Hello!
My name is Irina Lukoyanova. I kindly ask you to help me with the treatment
of my son Kirill. He is 12 and is a student of the 5th grade. My son was born
with numerous congenital abnormalities: congenital hypoplasia of the 1st finger
of the right hand with a deficient grasping function, bilateral congenital
conductive hearing loss, right-sided cryptorchidism, lumbar dystopia of the
left kidney combined with its hypoplasia, incomplete right kidney rotation, etc.
Up until the 4th grade those congenital abnormalities did not prevent Kirill from
going to a middle school in the town of Kozlovka of the Chuvash Republic where
he did very well. My son made a point of going to all physical training classes
as we both hoped it would improve his physical development. He was enrolled in a
soccer club for children, the same one which my younger son Pavel was going to,
and Pavel is a winner of the second prize at the Chuvash Republic Soccer
Championship among children.
During the year 2007 Kirill was having spontaneous nosebleeds (which could last
as long as 40 minutes), approximately 2-4 times a month. All mental and physical
activities made him very tired in no time. One day he had a nosebleed at night,
and I called the ambulance. The doctor examined him and advised us to have a
full blood count. On November 27, 2007 my son had a complete examination which
revealed blood changes.
When Kirill went to the 4th grade (that is, in September 2008) his condition
got a lot worse. He had a weakness and fatigue which he could not bear any
more. We were admitted to a regional hospital and then transferred to a
republican hospital. A clinical test revealed an anemia (his hemoglobin
count was 77). Further on Kirill was admitted to the Raisa Gorbacheva
Institute of Children's Hematology and Transplantology so that the diagnosis
could be specified and the treatment tactics defined. Given Kirill's numerous
abnormalities he was diagnosed with a severe form of aplastic anemia, and the
doctors suspected Fanconi's anemia.
My son was examined by Professor B.V. Afanasiev who thought it reasonable to
activate the search for donors in the International registry and cord blood
banks. Unfortunately according to the matching results Kirill's brother Pavel
could not be his donor. The search for a non-relative compatible donor in the
International registry requires 15,000 euros. A bone marrow transplantation
is the only chance to save my son's life. We faced a problem we cannot solve
on our own!
Thank you all very much. We hope for your compassion and help!
Update as of January 13, 2010.
Kirill feels pretty well. In the next few days, he will be
hospitalized locally for planned transfusions of blood components.
At the end of January, he is planned to come for tests to
R. Gorbacheva Pediatric Hematology and Transplantology Institute.
Update as of February 20, 2010.
We are very thankful to the Podari Zhizn fund for their decision to help raise
the money for Kirill. No donor for Kirill has been found so far.
Update as of April 16, 2010.
A donor for Kirill was found. Transplantation was scheduled
for the end of May.
Update as of May 19, 2010.
Kirill and his mom arrived to St. Petersburg and in the next few days he
will be hospitalized for pre-transplant chemotherapy.
Update as of July 6, 2010.
Transplantation took place on May 28th and on June 18th Kirill was discharged
for outpatient monitoring. Bone marrow engrafted, and his blood counts are normal.
CT scan and MRI results were normal too. Kirill takes Heptral, Mycosyst,
Ursofalk, Zovirax, Cyclosporine and Amoxiclav. He feels well and takes walks.
Correspondent Bank:
Deutsche Bank Trust Company Americas,
SWIFT: BKTRUS33
Beneficiary Bank:
OJSC Bank Petrovski (f. EEFC Bank Plc.)
SWIFT: PETRRU2P
Account No. 04096265
Beneficiary:
Non-Profit Organization
"AdVita Charitable Foundation",
account # 40703840712001000468
*,**
Correspondent Bank:
Deutsche Bank AG,
SWIFT: DEUTDEFF
Beneficiary Bank:
OJSC Bank Petrovski (f. EEFC Bank Plc.)
SWIFT: PETRRU2P
Account No. 100 9497918 1000
Beneficiary:
Non-Profit Organization
"AdVita Charitable Foundation",
account # 40703978312001000468
*,**
* - Please specify your name and how we can keep in touch with you.
We also need the letter from you with the following data:
your full name (name of organization), address, phone (fax), goal of donation,
date, signature (seal).
Please use on of the following applications:
in russian,
in english,
in german.
** - If money amount are transfered by the third party we kindly
ask you to show in the letter which firm would transfer the sum of
money (by our request money transfer would be performed by firm....
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