Hello!
We would like to ask you tor help our relative Larisa Gennadievna Bodrilova
who lives in St. Petersburg. She is now 40 and has a rare disease.
On November 1, 2009 Larisa was admitted to the Pokrovsky City Hospital with a
neoformation in the maxillary sinus. An emergency maxillo-ethmoidal sinusotomy
was performed on November 5, 2009, and histological analysis revealed a mycotic
lesion, namely zygomycosis of paranasal sinuses. Larisa continued with the
treatment course at the Kashkin Research Institute of Medical Mycology (SPbMAPO).
Zygomycosis can be treated with two drugs: the drug of choice is Posaconazole
(Noxafil), 800 mg per day, and the alternative drug is Amphotericin B, 1 mg per
kg a day. Since Posaconazole is very expensive and was not available at hospital
Larisa was administered Amphotericin B which is very toxic and has a negative
effect on the liver and kidneys, so it cannot be administered for more than 20 days.
On December 31 Larisa was discharged from hospital as the Research Institute
of Medical Mycology was to be closed until January 11, 2010. At home she was
taking Posaconazole which we acquired ourselves. On January 11, 2010 Larisa
was once again admitted to the Research Institute of Medical Mycology for the
treatment course to be continued, but Posaconazole is still not available at
hospital.
To survive Larisa needs Posaconazole, 800 mg per day for 3 months, which makes
up 18 bottles (1 bottle is 100 ml, 1 ml is 40 mg). The drug costs 70 to 100
thousand roubles, and that means that a 3-months' course (18 bottles) will
cost 1,800,000 roubles.
Larisa is not a millionaire's daughter, and besides she is officially acknowledged
as belonging to disability group III due to a trauma. We are all working and
trying to earn the money but unfortunately our family's budget is not enough.
The treatment is very serious and expensive, that is why we have to ask you for
help.
Thank you for your understanding.
Larisa Bodrilova
Home address:
199226 St. Petersburg, Russia
Korablestroitelei, d. 23, korp. 2, kv. 48
Contact phones:
+7 (904) 647-69-69 (Larisa)
+7 (812) 352-11-86
Update as of February 21, 2010.
From February 5 to February 21, Larisa was at home and had a course of
therapy with Posaconazole (Noxafil) that was purchased by
her relatives.
On February 22, she will start another course of antimycotic
therapy with Amphotericin B.
Anastatia, volunteer
Update as of March 6, 2010.
Larisa was allowed to stay at home during holidays (March 5 - March 12)
where she will continue Noxafil therapy.
She tolerated Therapy with Amphotericin B well, even in a higher dosage.
She has some problems with potassium, as it gets washed out.
The last CT scan showed improvement.
Anastatia, volunteer
Update as of March 24, 2010.
Larisa was taking Posaconazole from March 5 to March 18 at Mycology
Research Institute. She wanted to take a rest from the last intense
course of therapy with Amphotericin B, but on March 19th she started
IV drips of Amphotericin again. Larisa cannot afford to buy the next
bottle of Posaconazole.
Anastasia, volunteer
Update as of April 24, 2010.
We managed to convince Health Committee give us medications, and
already received the first monthly portion out of total number of
18 bottles of drug necessary. So we no longer need help. We are
enormously grateful to everyone who has been helping Larisa
all this time! She has been transferred to ambulatory
therapy for a month.
Anastasia, volunteer
Correspondent Bank:
Deutsche Bank Trust Company Americas,
SWIFT: BKTRUS33
Beneficiary Bank:
OJSC Bank Petrovski (f. EEFC Bank Plc.)
SWIFT: PETRRU2P
Account No. 04096265
Beneficiary:
Non-Profit Organization
"AdVita Charitable Foundation",
account # 40703840712001000468
*,**
Correspondent Bank:
Deutsche Bank AG,
SWIFT: DEUTDEFF
Beneficiary Bank:
OJSC Bank Petrovski (f. EEFC Bank Plc.)
SWIFT: PETRRU2P
Account No. 100 9497918 1000
Beneficiary:
Non-Profit Organization
"AdVita Charitable Foundation",
account # 40703978312001000468
*,**
* - Please specify your name and how we can keep in touch with you.
We also need the letter from you with the following data:
your full name (name of organization), address, phone (fax), goal of donation,
date, signature (seal).
Please use on of the following applications:
in russian,
in english,
in german.
** - If money amount are transfered by the third party we kindly
ask you to show in the letter which firm would transfer the sum of
money (by our request money transfer would be performed by firm....
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