My name is Gayane. I am 41 and I have two daughters. I finished school in
1984 and became a student of a medical institute where I acquired the profession
of a pharmaceutical chemist. All my life I have been making a living on my
own. I have never had to ask for money as I always tried not to let my expenses
exceed my modest salary. Of course the money I made was only enough for my
children's education. But I was happy with what I had. Everything was fine
and I was sure that I would be able to see my children well set in life.
In the spring of 2008 I felt I was growing weak and it was more and more difficult
to come back home after a hard working day and do the chores. At first I thought
it was because I had not had a vacation in a long time, but headaches and dizziness
continued. I went to a doctor who prescribed drugs to improve blood circulation
in the brain – he thought it was due to osteochondrosis. The treatment course
helped but the effect did not last.
Life was busy, and I hardly noticed the
arrival of year 2009 which brought chaos and horror into my home. On December
27 I suddenly got a fever. The fever persisted all through the holiday season,
after which I could finally see a doctor. I had a blood test and heard a diagnosis
which was later on confirmed at the Hematology Institute of the Russian Academy
of Medical Sciences: chronic myelogenous leukemia. At first the doctors' prognoses
were more or less optimistic. The recommendation was to take a certain dose
of Glivec which was to ensure that I would be able to live and work for at least
7 years (the drug was registered in Russia, as well as in the rest of the world,
in 2001 and naturally the doctors did not have lots of experience with it). I had
to put up with the situation and follow the doctors' instructions hoping for
the medical science to progress.
In June 2009 I was scheduled for an examination
in Moscow.On my way there I was absolutely sure that I would surprise the doctors
with my achievements, that I the disease had been suppressed. But the reality
was a lot worse, moreover, it was unpreventable. The test results showed that
a 6 months' course of Glivec did not result in any changes, and the disease
had not given way at all.
The doctors recommended to increase the dosage and
at the same time to begin looking for a donor for a bone marrow transplantation – an
expensive procedure but the only way to try and save my life. There was no relative
donor: my only brother was not a match, and an increased dosage of the drug
had a toxic effect on my blood so that the counts went even worse. At present I
am only taking the drug as a maintenance therapy. In the meantime the Raisa
Gorbacheva Institute of Hematology and Transplantology which I addressed for
help started a search for a compatible donor in the Morsch registry in Germany. I
now have to pay 15,000 euros for a more detailed donor search.
In spite of the fact that I am not too old yet, I have a 25 years' employment
history. Even now I still have to go to work because I am the only wage earner
in the family. Yet I have not made any savings in all the years I had been working
since everything I earned was used for everyday needs. Now I have to ask for
financial help so that I can continue with the treatment. I am asking you for
your support.
Update as of January 13, 2010.
Gayane feels rather well and takes Gleevec. One of the charities
in Moscow donated 5,000 euros for the first installment to
Stefan Morsch registry. The donor search was initiated.
Update as of April 3, 2010.
Gayane came in for another consultation. The search for a donor
in the international registry is continuing.
Correspondent Bank:
Deutsche Bank Trust Company Americas,
SWIFT: BKTRUS33
Beneficiary Bank:
OJSC Bank Petrovski (f. EEFC Bank Plc.)
SWIFT: PETRRU2P
Account No. 04096265
Beneficiary:
Non-Profit Organization
"AdVita Charitable Foundation",
account # 40703840712001000468
*,**
Correspondent Bank:
Deutsche Bank AG,
SWIFT: DEUTDEFF
Beneficiary Bank:
OJSC Bank Petrovski (f. EEFC Bank Plc.)
SWIFT: PETRRU2P
Account No. 100 9497918 1000
Beneficiary:
Non-Profit Organization
"AdVita Charitable Foundation",
account # 40703978312001000468
*,**
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