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Dasha died on June 25, 2010

 


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Hello!
My name is Tatiana, I am 34. I live in the Leningrad Region. I have quite an ordinary family: a husband and three children, two boys (aged 15 and 11) and a long-awaited daughter Dasha who just turned two.
It so happened that Dasha had to spend her second birthday in hospital. I have never thought that such a disaster, such a terrible disease could hit us! It all started on August 22 with a high fever. The doctors could not figure out what was going on with Dasha until we had a blood test which showed that the leukocyte count was almost deadly.
At first we were urgently admitted to the Central Regional Hospital of the town of Lodeinoe Pole, and on September 2 we came to the Raisa Gorbacheva Institute (where we are staying right now). That same day Dasha was diagnosed with acute lymphoblastic leukemia. The world collapsed in one day, even in one minute.
It is so hard now to remember how we lived before the disease when my child was healthy and used to run barefoot along the river bank laughing and dance when she heard the music...
Dasha loves the song about Buratino, the Russian Pinocchio, and can watch the movie about him several times per day.
On September 3 her chemotherapy course started. The blood counts seemed to be normal, and the girl was doing fine, and we were getting ready to go home. And then there suddenly came another shock: examinations showed there was NO REMISSION!
The disease came back, and the leukocyte counts were going up dramatically again. Another blow. Lord, how can one endure that?!
We were acknowledged as belonging to a high relapse risk group, and now Dasha is to have a bone marrow transplantation. We need to start the search for a donor because the elder children (and that was yet another shock!) did not match Dasha as donors. The donor search costs 15,000 euros, and another 2,500 euros is needed for the delivery of the transplant to St. Petersburg. Dasha is now getting a high dose chemotherapy course.
I do not like asking for help – I have always been coping on my own. But now I have no choice. The treatment course is lengthy and expensive, so we will be grateful for any help we can get.
I pray to God that He saved my little girl, I totally rely on the doctors' professionalism and hope that the little one will cope with all that.

Tatiana Vasilievna Kuznetsova, mother


 

Dasha's page at the Rossiisky Fond Pomoschi Fund

 

Medical conclusion
Invoice for the donor search in Germany

 

Update as of November 23, 2009. We are very grateful to the Rossiisky Fond Pomoschi fund which agreed to pay 10,000 euros to cover the donor transplant sampling. So we must urgently raise 5,000 euros to pay for the donor search itself.

Update as of December 13, 2009. Advita Fund USA transferred $3,000 to S. Morsch registry as a partial payment for the bone marrow donor search for Dasha.

Update as of December 24, 2009. Unfortunately Dasha's blasts began to grow very fast and it was impossible to wait until the donor is found. The doctors decided to perform an urgent haploidentical transplantation from the mother.
Dasha is now in cytopenia, she was diagnosed with aspergillosis and needs Vfend.

Update as of January 28, 2010. Dasha recovered after transplantation and was transferred to outpatient monitoring. She began showing first signs of skin GVHD.

Update as of March 26, 2010. Dasha is monitored as an outpatient. She takes immunosuppressive therapy and Vfend. She feels well.

Update as of April 30, 2010. Unfortunately, Dasha relapsed. She underwent anti-relapse chemotherapy under FLAG protocol and donor's lymphocyte infusion. The doctors are waiting for her response to treatment. Dasha still needs Vfend.

Update as of May 25, 2010. Dasha completed a course of anti-relapse chemotherapy under FLAG protocol. However, based on a puncture results, she did not achieve remission. Donor's chimerism decreased and the disease is progressing again.
Dasha is now on chemotherapy to control the leukemia. She is planned to undergo transplantation again (possibly, from her father). She is taking Vfend.
We are enormously grateful to all the people we know and don't know who are praying for our girl, and helping us financially and emotionally! We are particularly thankful to all the doctors and nurses who are doing all they can to help Dasha get well. God help us.
Dasha's mom

Update as of May 26, 2010. Dasha underwent a cycle of anti-relapse chemotherapy under FLAG protocol, but did not respond. A possibility of second transplant and Clofarabine therapy are under discussion. Dasha still needs Vfend.

Update as of June 24, 2010. Dasha is in a serious condition. She is in intensive care unit on artificial lung ventilation. Leukemia is not responding to treatment.

Records of money received
 Name  Sum  Transferred from  Date
Ruslan's mom 3000 rub cash 23.11.2009
Tetyana Sivko $20 paypal 23.11.2009
Oksana Shulgina 500 rub wire transfer 26.11.2009
Dmitry Korobkov 1500 rub wire transfer 26.11.2009
Seraphim 310 rub webmoney 27.11.2009
  - - $6 webmoney 27.11.2009
  - - 170 rub webmoney 27.11.2009
Oksana Shulgina 500 rub wire transfer 30.11.2009
  - - 1000 rub webmoney 01.12.2009
Natalia 1000 rub qiwi 04.12.2009
  - - 1000 rub qiwi 07.12.2009
ProfStroiMetall 100000 rub wire transfer 07.12.2009
Olga Ulianova 1850 rub wire transfer 07.12.2009
Anna Shilova 1000 rub wire transfer 09.12.2009
  - - 4000 rub unikassa 13.12.2009
Andrej Dudnik $100 paypal 14.12.2009
Dmitry Korobkov 1500 rub wire transfer 15.12.2009
  - - 100 rub unikassa 17.12.2009
  - - 100 rub unikassa 23.12.2009
Marina Belova 20000 rub wire transfer 24.12.2009
  - - 1500 rub unikassa 24.12.2009
  - - 500 rub unikassa 24.12.2009
Inna Dmitrieva 1000 rub cash 25.12.2009
RTK 1500 rub cash 25.12.2009
  - - 1000 rub unikassa 25.12.2009
  - - 100 rub unikassa 25.12.2009
Olga Lysenkova 500 rub wire transfer 25.12.2009
  - - 200 rub unikassa 26.12.2009
L.M.Kapelkina 3000 rub cash 28.12.2009
T.V.Koroleva 5000 rub cash 28.12.2009
L.A.Batalova 2000 rub cash 28.12.2009
M.G.Nikitusheva 3000 rub cash 28.12.2009
V.V.Miroshnichenko 1500 rub cash 28.12.2009
T.M.Resovskaya 1500 rub cash 28.12.2009
A.O.Varenikova 5000 rub cash 28.12.2009
S.I.Tsurbina 5000 rub cash 28.12.2009
A.N.Sergienko 3000 rub cash 28.12.2009
E.A.Granova 3000 rub cash 28.12.2009
  - - 1000 rub unikassa 28.12.2009
Denis Lipatov 4000 rub wire transfer 28.12.2009
Natalia Vlasova 500 rub wire transfer 28.12.2009
S.M.Grigoriev 1000 rub wire transfer 29.12.2009
  - - 100 rub unikassa 30.12.2009
  - - 500 rub unikassa 30.12.2009
  - - 250 rub unikassa 04.01.2010
  - - 400 rub unikassa 08.01.2010
LNR 100000 rub wire transfer 31.12.2009
Lidia Kozlova 1000 rub wire transfer 31.12.2009
Lyudmila Boitsova 200 rub wire transfer 31.12.2009
Larisa Potapova 1000 rub wire transfer 31.12.2009
Sergei Nagornyi 5000 rub wire transfer 31.12.2009
Maria Semenova 2000 rub wire transfer 31.12.2009
Miron Sichkar 500 rub wire transfer 11.01.2010
Galina Trofimova 1000 rub wire transfer 11.01.2010
MIT Geomatika 15000 rub wire transfer 18.01.2010
Lyubov Zaitseva 3000 rub wire transfer 18.01.2010
Irina Ryabinina 4000 rub wire transfer 18.01.2010
Dmitry Korobkov 1500 rub wire transfer 21.01.2010
Natalia Kalininskaya 1000 rub wire transfer 27.01.2010
  - - 1000 rub wire transfer 05.02.2010
  - - 100 rub unikassa 10.02.2010
Olga Ulianova 5000 rub wire transfer 12.02.2010
  - - 500 rub unikassa 19.02.2010
Vitaliy Protsenko $50 paypal 08.03.2010
  - - 1000 rub unikassa 10.03.2010
AnyTick 150 rub qiwi 24.03.2010
Sergei Zegzhda 150 rub wire transfer 26.03.2010
  - - 1000 rub unikassa 05.04.2010
Irina Komleva 500 rub wire transfer 06.05.2010
  - - 2000 rub unikassa 12.05.2010
  - - 1000 rub qiwi 22.05.2010
Irina Komleva 500 rub wire transfer 02.06.2010
Irina Komleva 500 rub wire transfer 22.06.2010

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