Hello!
Dear friends! My name is Galina Zhuikova. I live in Udmurtiya. Please help my son if you can. My son Igor Zhuikov is 37. He has a good family, wife and two daughters (3 and 5 years old), and a good job. My son has a college degree and he enjoyed playing sports (soccer and volleyball) before he got sick.
In 2002 and 2005 he and his wife gave us two charming daughters. Unfortunately, instead of living a happy life and enjoying his children, my son began having health problems. At the end of 2005, he started coming home tired. He wanted to lie down and rest, while earlier he would go to train or take his daughters for a walk. I was asking him about his health, but he was telling me that all is well, he just needed some rest and everything will be fine. The periodic medical exam at his work also did not uncover anything. Our son is not very talkative and does not like to complain. My husband and I decided to offer more help, and we started taking our granddaughters to our place every evening and on the weekends. In February 2006 our son started feeling unwell. He had high temperature, cough and fatigue. The treatment was not helping and then after another series of tests he was referred to hematologists with a diagnosis of acute leukemia.
For six months, our son could barely move around his apartment, and once he got a little better he was sent for cytogenetic test in Kirov, as it is not offered in our republic. After we received the test results, Igor was diagnosed with chronic myeloid leukemia.
Our son received second disability group and was prescribed chemotherapy with Glivec for six more months. Igor is a very resilient person. By that time, he felt a little better, so he refused the designation of II disability group and asked for a third instead (to be able to receive Glivec), then went back to work. Glivec is a very expensive medication and costs 120,000–180,000 rubles a month, depending on the dosage. It has to be taken without interruption. After six months, we were told to go back to Kirov for another cytogenetic test to control the treatment progression. At that time, the malignant cells were still present, but Igor was doing better. For that reason, the Glivec dosage was increased and extended for another six months. We thought Igor was in a stable condition. However, six months later, instead of expected good results we were told that some new malignant cells appeared.
We were referred for a consultation in St. Petersburg where everything was re-checked and confirmed. We are now told that Igor needs bone marrow transplantation, and the sooner the better. It costs a lot of money, which we do not have. In two years since our son got sick everything we had is now gone. Although the treatment itself was free, the medication was not always available, and periodically we had to buy it. All the trips to the hospitals also used up significant funds. In addition, we paid for many tests. For example, typing cost us 15,000 rubles.
We now need to pay 15,000 euros for the search for the donor at the international bone marrow donor registry. The delivery of transplant costs additional 2,500 euros. Also, transfusions cost 70,000 – 80,000 rubles, while the lodging and living expenses in St. Petersburg after the transplantation will amount to 100,000 rubles.
Please help our son! With that, you will also help two of his little daughters and my husband and I. We are now in our 60s.
With much respect and hope,

Galina Zhuikova
Home address:
426054, Udmurtiya, Izhevsk,
ul. 30 let Pobedy, d.46, kv.64.
Contact phones:
+7 (912) 440-4516 (cell)
+7 (3412) 58-02-55 (home)

Bill for the donor search in Germany

Update as of May 19, 2008. The bill for the donor search for Igor was paid in full by his employer. Therefore, he now needs to raise 2,500 euros for the delivery of transplant to St. Petersburg.

Update as of July 6, 2008. On July 9 Igor will come to BMT clinic at Pavlov State Medical University for testing.

Update as of July 15, 2008. After her undergoes testing, Igor is scheduled for transplantation at the beginning of September. We need to raise the money for transplant delivery (2,500 euros).

Update as of July 28, 2008. The transplantation is scheduled for September 16th.

Update as of September 6, 2008. Igor will come to St. Petersburg on September 7th. His family needs help with paying for a place to stay.

Update as of October 22, 2008. Igor hematologically recovered after transplantation. However, the last few days he had very high temperature. Igor receives antibiotics and antifungal drugs.

Update as of October 31, 2008. The doctors managed to take the infectious complications under control and Igor feels much better now. Hematologically, he is in a stable condition.

Update as of December 8, 2008. Igor's condition improved so much that the doctors found it possible to allow him go home. His planned testing is scheduled for January.

Update as of January 29, 2009. Igor suffers from fungal pneumonia. He started therapy with Fungizone, and control CT scan will take place on Friday. A discussion regarding Igor's second hospitalization at Bone Marrow Transplantation clinic is underway.

Update as of March 1, 2009. Igor has been staying almost a month at Bone Marrow transplantation clinic with fungal pneumonia that requires therapy with Vfend at 200 mg dosage (twice a day). Each package of the drug costs 25,000 rubles and lasts a week. Igor's condition is now gradually improving.

Update as of May 25, 2009. Igor's condition worsened. He is in intensive care and he needs Cancidas urgently.

Update as of June 3, 2009. After starting Cancidas therapy, Igor's condition improved. He was transferred to regular unit out of intensive care. Today he has been breathing without oxygen mask for the first time. However, he needs to continue treatment. Igor constantly needs Cancidas and Pulmozyme.

Update as of July 15, 2009. Igor's cytomegalovirus infection reactivated and he was prescribed Valcyte. A course of treatment costs 45,000 rubles.

Update as of July 23, 2009. Igor developed toxic encephalopathy, but this condition was quickly taken under control. For now, Igor is still in intensive care unit under the doctors' watch.

Update as of August 4, 2009. Igor feels relatively well and was discharged for outpatient monitoring. The toxic encephalopathy is completely gone. Igor's daughters came to visit him.

Update as of August 11, 2009. For the last two weeks, Igor was an outpatient. We come to the hospital only to administer Gliatilin and Thioctacid. After a consultation with neurologist, Igor was also prescribed intravenous Levocarnitine, and Noben to improve brain function.
In addition, Lyrica medication was prescribed, as Igor cannot walk well, and this medication relieves pain.
Igor's mom

Update as of August 19, 2009 Igor feels a little better. He still takes the following medications: Levocarnitine, Thioctacid (IV), Vfend, Zovirax, Biseptol, Amoxiclav, Neuromultivit, and calcium. Igor's cytomegalovirus titer is heightened so he also needs Valcyte.
Igor's mom

Update as of September 5, 2009. Igor's condition is now stable, and he is in remission. The doctors allowed him to go home, to Izhevsk. Igor flew home today. We are enormously grateful to everyone to helped Igor! He will come back for control testing in two months.

Update as of October 2, 2009. Igor Zhuikov's leukocyte count increased. He is now undergoing testing at his place of residence. Igor still needs Vfend.

Update as of November 30, 2009. Igor's condition worsened; he has fever and problems with lungs. The doctors are waiting for Igor to arrive to St. Petersburg for hospitalization.

Update as of December 25, 2009. Igor and I came for an examination. Igor's health has gotten worse. Computed tomography revealed negative dynamics. He has got a bad GVH reaction involving his skin. The doctors suspect a GVH reaction in his lungs and some kidney problem, plus he has otitis. Igor is taking 600 mg of Vfend a day.
Igor's mother

Update as of January 27, 2010. Igor started photopheresis to fight chronic skin GVHD. After the first two procedures, he has some improvement. Igor still takes Vfend at 600 mg a day, as well as many medications to improve liver and kidney function. His family needs financial support.

Update as of March 3, 2010. Igor is continuing photopheresis. He was referred for detailed examination of kidneys due to fluid retention.

Update as of March 26, 2010. Igor's skin and lungs situation is now stable, although he still has issues with kidneys due to severe loss of protein. Nephrobiopsy results are not yet ready. Igor will be transferred to Nephrology Research Institute at State Medical University for extensive examination of his kidney function.

Update as of May 19, 2010. Igor is now at nephrology unit of Pavlov State Medical University. He still loses protein rapidly and the reason for that is unknown. His skin GVHD is stable, and his lungs are clear, but Vfend therapy has to continue due to high doses of immunosuppressive medications.

Update as of June 10, 2010. Igor is stable and he has positive dynamic in regards to his lung condition. A thrombus is at the resorption stage and ultrasound images show that his kidneys returned to normal shape. The swelling is gone and protein levels went down to 6 (from 35). Skin condition improved after therapy and treatment with ointments, although a few problem areas remain in Igor's hands, feet and face. He is doing physical therapy and recovering movement in his arms and legs. Igor is full of optimism and desire to live.
We are very thankful to AdVita fund where we are always welcomed and cared for, and whose volunteers meet us with warmth and great help.
Igor's mother

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