Dear all, my name is Elena Adamyants, I'm 33 and I have two children. A little
over a year ago I used to live like many other people do thinking that all
bad things are somewhere far away and will never come my way. Everything
seemed to be so fine: college diploma with honors, an excellent family, career
growth...
Behind all that no one even noticed how trouble came: I did not pay attention to
constant tiredness, repeating colds, depressions or even a dramatic loss of
weight in the fall of 2008 and did not go to a doctor.
Only on January 19, 2009 when I simply could not rise in the morning due to
an awful throbbing pain in my sacrum and fainted I realized that something
was wrong... Then there were all kinds of diagnoses: from right-sided pneumonia
to the trivial osteochondrosis... Until a blood count dated January 27, 2009 with
a leukocyte count of 33,000 revealed serious blood problems.
So on February 2, 2009 I was admitted to the Hematology Research Center of the
Russian Academy of Medical Sciences with the following diagnosis: Philadelphia
chromosome-positive acute lymphoblastic leukemia. I had 5 heavy chemotherapy
courses (until July 15, 2009) and was taking Glivec but my body became tolerant to
it and it stopped preventing the formation of blast cells.
Clinical and hematological remission was achieved back in April 2009 (up to 5% of
blast cells), but on a molecular level the transcript only disappeared twice
due to the treatment with Sprycel (Dasatinib) in October and December 2009. That
allowed the doctors to hope for a transplantation of my own stem cells without
transplanting donor bone marrow. But unfortunately after 4 days of an exhausting
procedure albumin transcript was found in the material taken, so transplantation
of my own stem cells is now impossible for me since it can lead to a relapse. At
present I am being administered maintenance chemotherapy every 4 weeks.
In order to stay alive and overcome the disease I need a donor bone marrow
transplantation. I have no 100% compatible brothers or sisters. Searching for
the donor and activating it is effected through the German registry Stefan Morsch
Stiftung and entails serious expenses (15,000 euros plus 2,500 for bone marrow
delivery by a special courier).
Unfortunately my family does not have such money: I am officially disabled, my
husband has odd jobs since he spends most of the time taking care of the children.
We actually depend on my parents for financial support. My father is on pension
and my mother is a librarian.
My story may seem a little dry and too full of medical details but in any case I
believe many people do realize what kind of physical and mental sufferings
cancer patients have to go through.
The disease has made me more tolerant to the never ending physical and mental
pain. There is only one kind of pain I cannot get used to, and that is fear
for my children: it is unbearable to imagine that I can leave them without a
mother, not being able to protect them when needed, not being able to witness
their achievements and give them the gift of my love and care.
Please help me stay on this side of the tunnel with my family and friends, I
do not want to go away.
Elena
Home address:
Shukhova d. 6, korp. 2, kv. 246,
115162 Moscow, Russian Federation
Contact phoneы:
+7 (495) 446-65-36 (home)
+7 (916) 572-42-29 (Rudolph Sergeevich, father)
+7 (903) 179-92-86 (Elena)
Update as of February 10, 2010.
Based on the preliminary search results Elena has 16 potential
non-relative bone marrow donors in the International Registry. Prior to
BMT she must continue with the polychemotherapy program and Dasatinib
treatment therapy.
Update as of March 16, 2010.
We made the first payment of 5,000 euros to the Morsch registry.
We are enormously grateful to everyone for their help!
Elena
Update as of May 10, 2010.
I've been at the hospital since April 18th. It turned out my
constant fever was caused by fluid in pleural area and viruses in it.
It was drained three times, but I still have some left. We are
trying to get all of it out at home with Valtrex.
I had to stop taking vitally needed Dasatinib for 1.5 weeks,
because it is its main side effect - accumulation of fluid
where it is not supposed to be.
Elena
Update as of July 8, 2010.
I am incredibly grateful to Anna Levitova and Karina Heifets, managing
partners of Evans Real Estate (evans.ru), as well as Maria Adamyan and
Maxim Mokeev for initiation of fundraising, and daily search and analysis
of information regarding treatment methods in different clinics.
Several events to raise money for my treatment were organized, and there
is an online art auction at evans.ru that is still open. I am very
grateful to all the artists who donated their art for charity!
Thanks to these people, I understood in real life the meaning of the
phrase "having 100 friends is better than having 100 rubles".
They are not only people who were my managers in the past, but also,
above all, close and supportive friends. Of course, there are many
other colleagues, clients and company friends who have contributed to
the fundraising and search for information. I am enormously thankful
to all of them!
Every day I wake up thinking that I am grateful to God for bringing me
one day to this amazing place where support and care are not just words,
but every day reality. This is a true family.
I am very grateful to all my former colleagues from DTZ Debenham Zadelhoff
company for active participation in the raising funds for my treatment, as
well as for organizing a fun event that not only brought in money, but also
gave us all a chance to have fun and see each other once again. I am
particularly grateful to Elena Kolesnikova, Anna and Evgeniy Lednev,
Anna and Nikolai Dinges, Yulia Kobylinskaya, John Delarghi, Elena Biletskaya,
Ekaterina Horoshilova and her Asian dance troupe for organizing and performing
in the event, and also to Maria Surkova, Stefano Karosi, Margarita Teploukhova,
Sergei Sokolov, Marina Minasova, Lumina Reznik, Maria Khokhlova, Anton Zavarzin,
Yulia Khvan, Patrick Farley, Armen Kirakosyan, Natalia Kovalevskaya,
Irina Doschenko, Aleksei Prokofiev, Ilona Nikonova, Irina Maksimenkova,
Alexandra Velchenko for their participation.
I am also especially grateful to very talented artist Andrei Prakhov for
donating his painting as a prize for the lottery.
And I would like to also thank Yulia Kobylinskaya and Anna Dinges for their
daily hard work to create and update the website: helplena.ru.
Elena
Beneficiary:
Elena Adamyants
Acc.: 40817840401000004297
Beneficiary's bank:
ZAO Raiffeisenbank
SWIFT: RZBMRUMM
Intermediary bank:
Union bank of Switzerland (UBS)
45, Bahnhofstrasse,
8021 Zurich, Switzerland
SWIFT: UBSWCHZH
acct. no 02300000069272050000K
Beneficiary:
Elena Adamyants
Acc.: 40817840401000004297
Beneficiary's bank
ZAO Raiffeisenbank
SWIFT: RZBMRUMM
Intermediary bank:
Correspondent account in USD:
3582021665001
STANDARD CHARTERED BANK
NEW YORK
SWIFT: SCBLUS33
CHIPS ABA:0256
FEDWIRE NO: 026002561
EURO
GBP
Beneficiary:
Elena Adamyants
Acc.: 40817840401000004297
Beneficiary's bank:
ZAO Raiffeisenbank
SWIFT: RZBMRUMM
Intermediary bank:
Raiffeisen Zentralbank
Osterreich AG
Am Stadtpark 9
A-1030 Vienna, Austria
SWIFT: RZBAAT WW
acct. no 1-55.025.928
Beneficiary:
Elena Adamyants
Acc.: 40817840401000004297
Beneficiary's bank
ZAO Raiffeisenbank
SWIFT: RZBMRUMM
Intermediary bank:
HSBC (former Midland) Bank Plc
PO Box 181, 27-32 Poultry
London EC2P 2BX, UK
SWIFT: MIDLGB22
acct. no 37575971
Correspondent Bank:
Deutsche Bank Trust Company Americas,
SWIFT: BKTRUS33
Beneficiary Bank:
OJSC Bank Petrovski (f. EEFC Bank Plc.)
SWIFT: PETRRU2P
Account No. 04096265
Beneficiary:
Non-Profit Organization
"AdVita Charitable Foundation",
account # 40703840712001000468
*,**
Correspondent Bank:
Deutsche Bank AG,
SWIFT: DEUTDEFF
Beneficiary Bank:
OJSC Bank Petrovski (f. EEFC Bank Plc.)
SWIFT: PETRRU2P
Account No. 100 9497918 1000
Beneficiary:
Non-Profit Organization
"AdVita Charitable Foundation",
account # 40703978312001000468
*,**
* - Please specify your name and how we can keep in touch with you.
We also need the letter from you with the following data:
your full name (name of organization), address, phone (fax), goal of donation,
date, signature (seal).
Please use on of the following applications:
in russian,
in english,
in german.
** - If money amount are transfered by the third party we kindly
ask you to show in the letter which firm would transfer the sum of
money (by our request money transfer would be performed by firm....
If you would like to transfer money through Western Union, please contact
site administrator.
If something wrong in the table below or you don't see reference on your donation, please
keep in touch with site administrator.
If you would like to help us collect money for Elena's treatment, please e-mail to the
site administrator
and write your name, or company name, payment number, time and place of money transfer.
This information will help us to account for money collection and inform you about every
donation. Please don't forget to tell us about your donation. We need to make
sure that every donation reaches its intended recipient.
