My daughter Anya is 6. In October 2007 she got sick. With high fever and enlarged
subclavicular lymph node, she was admitted to Regional Clinical Children's
hospital in Krasnodar where on November 15, 2007 she was diagnosed with acute
lymphoblastic leukemia. The treatment lasted a year and 7 months, but in May
2009 Anya had an early bone marrow relapse. We were told that Anya needed bone
marrow transplantation that can be done at R. Gorbacheva clinic and referred
to St. Petersburg for consultation. Unfortunately, no matching donors were
found for Anya at the international registry, so a different type of
transplantation is being considered.
I am raising two children (Anya and her 10-year-old daughter), and live with
my mother and younger sister. I cannot work at this time because I stay with
my daughter at the clinic. My older daughter lives with her grandmother for
now. Our income consists of pension (4,700 rubles), sick leave (1,200 rubles)
and my mother's retirement (3,000 rubles).
Please help us with paying for the tests that will be needed for bone marrow
transplantation. In the future, we will also need help with paying for a rented
apartment. In addition, we will probably need help of blood donors. Anya's blood
type is AВ(IV) Rh(+).
Thank you in advance,
Katerina, Anya's mom
Home address:
Krasnodarsky krai, Krymsky raion,
s. Kievskoe, ul. Gorkogo, d. 174.
Contact phone:
+7 (911) 736-92-24
Update as of December 24, 2009.
Anya underwent a haploidentical bone marrow transplantation and
is now recovering. To prevent aspergillosis Anya needs 400 mg of
Vfend a day. The girl is feeling ok.
Update as of January 21, 2010.
Anya recovered after transplantation and was discharged to stay
at the rented apartment. She is continuing Vfend therapy.
Update as of January 28, 2010.
Anya was urgently hospitalized due to fever.
She is now stable, has normal temperature, receives
antibiotics and feels well.
Update as of February 21, 2010.
Anya was discharged from the hospital. She lives in a rented apartment
and is being monitored as an outpatient. She feels well and is in a
good mood. Every day she goes for walks outside, otherwise, she has
a hard time falling asleep. She is busy with something all the time -
either playing with clay, or gluing something, or playing.
Her blood counts have finally started to grow. For now, her potassium
and protein are low, so he receives immunoglobulins and albumin.
Since Anya is still taking Cyclosporine, she is tested twice a week.
Anya had a skin biopsy, and treatment of her skin GVHD will be discussed.
She still needs Vfend.
Anya's mom
Update as of March 14, 2010.
Anya is still monitored as an outpatient. She is continuing
immunosuppressive therapy. Anya still needs Vfend. She also needs
a wheelchair to go outside. Please call Anya's mom at the phone
number posted on her page. Anya will also be very glad to get
arts and craft set - she is very good at making art!
Update as of April 3, 2010.
Due to hormonal therapy, Anya developed steroid diabetes.
She needs NovoRapid insulin pens for insulin injections.
Update as of April 30, 2010.
Anya had high temperature for several days, but
her condition had stabilized. She is gradually being taken
off hormonal drugs. Anya feels well and stays
busy – she makes remarkable crafts.
Update as of May 24, 2010.
Anya feels well. On Friday, Anya had a puncture. All the blood
counts are normal. Anya still needs Vfend. While her mom is
away to bring in her sister, Anya's father is staying with her.
Update as of July 8, 2010.
Anyuta feels well. She is active and happy. We are now at the
apartment and she likes to walk a lot. But due to hormonal
therapy, she cannot go to far - she is always hungry.
At home, Anya makes crafts, and she likes watching cartoons
with her sister. They are now making new gifts for our relatives.
Anya's mom
Correspondent Bank:
Deutsche Bank Trust Company Americas,
SWIFT: BKTRUS33
Beneficiary Bank:
OJSC Bank Petrovski (f. EEFC Bank Plc.)
SWIFT: PETRRU2P
Account No. 04096265
Beneficiary:
Non-Profit Organization
"AdVita Charitable Foundation",
account # 40703840712001000468
*,**
Correspondent Bank:
Deutsche Bank AG,
SWIFT: DEUTDEFF
Beneficiary Bank:
OJSC Bank Petrovski (f. EEFC Bank Plc.)
SWIFT: PETRRU2P
Account No. 100 9497918 1000
Beneficiary:
Non-Profit Organization
"AdVita Charitable Foundation",
account # 40703978312001000468
*,**
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