of which is being studied. Alena is
continuing Vfend therapy at 400 mg a day.
Update as of December 24, 2009.
Alena is much better, she has been transferred from the intensive
care unit to a regular ward. The puncture testified to the remission
and the doctors plan to let Alena go home for the new year holidays.
Alena's mother Oksana gave birth to a girl who was named Polina.
Both the baby and her mother are feeling fine, and we congratulate
the Azup family on the birth of their daughter!
Unfortunately the cord blood taken in childbirth proved to be
incompatible with Alena's and will not be good as a transplant.
The doctors are considering a haploidentical transplantation,
Alena's father being the most likely donor.
Update as of January 19, 2010.
Alena feels well. After the holidays, her whole family returned
to St. Petersburg. Alena's dad who will be her donor for
haploidentical transplantation, is undergoing all the required tests.
Since Alena will receive high doses of chemotherapy during the
whole treatment, she will need to take Vfend for a long time.
Update as of January 28, 2010.
Alena began pre-transplantation chemotherapy.
She does not tolerate it well.
Update as of February 4, 2010.
Alena underwent transplantation from her father.
She feels well, except for mucositis.
Update as of February 21, 2010.
Alena recovered after transplantation, and her blood counts increased.
She shows first signs of light form of skin GVHD. Alena feels somewhat
better, but eats very little. Her mom would be very grateful for
helping them buy Nutrizon Vanilla nutrition, because this is the only
type of food that Alena agrees to eat.
They also need help with buying diapers for Alena's little sister
(she weighs 5 kg), as the family has very little money. Alena is
still taking Vfend. We are very grateful to Metro newspaper for
publishing an article about Alena.
Update as of March 30, 2010.
Alena is feeling rather well. She is continuing Vfend therapy.
We are sincerely grateful to Happy World fund, which purchased
this medication for Alena for several months.
Update as of May 26, 2010.
Alena feels rather well despite sinusitis. She is undergoing
tests and still receives Vfend and Intraglobin. In two weeks,
she is planned to undergo donor's lymphocyte
infusion from her father.
Update as of June 22, 2010.
On June 1, Alena received donor's lymphocyte infusion.
She now feels well and on June 12th we were discharged.
We will now come to the clinic once a month for control
punctures and tests. Alena still takes Vfend, but thanks
to Happy World fund, we still have it.
We are enormously grateful to everyone who has helped us and
continues to help. We would not be able to cope without you.
We are wishing happiness and great health to all our doctors,
donors, supporters, volunteers and friends. Thank you!
Alena's mom
Correspondent Bank:
Deutsche Bank Trust Company Americas,
SWIFT: BKTRUS33
Beneficiary Bank:
OJSC Bank Petrovski (f. EEFC Bank Plc.)
SWIFT: PETRRU2P
Account No. 04096265
Beneficiary:
Non-Profit Organization
"AdVita Charitable Foundation",
account # 40703840712001000468
*,**
Correspondent Bank:
Deutsche Bank AG,
SWIFT: DEUTDEFF
Beneficiary Bank:
OJSC Bank Petrovski (f. EEFC Bank Plc.)
SWIFT: PETRRU2P
Account No. 100 9497918 1000
Beneficiary:
Non-Profit Organization
"AdVita Charitable Foundation",
account # 40703978312001000468
*,**
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