Hello everyone who cares for my daughter's destiny!
I am a mother of Dinara Samigullina from Kazan. In October 2002, when she was just 2.5 years old, Dinarochka received a terrifying diagnosis, acute lymphoblastic leukemia. A long and difficult treatment with chemotherapy and radiation produced only a temporary result.
Then Dinara's disease began progressing again. On February 3, 2009, the second relapse of her disease occurred. She can now be saved only by undergoing bone marrow transplantation from an unrelated donor, as none of the family members matched as a donor.
The search for the donor at the international registry and delivery of donated material cost 17,500 Euros. Our family will not be able to raise this much money, particularly in a short time we have.
Please help us raise the money, as we cannot cope without you! Thank you for your consideration and participation in our lives.

Gulnara Samigullina
Home address:
420000, Tatarstan, Kazan,
Ul. Magistralnaya, d. 16a, kv. 108
Contact phone:
+7 (917) 394-60-20

Bill for the donor search in Germany
Medical history: page 1, page 2, page 3

Update as of July 18, 2009. Dinara feels relatively well. She was discharged home after seven chemotherapy rounds. We support her remission with pills and once a week she visits the hospital for re-induction with Vincristine.
Dinara's mom

Update as of August 5, 2009. Dinara feels relatively well. We are now at the hospital for the injection of Vincristine.
Dinara's mom

Update as of September 15, 2009. Dinara had another injection of Vincristine. She does not feel very well, has no energy and not very happy.
On Friday she had bone marrow puncture, results of which show that Dinara is in sustained remission. She will do well! Dinara is very strong!
Dinara's mom

Update as of November 2, 2009. Health Ministry of Tatarstan paid the full amount of the donor search for Dinara (15,000 euros).

Update as of October 30, 2009. Dinara is now at the hospital. She is taking Dexamethasone and undergoing re-induction with Vincristine. She is feeling depressed, does not want to talk unless she has to, feels fatigued and gets tired easily. This course will last 2-3 weeks. Afterwards, everything will be good, God willing.
Dinara's mom

Update as of November 8, 2009. On behalf of my whole family, I would like to thank all those people who demonstrated their support for our daughter Dinara. We are enoromously grateful to a deputy and Presidential Reception head in Tatarstan, Vassily Loginov, and Tatarstan Health Minister, Airat Farrakhov.
Thanks to them, Tatarstan budget issued 15,000 euros for the search for unrelated donor for my daughter Dinara.
I would like to wish them great health, family happiness and success in everything.
These Tatarstan public servants showed us their kindness. We hope that their desire to help others will set an example for their collegues in other regions of Russia.
Dinara's mom

Update as of December 4, 2009. A donor for Dinara was found!
Dina and I were invited to come for a consultation, during which transplantation date will be determined. I am hoping that in a week we will be able to collect all the documents so that, God willing, we will come to St. Petersburg on December 15th.
Dinara's mom

Update as of December 11, 2009. I gathered all the documents and bought tickets. God willing, on December 15th we will be in St. Petersburg. We will arrive at 11:30 and will go to the clinic right away. We do not yet have a place to stay in St. Petersburg.
Dinara's mom

Update as of December 30, 2009. Dina and I are already home in Kazan. Dina is doing well, and the test results show complete remission. On December 25th her own stem cells were collected. Transplantation was scheduled for January 28th. On January 11th we should arrive to the clinic. We are hoping we will be able to finish all the necessary tests and get required documentation in time. We now only need to solve the issue with lodging in St. Petersburg.
We are wishing everyone great health, happy family life, good luck and success in everything! May all your wishes come true in the New Year!
Dinara's mom

Update as of January 12, 2010. Transplantation was scheduled for January 27th. The money for the delivery of transplant was raised.

Update as of January 29, 2010. Today Diana underwent bone marrow transplantation. For now, all is well. We are very grateful to Denis, who paid for delivery of transplant - 2,500 euros! Wishing good health and success to all our supporters!
Diana's mom

Update as of February 3, 2010. Kolokolchik Children's charitable fund in Kazan provided us with financial support of 60,000 rubles. We are very thankful to the fund president, I.A. Borobieva and all our supporters!
Diana's mom

Update as of March 7, 2010. Dina is in 37th day post-transplantation. Fortunately, she has no serious issues. The only problem is she has a difficulty walking as her legs ache. She also needs to be on a strict diet.
We live in a rented apartment and twice a week go to the clinic for tests. We are grateful to Advita fund for their help and support. We would not have been able to cope with this without you.
Dinara's mom

Update as of March 14, 2010. Dinara is recovering after transplantation and receiving immunosuppressive therapy. She feels rather well.

Update as of March 23, 2010. Dina was prescribed hormonal therapy to control skin GVHD, and she now has much less of a rash and itching. Her legs ache and she has a hard time going up the stairs. To get her to feel better we give her injections of Ubichinon. Dina is on a strict diet.
Yesterday she turned 10. She was upset that she could not eat anything that she like, and a cake in particular. The young ladies from Ioann Kronshtadtsky church parish saved the day. Katya and Masha came to our apartment with a load of presents and entertained our children the whole evening.
We are very grateful to them for that! The celebration was great! We would like to thank Advita fund for paying for our apartment. Thank you very much!
Dinara's mom

Update as of May 4, 2010. Today is Dina's 95th day post-transplant. The puncture results showed complete engraftment of donor's bone marrow. I am very scared of something going wrong. It has not been very long and Dina is still on immunosuppressive therapy. Gradually, Dinara will be taken off of it, and hopefully there will not be any problems afterwards. For now, cytomegalovirus reactivated in Dina's blood due to lower immunity.
We are very grateful to AdVita fund supporters for paying for Intraglobin and Valcyte for Dinara. These medications are too expensive for us, and we would not be able to purchase them. Thank you for your support! We do need your help all the time. I cannot express my gratitude in words. I am starting to write, and I cry: these are tears of happiness for my daughter and for other kids whom you have helped and continue helping.
Dinara's mom

Update as of June 16, 2010. Today we are returning to Kazan. Dina will be allowed to stay at home for 1.5 months. She is doing well, feels well and has donor's chimerism.
We are still feeling uneasy, as this is just a start of our long road to recovery. It has only been 4 months since the transplant. But we know that everything will be well.
I'd like to thank AdVita fund and all our supporters for their help and support. Without you, it would have been very difficult to overcome all these challenges. When we came here, it was a strange and far away city to us, and now it is a city that feels very close to our hearts.
We wish health, happiness and success to everyone. Hope you always have good luck. Wishing all the kids to get well soon and stay well.
Dinara's mom

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