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Sasha died on June 14, 2010

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Hello!
Sasha Martynov is 17. He is a typical country boy. He was diagnosed with stage
IV non-Hodgkin's lymphoma (t-lymphoma) with metastases in lymph nodes and bone
marrow.
Before he got sick, Sasha lived in a village of Staraya Chigla in Annensky
district. His mother worked at a cow farm, and his father was a mechanic. Sasha
also has an older sister who is married and lives separately with her own family.
Sasha is one of those active boys. After he completed the 9th grade, he did not
want to continue studying, but decided to work with his mother at a farm instead.
He also worked part-time by cutting wood for older women. All the money he earned
he gave to his mom.
Everything turned for worse in December 2007. After he went swimming in the icy
water, Sasha's lymph nodes enlarged, he lost hearing and developed a rash.
Until April 2008 he was on treatment at a district hospital, and only after the
treatment produced negative dynamic, he was referred to the Regional hospital in
Voronezh.
The boy was admitted to the unit with clear symptoms of intoxication: high
temperature, fatigue, weight loss (4 kg in 2 months), difficulty with breathing
and inability to walk.
The unit's doctors immediately started treatment. The first chemotherapy block
was very detailed and took almost a month.
However, the teenagers like Sasha tolerate chemotherapy much worse than little
kids.
He developed severe diabetes due to chemotherapy and did not respond to regular
insulin. His sugar levels skyrocketed to 30 units.
The doctors used special therapy with slow-release insulin, and they brought
sugar levels down.
Sasha is now in a serious condition. He already completed two blocks of
chemotherapy and was recommended bone marrow transplantation. Sasha's parents and
doctors of Hematology unit are asking for help. Unfortunately, he has no matching
donor among his relatives, so he needs a donor search at the international
registry. This requires 15,000 euros for the bone marrow donor search and 2,500
euros for delivery of transplant to St. Petersburg, where the transplantation is
planned to take place.
Just think how much a 17-year old would want to live. Not just watch the hospital
walls, but live.
Bill for the donor search in Germany
Epicrisis: page 1,
page 2,
page 3
Update as of November 16, 2008.
A donor for Sasha was found! The transplantation needs to be performed
as soon as possible. The date of it is being determined. We are sincerely
grateful to S. Morsch registry for covering the cost of the donor search
and transplant collection. We now need to raise 2,500 euros for delivery
of transplant and additional funds for apartment rental in
St. Petersburg for Sasha.
Update as of December 15, 2008.
Unfortunately, Sasha's disease recurred; he is to have anti-relapse
chemotherapy. Transplantation is postponed.
Update as of January 13, 2009.
Unfortunately, the chemotherapy course did not stop the disease progression.
Nevertheless, a decision was made to perform bone marrow transplantation.
It was scheduled for February 16th.
Update as of January 29, 2009.
Sasha was urgently hospitalized at R. Gorbacheva Institute of Pediatric
Hematology and Transplantology. He will be administered a course of
anti-relapse chemotherapy prior to transplantation, as his disease is
still progressing, and it needs to be stabilized prior to transplantation.
Unfortunately, he still has not received a quota for transplantation, and
this issue is being worked on. The transplantation was scheduled for
February 25th.
Update as of February 17, 2009.
The Schastlivy Mir charity fund
paid for the delivery of the transplant
for Sasha in full. Thank you very much for your help! Sasha is now having
his mouth sanitized before the transplantation. Many thanks to the UNIDENT
dental clinic for the free dental care given to Sasha.
Update as of March 26, 2009.
Sasha underwent transplantation. As a complication from the last chemotherapy,
his gastrointestinal balance is seriously disrupted and Sasha suffers from
severe vomiting. He feels unwell and very fatigued. Sasha's blood counts
stay low. He receives fod intravenously. Please pray for Alexander.
Yulia, volunteer
Update as of April 15, 2009.
Sasha fully recovered after transplantation and was discharged for
outpatient monitoring. He was able to achieve remission in regards to
his main illness. However, since transplantation was performed while
Sasha was in relapse, a decision was made to perform donor's lymphocyte
infusions to prevent possible relapse.
Update as of June 17, 2009.
Sasha fell down and broke his leg (shin fracture) and was installed
a metal rod. It is now removed, but Sasha still needs to stay in bed
for some time. After the infusion of lymphocytes, his blood counts
are still low and Sasha receives platelet transfusions. Due to hormonal
therapy, his sugar levels increased. Based on CT scan results, he
still has a few small nodes in mediastinum and in his neck, but
they do not accumulate contrast.
Sasha continues taking Entocort and Vfend, so he still needs help
with buying these drugs. His family also needs financial support.
Update as of August 8, 2009.
Sasha was discharged home, at place of his residence. The next control
testing is scheduled for September. He feels well. Sasha still needs to
continue Vfend therapy.
Update as of August 20, 2009.
Sasha had a relapse. He is now undergoing chemotherapy in Voronezh.
After completing chemotherapy, Sasha will travel to St.
Petersburg for donor's lymphocyte infusion.
Update as of October 2, 2009.
Sasha feels pretty well. He recovered from infectious complications and
next week he will travel to BMT clinic for planned testing and donor's
lymphocyte infusion. Sasha still needs Vfend.
Update as of November 5, 2009.
Based on test results, Sasha still has lesions in mediastenum. He is
planned to undergo chemotherapy and donor's lymphocyte infusion.
Update as of December 9, 2009.
Sasha and I came for donor's lymphocyte infusion. We are now referred
for radiation therapy at our place of residence, because Sasha still
has blasts in lymph nodes in his mediastinum, neck and under arms.
Next time we will return to St. Petersburg in March 2010. Sasha was
prescribed Vfend therapy at 200 mg twice a day.
Sasha's mom
Update as of April 15, 2010.
Sasha was administered a radiation therapy course and one more
chemotherapy course in his home town of Voronezh. He now came
to St. Petersburg for examinations and treatment course adjustment.
He might need another chemotherapy course and donor lymphocytes
transplantation since the foci are still there. Sasha still needs Vfend.
Update as of April 30, 2010.
Sasha is returning home after the examination and donor's lymphocyte
infusions. He will be monitored at Voronezh regional Clinical hospital.
He still has lesions accumulating contrast.
Update as of June 4, 2010.
Sasha is at home, on maintenance therapy.
He was switched from Vfend to Orungal.
Records of money received
| Name |
Sum |
Transferred from |
Date |
| SergejM |
$0.5 |
webmoney |
25.08.2008 |
| Ilya |
995 rub |
yandex |
22.09.2008 |
| Veronika Protasova |
$700 |
paypal |
28.09.2008 |
| Galina Grigorievna |
995 rub |
yandex |
29.09.2008 |
| Olga Nilova |
$75 |
paypal |
30.09.2008 |
| Oksana Kasintseva |
3000 rub |
wire transfer |
01.10.2008 |
| Olga Batychko |
1000 rub |
wire transfer |
02.10.2008 |
| Elena Kandaurova |
2000 rub |
wire transfer |
02.10.2008 |
| Sergey |
10000 rub |
wire transfer |
02.10.2008 |
| Irina Volkova and Dmitry Emets |
1492.50 rub |
yandex |
02.10.2008 |
| Iya Kokareva |
995 rub |
yandex |
03.10.2008 |
| Elena Nikiforova |
500 rub |
wire transfer |
03.10.2008 |
| - - |
250 rub |
webmoney |
05.10.2008 |
| - - |
995 rub |
yandex |
05.10.2008 |
| Katya |
2000 rub |
cash |
06.10.2008 |
| Yulia Buturlina |
2975 rub |
yandex |
07.10.2008 |
| Tatiana Smorskikh |
500 rub |
wire transfer |
07.10.2008 |
| Asya Markovina |
2000 rub |
wire transfer |
08.10.2008 |
| Mikhail Pavlichenko |
500 rub |
wire transfer |
09.10.2008 |
| - - |
2000 rub |
wire transfer on personal account |
09.10.2008 |
| - - |
500 rub |
unikassa |
10.10.2008 |
| Sergey Ozol |
1000 rub |
wire transfer |
13.10.2008 |
| - - |
2000 rub |
wire transfer on personal account |
13.10.2008 |
| - - |
1000 rub |
wire transfer on personal account |
14.10.2008 |
| - - |
13720 rub |
wire transfer on personal account |
14.10.2008 |
| Mikhail Shcheglov |
2000 rub |
wire transfer |
16.10.2008 |
| Elena Kulagina |
300 rub |
wire transfer |
17.10.2008 |
| - - |
9950 rub |
yandex |
15.10.2008 |
| Luba and Julia in a memory of Greg Nilov |
$50 |
paypal |
20.10.2008 |
| - - |
2000 rub |
wire transfer on personal account |
20.10.2008 |
| Sergey Nezhdanov |
1500 rub |
wire transfer |
24.10.2008 |
| - - |
3016.60 rub |
yandex |
27.10.2008 |
| Oleg Astakhov |
1000 rub |
wire transfer |
28.10.2008 |
| VN |
2000 rub |
webmoney |
29.10.2008 |
| Anna Denisova |
300 rub |
wire transfer |
30.10.2008 |
| - - |
1700 rub |
wire transfer on personal account |
11.11.2008 |
| - - |
2000 rub |
wire transfer |
17.11.2008 |
| Andrey Stepanov |
$20 |
paypal |
23.11.2008 |
| MEDIACOM DI LODIGIANI PIERPAOLO GIO |
1993 euros |
wire transfer |
25.11.2008 |
| Valery Lesov |
5000 rub |
wire transfer |
03.12.2008 |
| Natalia |
5000 rub |
wire transfer on personal account |
06.12.2008 |
| Oksana Kasintseva |
2000 rub |
wire transfer |
16.12.2008 |
| Oksana Kasintseva |
2000 rub |
wire transfer |
30.12.2008 |
| Happy World Fund |
$3100 |
webmoney |
16.02.2009 |
| - - |
500 rub |
wire transfer |
13.04.2009 |
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