Hello!
I am the mother of a little girl from the northern town of Nefteyugansk. I have
to ask you for your help hoping that your kind hearts won't stay indifferent.
My dear daughter Milana Kuzhenova is 2 years old. She is a very active girl,
an only child in the family.
In May 2009 trouble came to our family: leukemia (acute myeloblastic leukemia, M7,
result of myelodysplastic syndrome).
No one noticed how it all happened: first the diagnosis was "unspecified
thrombocytopenia", then there were numerous examinations. Milana was examined at
a hospital in Surgut, then at the Ekaterinburg oncohematology center. Only a
year later the doctors arrived at the final diagnosis which was myelodysplastic
syndrome, but by that time it had already turned into leukemia. The doctors were
shaking their heads – the disease is very grave.
There was a shock and there were tears but... one had to move on with the treatment,
we want to live and we will live too!!! Our only chance to survive is a bone
marrow transplantation but Milana has no brothers or sisters, and the preliminary
donor search in the international registry did not yield any positive results either.
By now we're already past 4 high dose chemotherapy courses, we are trying to get
on with life and getting maintenance Dacogen therapy. But the doctors say that
time is against us.
The doctors from the Raisa Gorbacheva Institute of Children's Hematology and
Transplantology in St. Petersburg were invited, and another search for a donor
was begun abroad. If it is fruitless again Milana is going to have a haploidentical
bone marrow transplantation from me.
We came to St. Petersburg and have to rent an apartment here since we have
no relatives or friends here. But this problem was almost immediately solved by
the AdVita fund, and my daughter and I were not left alone. We are so thankful to
them for that!!!
I am a doctor, my salary is not high, and I am the only wage earner in the
family. I could not even dream of getting such great help.
Now we live and hope for the best. We believe in our strength, the doctors' expertise
and God's help as well as in good people.
Many thanks to the AdVita fund that does good things and helps people! We hope
for further help and support. Milana's treatment will require great sums of money
which we do not have.
Thank you all very much, God bless you and your families!
Update as of January 10, 2010.
On December 31, Milana started a new course of Dacogen, but she was
still looking beautiful and fashionable for the New Year celebration
in her new dress and with a necklace.
At the end of January, she will undergo puncture. Before the end of
January, the doctors are hoping to hear from the International registry.
If the response is negative, I will be considered as a partially
matching donor.
Milana feels rather well, eats well and walks around. She is bothered
by leg pains due to osteoporosis and takes Calcium pills.
Milana's mom
Update as of January 29, 2010.
Milana is at the hospital where she is undergoing therapy with Dacogen.
She feels well. The results of typing are ready and the preliminary
search will be performed soon.
Update as of February 20, 2010.
The fourth course of Dacogen is over. Milana and I are now staying at the
apartment we rented. Last week's puncture testified to improvements.
Milana's legs no longer hurt (the calcium level is normal again) and she
now sleeps well. Next week we will have blood tests done.
Milana is active and cheerful as usual. She is a very communicative girl
and loves playing with other kids, especially those older than her. When
the weather permits she will go to a park to sledge. Our family sent Milana
her felt boots so now we can stay outside for a long time.
There are very few potential donors for Milana in the international registry,
the search is conducted every week as the data are renewed (the international
database is renewed every day), for now the decision is to continue with
Dacogen since the girl is responding to it very well and to keep track of
the situation with donors.
Milana's mother
Update as of June 6, 2010.
A donor for Milаna was found. Transplantation is scheduled for July 7.
Correspondent Bank:
Deutsche Bank Trust Company Americas,
SWIFT: BKTRUS33
Beneficiary Bank:
OJSC Bank Petrovski (f. EEFC Bank Plc.)
SWIFT: PETRRU2P
Account No. 04096265
Beneficiary:
Non-Profit Organization
"AdVita Charitable Foundation",
account # 40703840712001000468
*,**
Correspondent Bank:
Deutsche Bank AG,
SWIFT: DEUTDEFF
Beneficiary Bank:
OJSC Bank Petrovski (f. EEFC Bank Plc.)
SWIFT: PETRRU2P
Account No. 100 9497918 1000
Beneficiary:
Non-Profit Organization
"AdVita Charitable Foundation",
account # 40703978312001000468
*,**
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date, signature (seal).
Please use on of the following applications:
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