Hello!
My name is Svetlana, I am 30 years old and on group II disability. I am a
single mother of two sons – 8 years old and 2 years and 9 months old. I got
sick in November 2006, and after a blood test I was immediately diagnosed
with acute lymphoblastic leukemia. I underwent successful treatment in Surgut
for two years. I completed nine rounds of chemotherapy, but in December 2008
I had a relapse, and was given a different diagnosis – acute myeloblastic
leukemia. I was administered two high-dosage chemotherapy rounds, which have
to be followed only by bone marrow transplantation, and the sooner – the better,
as it is not known how long the remission will last.
On March 14th I was able
to gain admittance to R. Gorbacheva Center of Hematology and Transplantology
in St. Petersburg. I am an only child of my parents. They were tested for
compatibility with me, but none of them matched. There were also no matching
donors at the international registry. Now I only have one option – haploidentical
transplantation. It requires payment for two columns for the donor's stem
cells separation system (CliniMACS CD34 Complete Kit with Accessories No.
177-01). Each column costs 285,600 rubles in Russia. Of course, our family
does not have such an enormous amount of money.
We were recommended to apply for help at a charitable fund and not to lose
hopes. There are always people who will respond and come to the rescue.
I would like to ask everyone who has such an opportunity to help us raise the
necessary amount. My children really need me. They have no one else. Please
help us!
I am grateful in advance to everyone who will be able to help!
Update as of June 3, 2009.
Svetlana came to St. Petersburg. She is now
undergoing planned testing prior to transplantation.
Update as of June 17, 2009.
The transplantation is scheduled for June 22. Sveta
had already started pre-transplantation chemotherapy.
Update as of July 23, 2009.
Sveta fully recovered after transplantation and was
discharged for outpatient monitoring. She now needs to take Vfend daily.
A package of the drug that costs 25,000 rubles lasts her a week.
Update as of August 19, 2009
It has been 60 days since transplantation. We will soon go for
testing and puncture. Currently, Sveta's condition worsened a
little due to cough and runny nose, but her blood test
results are normal. If puncture results are good, we may be
able to go home for 1.5 months.
Sveta's mom
Update as of September 8, 2009.
Svetlana recovered and felt so well that the doctors allowed her to go
home for a month.
Update as of October 2, 2009.
Svetlana returned to clinic with acute GVHD. She still needs Vfend at
400 mg a day.
Update as of October 27, 2009.
GVHD symptoms were taken under control, and Svetlana feels well.
She still needs Vfend therapy.
Update as of November 5, 2009.
Sveta's condition worsened suddenly. She was hospitalized for testing.
Update as of February 20, 2010.
Svetlana has been admitted to the Bone Marrow Transplantation Clinic with
serious signs of skin GVH reaction. Treatment is being administered.
Update as of June 4, 2010.
Svetlana is undergoing a course of photopheresis (third procedure),
and has visible improvement in skin GVHD. She feels rather well.
Update as of June 10, 2010.
Sveta completed eight courses of photopheresis with positive results.
The blood tests showed positive antigen to aspergillosis, and Sveta
was prescribed Vfend (400 mg daily). MRI of joints showed bone necrosis,
but the surgery is not yet possible due to GVHD.
Sveta's mom
Correspondent Bank:
Deutsche Bank Trust Company Americas,
SWIFT: BKTRUS33
Beneficiary Bank:
OJSC Bank Petrovski (f. EEFC Bank Plc.)
SWIFT: PETRRU2P
Account No. 04096265
Beneficiary:
Non-Profit Organization
"AdVita Charitable Foundation",
account # 40703840712001000468
*,**
Correspondent Bank:
Deutsche Bank AG,
SWIFT: DEUTDEFF
Beneficiary Bank:
OJSC Bank Petrovski (f. EEFC Bank Plc.)
SWIFT: PETRRU2P
Account No. 100 9497918 1000
Beneficiary:
Non-Profit Organization
"AdVita Charitable Foundation",
account # 40703978312001000468
*,**
* - Please specify your name and how we can keep in touch with you.
We also need the letter from you with the following data:
your full name (name of organization), address, phone (fax), goal of donation,
date, signature (seal).
Please use on of the following applications:
in russian,
in english,
in german.
** - If money amount are transfered by the third party we kindly
ask you to show in the letter which firm would transfer the sum of
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