Hello!
I am the mother of Sultan Rahmanaliev, a little boy from Kyrgyzstan.
It was the boy's grandmother who chose such a name for him: she wanted him to be a healthy, strong and happy young man. But things went wrong: the little one got seriously sick. When we moved here from Kyrgyzstan we did not yet know anything. Our Sultan was absolutely healthy and never even had colds until he was 4. My husband and I wanted to find jobs because in our country the unemployment rate is too high, and we have to bring up two children. Our youngest son Erzhan is 2.
We wanted Sultan to go to a kindergarten. It all began with a plain cold, then he had complications and got to the intensive care unit of City Children's Hospital 2. You can imagine what I felt when a tumor was suspected. The doctors of the hospital suspected a malignant mediastinal tumor and helped us transfer Sultan to Professor Petrov Oncology Institute. It was there that the diagnosis was confirmed.
Until the very last moment I could not believe it. I was hoping (perhaps just deceiving myself) that it was a mistake, that it could not be true, because my boy had never got sick. I could not help thinking that it might be due to a climate change. But the terrible diagnosis was confirmed. The boy was feeling worse and worse. He could not breathe and had to get oxygen. He lost a lot of weigh too. Lots of drugs, always connected to an IV drip...
What surprised everyone is that Sultan was strong and brave, the bravest boy on earth. Never did he cry. The doctors do everything so that my son gets well, and most importantly, they do not let him die. At present my son is getting treatment at the oncology institute, but unfortunately the treatment has to be paid for because we are citizens of another country. We have to pay for the stay at hospital and the drugs too.
At first we were getting help from the hospice and just simple people, now it is the AdVita charity fund that is helping us. Now I know for sure that the people remained kind in spite of the hard times.
My husband was also doing all he could, but misfortune never comes alone. He got a trauma at work, namely a hip fracture. He is now staying at home. I cannot work because I am in hospital with Sultan all the time. A long and expensive treatment course is still in store for us.
There is a God, and there are people who help. They want our boy to live. I will never tell Sultan of his disease, let it remain a nightmare that is over. I know that my boy will get well. I believe in it. I am asking all people who will be moved by this letter to help us. My dearest dream is the same as the dream of all mothers in the world: my son's good health, his happy smile and the ring of his laughter.

Respectfully and gratefully,
Kutbubu Alyshevna Muratalieva,
mother of Sultan Rahmanaliev Contact phone:
+7 (952) 215-04-45

Medical report

Update as of February 13, 2009. Sultan completed the first two chemotherapy courses. He has started to eat and feels relatively well. The next course is scheduled for February 28th.

Update as of August 8, 2009. Dear friends! I apologize for not writing about Sultan for a long time. In February we were unable to get admitted to the hospital due to quarantine for chickenpox, and we started chemotherapy only after it was lifted. We completed several courses of chemotherapy and on July 31 we were allowed to leave the hospital for two weeks.
Sultan feels well. He runs around, laughs just like before, prior to his illness! The next hospitalization will start on August 19th, and it will be the last chemotherapy course under the protocol. I am deeply grateful to Sultan's doctors and supporters of AdVita fund for saving my son's life! God bless you!
Kutbubu, Sultan's mom

Update as of August 21, 2009. Sultan feels well. Today he underwent testing and it showed that he is in remission. Chemotherapy was not started yet, so Sultanchik is running around and playing. If al goes well, without complications, then at the end of September we will be allowed to go home.
Acel, Sultan's sister

Update as of October 2, 2009. Due to infectious complications, the last chemotherapy course was postponed and was administered only recently, at the end of September. On Monday, Sultan will start a course of radiation that will be followed by control testing. The boy feels well.

Update as of October 21, 2009. Sultan urgently needs help from blood donors, up to 10 people are required. His blood counts have plummeted. Sultan is fatigued, but feels relatively well.

Update as of December 7, 2009. Sultan was discharged and feels very well. He is very happy and active. Soon he will be allowed to leave the hospital for a month, and it may be his chance to go home to Kyrgyzstan where he has not been back for two years.
The air travel is very expensive, however, and without the help of supporters, Sultan's family will not be able to buy the tickets, even though his mother has a job as a cleaner. The roundtrip tickets will cost close to 36,000 rubles for the three of them. We will be very grateful for any help.

Update as of December 25, 2009. Sultan is taking Methotrexate and Purinethol, he is feeling fine and is eating well. Maintenance chemotherapy has started and we were discharged from hospital. Now we only have to go there for tests.

Update as of February 9, 2010. We were coming for blood tests once a week. The blood counts stayed good, so we were allowed to come for tests once a month. Sultan feels well. If everything goes just as well for a year, he will be taken off monitoring.
Sultan's aunt

Update as of July 3, 2010. Sultan is continuing maintenance therapy with Purinethol and he feels well. Based on results of planned tests, he is in remission.

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