16.03.2010 Violetta Moteva
needs help for testing and treatment of allergy. Her mom was laid off
and she is looking for a new job.
16.03.2010 We received invoices for NK-cell
separation system for Alesha Dolgopolov and
haploidentical transplantation for Akop Gulabyan.
They urgently need help with paying the bills.
14.03.2010 Masha Vartsan
started the 12th chemotherapy cycle. She feels relatively well, but as
usual during the cycle she does not want to eat much. After this chemotherapy
cycle, Masha will need to undergo MRI on March 24th, and on March
26th - PET imaging.
14.03.2010 Katya Stepanchuk
was sick and a cycle of chemotherapy had to be postponed for a week. She
now feels well and if her test results are good, she will start another
chemotherapy cycle.
14.03.2010 Masha Petrova
feels rather well, although she still has heightened temperature. She
feels stronger and gained some weight(10 kg). Her condition now allows
her to start radiation therapy.
14.03.2010 Anton Zaitsev
completed two-week long chemotherapy cycle and was allowed to go home.
He feels well and his blood counts are recovering already.
14.03.2010 Sherzodbek Sharipov
feels rather well. He is completing radiation therapy and there is only
one procedure left. Afterwards, he will have a lumbar puncture. Sherzod
will need to go for CT scan that is estimated to cost 13,600 rubles. He
is not taken off Vfend yet, and will also need to take Purinethol and 6MP
for a year. His family needs financial support.
14.03.2010 Sonia Morozova's
tests did not confirm aspergillosis and she was taken off Vfend. She is
continuing treatment of bacterial pneumonia and feeling better already.
14.03.2010 Anya Seryukova
completed all tests. She is in complete remission in regards to her primary
diagnosis. Anya and mom were already preparing to go home, but the night
before their flight Anya had severe seizures. She is now at the clinic under
the doctors' watch.
14.03.2010 Nastia Chipak's
hospitalization at Mariinsky hospital is scheduled for the next week, and
the surgery itself - for March 24.
14.03.2010 Masha Rozhdestvenskaya
is receiving maintenance therapy. She is in remission in regards to primary
diagnosis.
14.03.2010 Anya Andreeva
is still monitored as an outpatient. She is continuing immunosuppressive
therapy. Anya still needs Vfend. She also needs a wheelchair to go outside.
Please help!
14.03.2010 Unfortunately, donor's bone
marrow did not engraft. Danya Pavlov is
continuing therapy for cytomegalovirus
infection. Further treatment is under discussion.
14.03.2010 Sergei Scheblykin's
condition is worsening. He was transferred under intensive care doctors' watch.
14.03.2010 Dinara Samigullina
is recovering after transplantation and receiving immunosuppressive therapy.
She feels rather well.
14.03.2010 Nadia Zheleznaya
recovered after transplantation and was discharged for outpatient monitoring.
14.03.2010 Sasha Kurenkov's
transplantation took place on schedule. He is now under the watch of intensive
care specialists.
14.03.2010 Yan Korchenkov's
transplantation took place on schedule, on March 13.
14.03.2010 Tatiana Solomatina
recovered after surgery and she is monitored as an outpatient at BMT clinic.
She receives Fungizone IV and Noxafil.
Please help Tatyana with buying Noxafil, as a bottle of this drug that lasts
6 days costs 70,000 rubles.
14.03.2010 Roma Gronsky's
condition is stable and he has minimal intestinal GVHD. However, he still
needs Salofalk and enteral nutrition.
14.03.2010 Ilya Smirnov
completed all tests and the results show that he is doing well.
13.03.2010 Vanya Chemov's
surgery was successful. He feels well.
11.03.2010 Slava Chistyakov
underwent CT scan of his chest and MRI of his head. Based on CT scan results,
Slava has a new lesion in his right lung and needs Vfend therapy. He had a
surgery to remove gastrostomy and a port. Slava feels well and will be
allowed to go home.
11.03.2010 On March 11, Theater Center on Kolomenskaya
held Ballet Night and donated proceeds to benefit three of our patients:
Sasha Agapitov,
Dasha Shamanskaya and
Igor Verbitsky.
The ticket sales generated
15,000 euros for the donor search and delivery of transplants for
Sasha and Dasha, with the money raised by Russian Help Fund we no
longer need to raise more money for these children.
The cash box at the theater collected 56,050 rubles and $500, which will
be used to buy Vfend for Igor Verbitsky. We are sincerely grateful to
Theater Center on Kolomenskaya and Irina Moiseevna personally, as
well as ballet soloists from Mariinsky and Mikhailovksy theaters:
Denis and Anastasia Matvienko, Irma Nioradze, Irina Perren, Marat Shemiunov,
Maxim Zyuzin, Aleksey Timofeev, Elena Evseeva, Alexander Sergeev and Irina
Kosheleva, thanks to whom this event was made possible.
11.03.2010 Natalia Smolyar
needs urgent brain surgery that will cost 155,000 rubles. It will take
place at Burdenko Institute in Moscow.
10.03.2010 Olga Shmygleva
went for a consultation with several hematologists in Moscow who confirmed
the need for her to enroll in clinical trials. They also believe Olga is
in a very good condition and she can go without chemotherapy for at
least six months. Olga's documents were also sent for another
clinical trial.
10.03.2010 Husein Turaev
underwent another re-induction and feels well. The next re-induction was
scheduled for March 18th. For now, he needs to take 6MP in 1.5 times
normal dose because his leukocyte count is somewhat heightened.
10.03.2010 Grisha Bakhvalov
completed re-induction with complications. Despite his pre-treatment with
neuroprotectors, he still developed severe Vincristine-related neuropathy.
The boy was in much pain and was on painkillers around the clock.
The doctors decided to cancel second injection of Vincristine. Grisha
is now at home where he is finishing Dexamethasone therapy, but still
needs painkillers at night.
10.03.2010 Lisa Leushina
did not start re-induction due to low counts of protective blood cells.
In addition, Lisa has some neurological problems. Lisa was allowed to stay
at home for the holidays and on March 10th she will return to the hospital
where she will be examined by a neurologist. Lisa's family is now in
serious financial difficulties. Her father will be very grateful for help
with finding a job.
10.03.2010 AdVita Foundation initiated fund-raising
for the treatment of Sergei Ozerov.
08.03.2010 MRI scan results confirmed that
Vanya Chernozub is in remission.
However, he was diagnosed with hearing loss and herpes infection
in his eye.
07.03.2010 Vladimir Efimov
is in Slantsy where he is taking Dasatinib in pills. His blood counts
improved somewhat. He has received barely any donations for
the donor search.
07.03.2010 Akop Gulabyan
needs to pay for the special equipment for cleaning of the donor's transplant.
We expect the cost of the cylinders to be over 500,000 rubles.
07.03.2010 Vladimir Sivukha's
condition is good. His blood counts improved already. However, Vladimir still
has problems with lungs, as he needs to treat aspergillosis and needs
Vfend for that.
07.03.2010 Sergei Samorodov's
condition worsened and he is seriously fatigued. CT scan showed negative
progression. If earlier one of his lungs was affected partially, now both
lungs are involved. Due to Vfend therapy, Sergei had some side effects and
he rarely gets up now. He may need to be switched from Vfend to Noxafil.
07.03.2010 Kostya Novitsky
is feeling well and is in a good mood. He is at home. CT scan of two zones
is scheduled for the end of March.
07.03.2010 Sherzodbek Sharipov
feels well. He started radiation therapy in parallel with Cytosar therapy.
07.03.2010 Sasha Zipenkov's
condition improved somewhat, despite a cold. He is now taking Anaferon.
07.03.2010 Artem Kalnitsky
was sent home to recover after he last cycle of chemotherapy and he feels
rather well. In a week, he will undergo ultrasound test and based on
the results, control CT scan may or may not be needed.
07.03.2010 Ilya Smirnov
was at the hospital for examination and consultation. The tests for
oncomarkers came back negative. Ilya feels well.
07.03.2010 Yulia Dikan
had another re-induction. The next hospitalization is planned for March 24th.
07.03.2010 Masha Kokshina is
recovering after another cycle of Atriance, which she has a very hard time
tolerating. Masha has no appetite and does not eat anything. She
feels unwell, but for now there are no alternatives to Atriance.
07.03.2010 Vanya Zatona is
at home and feels well. In the near future he has to travel to St. Petersburg
for examination.
07.03.2010 Nastia Chipak
underwent tests, and no contraindications to the installation of endoprosthesis
were found. The surgery is scheduled to take place at Mariinskaya hospital.
07.03.2010 Misha Nikitin is
continuing therapy under the protocol. In addition to the other medications,
he will also need to take calcium folinate.
07.03.2010 Although Ivan Nechaev is
still in intensive care, his condition is stable enough that soon he will
be transferred to the unit.
07.03.2010 Pavel Dolgachev is
still in intensive care unit. He needs Cellsept, Albumin and enteral nutrition,
Intestamine. Pavel lost a lot of weight and also suffers from pains
in his legs.
07.03.2010 Vika Smirnova
has no cancer cells in bone marrow based on the test results, and her stem
cells were harvested for autologous transplantation. She is now at home
and feels well. In the next few days Vika will be admitted to City
hospital No.31 for two cycles of chemotherapy, and afterwards she will
be transferred to R. Gorbacheva Pediatric Hematology and Transplantology
Institute for autologous bone marrow transplantation.
07.03.2010 Based on PET imaging results,
Stasik Chernobilsky still has areas of
tracer intake. Stasik is continuing treatment and had a five-day
course of therapy with Temodal. He is now feeling relatively well,
but has no appetite at all. Soon Stasik will be discharged home
and he will be coming to the hospital for tests. In 20 days he
will start another 5-day course of Temodal. These courses are
scheduled to be repeated for 7 months.
07.03.2010 Shedi Buneb
is at BMT clinic, as he needs to have his cells harvested for autologous
transplantation, but due to low blood counts it is not yet possible.
After a surgery on his leg, he needs care of a specialist to recover
lost function and such specialist is not on staff at Oncology
Research Institute.
07.03.2010 On March 4th
Serezha Orlov's IV line was taken off and he
was allowed to go home for the holidays. His blood counts are still low.
Next week he will have several tests: blood tests, cardiogram, ECHO
and others. At the end of the week he may finally be allowed to
stay at home.
07.03.2010 Dinara Samigullina
is in 37th day post-transplantation. She has a difficulty walking as
her legs ache. She also needs to be on a strict diet. Dina and her mother
live in a rented apartment, and twice a week they go to the clinic for tests.
07.03.2010 AdVita Foundation initiated fund-raising
for the treatment of Marina Kochemarova.
06.03.2010 Sasha Kislichnaya
needs to travel to Uniklinik in Aachen, Germany, for surgery and new
prosthesis. Sasha was billed 3,500 euros. Please help Sasha!
06.03.2010 Larisa Bodrilova
was allowed to stay at home during holidays where she will continue
Noxafil therapy. She tolerated Therapy with Amphotericin B well,
even in a higher dosage. The last CT scan showed improvement.
06.03.2010 Kirill Tutunnik's
parents have decided to take Kirill for a clinical trial with an experimental
drug at MD Anderson clinic in Orlando, Florida, based on recommendation
of Kirill's treating doctor. The cost of the trial is estimated at $81,000.
06.03.2010 AdVita Foundation initiated fund-raising
for the treatment of Vika Voeva and
Vladimir Efimov.
04.03.2010 Nastia Gordeeva
was tested, and everything is well. The next visit is scheduled for May.
03.03.2010 Roman Gronsky
feels better, but he still has GVHD symptoms, and the therapy with Salofalk
was continued. He still needs enteral nutrition with Intestamine
and Lipo Plus.
03.03.2010 Igor Verbitsky
needs to undergo examination at Phtisiology & Pulmonology Research Institute.
He was referred for scintigraphy. The doctors increased his Vfend dosage
to 600 mg a day. We are sincerely grateful to Happy World fund for joining
our efforts to raise money for Igor's treatment.
03.03.2010 Nadia Zheleznaya
was found to have an infection and was prescribed Amoxiclav. She feels rather
well, but lost her appetite and suffers from nausea. Nadia still needs Vfend.
03.03.2010 Galina Molodtsova
was transferred to intensive care unit. To deal with swelling, she needs two
bottles of Albumin a day.
03.03.2010 Tatiana Solomatina
is recovering after surgery. Her condition improved somewhat.
Unfortunately, she has pharyngitis and has difficulty speaking, but her
cough has gotten better. Tatiana is now at the clinic. Based on test
results, her blood counts are good and bone marrow is normal.
03.03.2010 Masha Petrova
had CT and PET scans that showed lesions accumulating contrast in mediastinum.
She was referred for radiation therapy at Oncology Research Institute.
03.03.2010 Nastia Konycheva
developed swellings and had some seizures. She is being monitored by the
intensive care specialists.
03.03.2010 Based on post-operative histologic study results,
Grisha Barchenko was diagnosed with secondary lymphoma.
It may have been provoked by re-activated Epstein-Barr virus. He is still in
remission in regards to leukemia. Grisha is now undergoing chemotherapy
at R. Gorbacheva Pediatric Hematology & Transplantology Institute.
Grisha receives Cancidas. His family's financial situation is still very
difficult. Please support Grisha's family.
03.03.2010 Denis Alenichkin
is is doing well. Based on planned test results, he has minimal GVHD and is
in remission for leukemia. It was decided to postpone photopheresis, as
the doctors will allow him to go home for two months. Denis is still
continuing therapy with Entocort and Diflucan.
03.03.2010 On March 4,
Yan Korchenkov will be hospitalized at BMT clinic
to start preparing for transplantation.
03.03.2010 Sergei Popov
is at the hospital under the doctors' watch. He feels well and his blood
counts are stable. Sergei is continuing long-term immunosuppressive
therapy, during which he needs to continue taking Vfend.
03.03.2010 Igor Zhuikov
is continuing photopheresis. He was referred for detailed examination of
kidneys due to fluid retention.
03.03.2010 Sasha Sheligan
came in for scheduled examination and is undergoing tests. He is still
taking Vfend.
03.03.2010 Sonia Morozova
is doing well and her remission was confirmed. Since she was previously ill
with aspergillosis, she was prescribed Vfend to prevent recurrence of
aspergillosis, at 400 mg a day.
03.03.2010 Danya Pavlov
was transferred to the room from intensive care unit. He is continuing
Neo-Cytotec therapy.
03.03.2010 Ilnur Yulaev's
intestinal GVHD re-activated and he was prescribed Salofalk.
03.03.2010 Albina Bastanova
completed main chemotherapy course and radiation therapy. Based on test
results, she is in complete remission. She already returned home and is now
undergoing maintenance therapy locally.
03.03.2010 Tanya Suchkova
completed the first cycle of chemotherapy under an
experimental protocol.
03.03.2010 Sveta Boldesova
completed a course of radiation therapy. Based on test results, she is
in remission. She returned home and will be monitored locally. We are
very grateful to everyone who helped Sveta!
03.03.2010 Anya Scherbenko's mom asked our
fund to take Anya's page off the website. The treatment has been
completed long time ago. Anya feels well, goes to the regular daycare
and they would like to forget about all the troubles they had been through.
We are very happy to hear such news and will fulfill Anya's mom's request.
We are grateful to all the doctors, nurses, supporters, blood donors
and volunteers who have helped Anya to become a normal healthy kid.
Thank you!
02.03.2010 Dasha Smetanina
underwent surgery, during which a tube was placed in her esophagus in
the narrow area. Dasha feels well.
01.03.2010 Svetlana Lukicheva
is recovering after chemotherapy. She received a bill for 151,965 rubles,
which needs to be paid off within 2 weeks.
28.02.2010 Yan Korchenkov's
transplantation is scheduled for March 15th. Within a week, we need to
raise 2,500 euros for delivery of transplant.
28.02.2010 Omari Arkania
was hospitalized with sinus infection. Now, after surgery, he
feels better.
28.02.2010 Olesya Chebakova
feels well. She and her mom went to sanatorium for a month.
28.02.2010 Karina Kosareva
feels well. Once a month she goes for tests at Children's hospital No.1.
She studies at home for now, but plans to return to school someday.
28.02.2010 It was decided to combine revisionary
and main surgeries for Serezha Bolshakov.
The operation will require pads for the prosthesis.
28.02.2010 Sasha Karimov
is being monitored at Hematology and Transfusiology Institute. He goes
for planned tests once every six months. He feels well and has a job.
28.02.2010 Grisha Barchenko
is undergoing chemotherapy. Under the new protocol, he will need to receive
four more cycles of chemotherapy, and then (after tests), possibly two more.
In addition, Grisha receives Cancidas. The family's financial
situation is still very difficult.
28.02.2010 Sherzodbek Sharipov
is feeling a little better and his temperature is normal already. He still
needs Vfend.
28.02.2010 Andrei Ivanov
was diagnosed with radiculoneuropathy and prescribed Berlithion 300 in
pills and Cerebrolysin in ampoules. The total cost of medications is
4,500 rubles. Andrei's mom is asking for help with buying medications.
28.02.2010 During the last month,
Olya Bogatova had pains due to stones in her ureters.
She had surgery to install shunts in ureters and she now feels better.
Olya was able to start another cycle of maintenance therapy.
She still has fungal infection in her lungs, and CT scan even showed
some worsening. Olya needs to continue Noxafil therapy: 1 bottle lasts
her 5 days. The search for the bone marrow donor is ongoing.
28.02.2010 Artem Bychin
came to the clinic for planned two week-long course of therapy. Based on
scintigraphy test results, he has positive dynamic, so he will continue
therapy under the same protocol until November 20th. Artem will still
come to the clinic once every three weeks for two days. He is continuing
to take Sandimmune Neoral in syrup.
28.02.2010 Nilufari Sharifbek's
platelet counts are finally rising. She feels well and is in a good mood,
but still wants to go home. Nilufari still has a large debt to the clinic
for her treatment.
28.02.2010 Mitya Murinov
underwent tests and he is doing well. Mitya feels well too.
28.02.2010 Anton Zaitsev
started another cycle of high-dosage chemotherapy with Ifosfamide.
He feels well.
28.02.2010 Ekaterina Stepanchuk
underwent a course of chemotherapy and already recovered. The doctors
allowed her to go home for a week. Afterwards, she will start the next cycle.
In about a month, Katya will need PET imaging that costs 16,000 rubles.
Katya is asking for help with paying for PET.
28.02.2010 Ira Kondratieva
feels well, but her father got seriously sick with lung cancer. He is
undergoing chemotherapy and cannot provide for Ira anymore. Ira's mom
disappeared without a trace back in early fall. Ira took an academic
leave from college and is trying to find a job. If someone could help
Ira with finding a job, we will be very grateful! Ira has a high school
diploma and experience in working as a cashier and a salesperson.
28.02.2010 Roma Rybkin
recovered after the re-induction and feels rather well, except for a
stuffy nose that requires a visit to the otolaryngologist.
Roma will need short monthly chemotherapy cycles (re-inductions)
for a long time.
28.02.2010 Sasha Zipenkov
will be hospitalized for an examination. He has serious health issues:
vomiting in the morning and temperature rises. He needs to undergo testing.
28.02.2010 Ksyusha Khomenya
is continuing radiation therapy. Ksyusha lives at home and comes to the
hospital for procedures and tests. She feels well.
28.02.2010 Serezha Orlov
is at home, but does not feel very well. He suffers from stomatitis
and high blood pressure. He takes Mildronate and Fungizone
to fight stomatitis.
28.02.2010 Vika Smirnova
feels well and has a good appetite. She gained a bit of weight.
27.02.2010 Hayal Ibaev's blood
counts dropped and he got fever. He received platelets transfusion and
antibiotics. Radiation therapy is postponed for now.
27.02.2010 Sima Kochetova
had PET imaging. The results are good.
27.02.2010 Oleg Soshin
feels much better. He is continuing the 2nd chemotherapy cycle that
was interrupted.
27.02.2010 The utrasound scan still shows lesions on
Andrei Malozemov's spleen, although CT scan does not
indicate presence of any pathologic areas. The nature of the lesions is
unclear. The doctors believe that these lesions, if they indeed exist,
are not related to Andrei's main diagnosis. He will need additional testing.
24.02.2010 Lena Gavrilyuk
underwent planned examination. The remission was confirmed and she feels
well. Lena continues taking Vfend and Glivec with Prograf to control
skin GVHD.
23.02.2010 Ira Nikonova
underwent tests that confirmed remission. Now Ira will need to come for
ultrasound test at Oncology Research Institute on March 9-10.
A week later, she will need to go for an x-ray, second ultrasound and
EKG. CT scan is scheduled for the beginning of April. If one of the
volunteers could bring Ira and her mom to St. Petersburg on March
9-10 or help with paying for the trip on a rental car, we will be
very grateful.
23.02.2010 Vadik Salamatov
underwent radiation therapy. His leukocyte count is low and he
has a runny nose.
23.02.2010 Alesha Potapov
underwent autologous transplantation on February 10th. He is currently
feeling rather well - has good appetite and is in a better mood.
22.02.2010 Ira Gavrisheva
is already at home. All the bills from the clinic were paid for.
Unfortunately, she is still fighting post-operative complications.
Irina is continuing therapy with antibiotics and other
medications. Her pacemaker is working well.
22.02.2010 Zhenya Ivanova
completed the first cycle of chemotherapy under an experimental protocol,
and there was a response! The second cycle will start on March 5th and
by then Zhenya needs to buy three more Velcade bottles, each of which
costs 40,000 rubles. Please help!
22.02.2010 Slava Chistyakov
is feeling a little better, as transaminase levels went down significantly.
He has appetite and can eat by himself. Slava is continuing maintenance
therapy in pills - 6MP, and he still needs therapy with Vfend, Heptral and
Depakine. His mom is asking for help with buying these medications.
22.02.2010 Marina Devyatkova
is being monitored locally. She still has chronic skin GVHD and stomatitis,
but she feels well.
22.02.2010 Dima Koba
feels well. He is in remission, based on results of tests he had in
November 2009. The next round of tests is scheduled for the
beginning of March.
21.02.2010 Artem Kalnitsky
completed another chemotherapy cycle and is now recovering. After the
next chemotherapy cycle, he is planned to go for CT scan of abdomen
and lungs. The cost of CT scan with contrast will exceed 10,000 rubles.
21.02.2010 Kostya Novitsky
is at home and feels well. His test results are good too. Kostya is being
home schooled. In March he is planned to go for CT scan of his spine
and head that will cost 7,000 - 10,000 rubles.
21.02.2010 Masha Vartsan
is recovering after another cycle of chemotherapy and feeling well.
By the next cycle, she needs to have anti-nausea drug, Zofran.
Once chemotherapy is over, she will need to have PET imaging
that costs 14,000 rubles.
21.02.2010 Larisa Bodrilova
was at home and had a course of therapy with Posaconazole (Noxafil).
On February 22, she will start another course of antimycotic therapy
with Amphotericin B.
21.02.2010 Ira Alekseeva
and her mom returned to St. Petersburg to continue therapy at City Hospital
No.31. The planned examination in Essen was scheduled for June.
Ira and her mom have enough money for the next trip. We are
enormously grateful to all Ira's supporters!
21.02.2010 Ilya Kirillov
completed the main course of treatment and lives in a rented apartment.
Once a week he goes for tests. A puncture was scheduled for Wednesday.
Kirill's mom needs a consultation from a family law attorney.
21.02.2010 Alena Azup
recovered after transplantation, and her blood counts increased. She
shows first signs of light form of skin GVHD. Her mom would be very
grateful for helping them buy Nutrizon Vanilla nutrition,
because this is the only type of food that Alena agrees to eat.
21.02.2010 Anya Andreeva
was discharged from the hospital. She lives in a rented apartment and
is being monitored as an outpatient. Her blood counts had finally
started to grow. For now, her potassium and protein are low, so he
receives immunoglobulins and albumin. Since Anya is still taking
Cyclosporine, she is tested twice a week. Anya still needs Vfend.
21.02.2010 Anton Yakushenkov
is at home. He feels rather well, despite heightened temperature that does
not go down. Anton studies at the 4th grade level as a home-schooled
student.
21.02.2010 On February 15th
Maxim Matytsin had his birthday. That day he had
a course of high-dose Methotrexate, while his photos were at the exhibit
"We live on this Earth" that was opened in Moscow by Grant
Life fund with participation of Advita fund.
20.02.2010 Nastia Konycheva
is having a very hard chemotherapy course which she has serious problems with.
20.02.2010 Dima Trifoev
is in intensive care. He has developed a serious muscular weakness. Dima is
being examined, consultation with a neurologist has been scheduled. Doctors
suspect intoxication resulting from chemotherapy.
20.02.2010 Sasha Golubovsky
had his mother's cells transplanted. Sasha is not feeling well: he is very
weak and had a nosebleed a while ago.
20.02.2010 Alexei Dolgopolov
is recovering after the autotransplantation. He is feeling as good as one
can with low blood counts. But he is already eating well and going for walks
every day. CT is normal, no changes. PET is scheduled for February 25.
20.02.2010 Shamil Gasymzade
achieved stabilization but there is no remission so far. He will now have his
cells harvested for autotransplantation and then go back to the Research
Institute of Oncology for two chemotherapy courses.
20.02.2010 Liza Belova
is in intensive care in a grave condition: a viral infection had lung
complications. Liza is getting oxygen and is being administered antibacterial,
antiviral and antifungal therapy plus Pentaglobin. Based on the matching
results Liza has potential donors in the registry.
20.02.2010 A donor was found for
Olga Voitenko
transplantation is scheduled for mid April. Before end of March we have
to pay the registry for the donor search and cell harvesting, and that is
13,000 euros (AdVita paid 2,000 euros from donations to all patients to
start the search), plus 2,500 euros for the transplant delivery have to
be raised yet. The situation is aggravated by the fact that there is no
Dacogen at hospital to help suppress blast growth, and Olga's condition
has gotten worse.
20.02.2010 Rossiisky Fond Pomoschi fund offered to
raise 10,000 euros needed for donor cell harvesting for
Sasha Agapitov
as well as the money needed to buy drugs required for the transplantation.
We must urgently raise 5,000 euros for the donor search and another 2,500
for the transplant delivery.
20.02.2010 Danya Golovkin
is continuing with the 3-months' immunotherapy course with Roferon and
Neostim. Please help us buy Neostim. Danya needs 3 vials per week, each
one costs 3,500 roubles.
20.02.2010 Podari Zhizn fund will be taking part
in raising the money needed to find a donor for Kirill Lukoyanov.
The donor has not been found yet.
20.02.2010 Valcyte for Ira Grushevskaya
has been bought and sent to Khabarovsk. The girl is feeling better.
20.02.2010 Sasha Sheligan
is coming to St. Petersburg for examinations.
20.02.2010 Sasha Novokreschenov
is soon to start a 3-months' immunotherapy course with Roferon and Neostim.
Please help us buy Neostim. Sasha needs 3 vials per week, each one costs
3,500 roubles.
20.02.2010 Kostya Makoveev
comes to hospital once a week for tests and is getting maintenance
therapy. Kostya's father returned to his job, and his mother is going
on with the rehabilitation course. Kostya still needs Vfend.
20.02.2010 Tatiana Solomatina
uwas hospitalized to the Research Institute of Phthisiopulmonology where
she has a surgery regarding aspergillosis loci in her lungs. Tatiana has
already been transferred from intensive care to a regular ward. She will
need intravenous Vfend for a long time. Please help us buy it!
20.02.2010 Ekaterina Stepanchuk
had PET which testified to loci in bone tissue. The doctors decided to
continue with high dose chemotherapy. Katya is going to have two more
high dose chemotherapy blocks which will be followed by PET again so that
the doctors could decide on further treatment.
20.02.2010 Gaik Ishkhanyan
is feeling fine and is regularly having blood counts done in his home town.
Examination in St. Petersburg has been postponed till spring. Gaik is now
having professional training (he is going to graduate from a law school soon)
and is going to start working on his diploma shortly.
20.02.2010 Iliya Ipkeev
came to St. Petersburg for an examination.
20.02.2010 Roma Rybkin
got sick with the flu right after the reinduction. For 3 days now Roma
has had a fever and bad stomatitis.
20.02.2010 On February 4
Igor Verbitsky
had a consultation with a surgeon, the decision on the surgery has been
postponed for a month. Then the boy will need an examination followed by CT.
After the examination he will need to consult a surgeon again. Igor still
needs vfend.
20.02.2010 Zhenya Kinonen
continues to get Intraglobin once every three months. Zhenya feels ok and
goes to school but the platelet count is still not very high, she has lots
of bruises on her body. We still have Intraglobin for the next injection.
20.02.2010 Yulia Ilyina's
platelet count is still somewhat low, the girl comes to hospital for tests
every once in a while. She is feeling ok.
20.02.2010 Omari Arkania
had CT done which showed that everything is clean in the lungs as well as
mediastinum and thymus. Omari is feeling fine and is in a good mood.
20.02.2010 Sveta Ivshina
had been admitted to the Bone Marrow Transplantation Clinic with serious
signs of skin GVH reaction. Treatment is being administered.
20.02.2010 A donor was found for
Sasha Obertyuk!
Podari Zhizn fund is ready to take part in raising the money for Sasha
since there is no time left to pay off the debt.
20.02.2010 Volodya Kurdyukov
still has GVH reaction which affected eye mucosa, the doctors are working
on immunosuppressive therapy for him. He also constantly needs Vfend, 400 mg
per day.
20.02.2010 Milana Kuzhenova
is done with the fourth course of Dacogen. According to the puncture her
condition is better.
There are very few potential donors for Milana in the international registry,
the search is conducted every week as the data are renewed, for now the
decision is to continue with Dacogen since the girl is responding to it
very well and to keep track of the situation with donors.
20.02.2010 Sherzodbek Sharipov
is done with the fifth and last chemotherapy course which is also the
hardest one, radiation therapy is next, but Sherzodbek has serious
complications: fungal sepsis. He urgently needs Vfend!
20.02.2010 Vika Smirnova
is being examined at the BMT Clinic. Next week she is scheduled for a puncture,
i.e. bone marrow sampling for analysis. The girl is feeling fine, her mood
and appetite are great.
20.02.2010 For Sergei Orlov
today is the last day of chemotherapy, then he will be examined. Sergei
is not feeling well due to drugs and hormones he is taking.
20.02.2010 Radiation therapy began for
Ksenia Khomenya,
she has already had three sessions. She is feeling ok. Radiation therapy
will last for 1-1.5 months.
20.02.2010 Ivan Nechaev
has fewer signs of GVH reaction but he is still in intensive care due to
a grave form of undernourishment. Ivan needs enteral and intravenous nutrition.
We need help with buying Intestamine, Modulen, Lipofundine, Omegaven.
20.02.2010 Roman Gronsky
has fewer signs of GVH reaction but he cannot eat on his own and needs
enteral and intravenous nutrition: Intestamine, Modulen, Lipofundine,
Omegaven. We also need help with buying Salofalk (in tablets and enemas).
20.02.2010 Ilnur Yulaev's
ucatheter has not been removed because his liver counts have risen dramatically.
It might be signs of a liver GVH reaction. Ilnur is still in hospital under
the doctors' control.
20.02.2010 Natasha Plakhina
is going to have immunotherapy with Roferon and Neostim administered shortly.
20.02.2010 Vadim Vinogradov
came to St. Petersburg for examinations, photopheresis is being considered
since Vadim still has a chronic skin GVH reaction.
19.02.2010 Rima Akhmetova
underwent bone marrow transplantation on December 21, 2009. Rima's test
results are now good and within norm, and she is already at home.
Rima will need to travel to St. Petersburg for planned control
tests soon.
17.02.2010 Hayal Ibaev
completed the 10th cycle of chemotherapy. He feels well. He now needs to
go for radiation therapy.
17.02.2010 Nikita Petrachkov
underwent the last examination in summer and all was well. Nikita
feels well and studies in the 2nd grade. In March, Nikita will have
a surgery due to hernia. The next round of tests is scheduled for May.
Nikita will need to go for ultrasound and MRI scan.
17.02.2010 Anton Zaitsev
an x-ray that showed that he does not have fluids in his lungs anymore,
but his lymph nodes are enlarged, and one of them is pressing on a
bronchus, which causes Anton to have a bad cough. On Friday, Anton is
planned to start 14-day chemotherapy with Ifosfamide.
17.02.2010 Serezha Bolshakov
undergoes testing every six months, and he is doing well in regards to
the main diagnosis. However, he feels pain in his leg, which may be due
to prosthesis fracture.
17.02.2010 Zhenya Vasilenko
will need prosthesis after completion of maintenance therapy. The orthopedic
doctors recommended bed rest with a daily hour of walking on crutches,
physical therapy, swimming pool, whole body massage and electrophoresis.
The family urgently needs financial support.
17.02.2010 Lisa Leushina
is undergoing maintenance therapy. The family is in a financial difficulty.
They only have one income earner, and their middle son Vanechka (he is 4)
has dental problems. All of his top teeth were taken out and he needs
artificial teeth installation that costs 5,000 rubles.
17.02.2010 Grisha Bakhvalov
comes to Children's hospital No.1 for tests and Methotrexate injection
once a week. His family is in a difficult financial situation.
Grisha's father has been actively looking for a job, but
unsuccessfully so far.
17.02.2010 Unfortunately, the transplant
did not engraft again and Danya Pavlov
received a new cell infusion. He is now at the intensive care
unit under the doctors' watch. Danya urgently needs NeoCytotect
to fight cytomegalovirus infection. Each bottle costs 12,000
rubles, and Danya needs several bottles before his response
to the therapy can be assessed.
17.02.2010 Gosha Makarenko
suffers from acute skin and mucous tissue of his eyes GVHD. He receives
immunosuppressive therapy and is now at the clinic under the doctors'
watch. CT scan showed presence of an infiltrate in his lungs and
Gosha was prescribed Vfend (200 mg a day).
Please help us with buying this medication!
17.02.2010 Dima Ivanov
is continuing to take Pegasys. He again has a side effect due to
therapy – heightened temperature.
16.02.2010 Today
Shamil Gasymzade was transferred to
R. Gorbacheva Pediatric Hematology and Transplantology
Institute for further treatment. After an examination,
Shamil is planned to go for autologous transplantation.
16.02.2010 Today
Katya Saifutdinova was discharged home.
She is doing well. After autologous transplantation she achieved
complete remission. She will be monitored by the hematologist
locally until her full recovery.
16.02.2010 Zhenya Vasilenko
broke his leg, right where he has necrosis of head of his hip joint
and needs to stay in St. Petersburg for some time.
Zhenya and his mom urgently need financial support!
15.02.2010 Sveta Schelokova
got re-instated after the academic leave and goes for studies at the
university. She feels well and in the good mood. Her test results are normal.
15.02.2010 Tamara Zavradashvili
was transferred from intensive care unit to intensive therapy room and her
great-grandmother is now with her at all times. Toma is still in coma,
but she breathes by herself. She needs wipes and adult diapers (size small 1).
15.02.2010 Sherzodbek Sharipov
is at the intensive care unit. He was receiving antibiotics and antifungal
drugs. Today he feels better.
15.02.2010 Sergei Goncharov
underwent CT scan that showed enlargement of retroperitoneal lymph nodes
and presence of fluid in his lungs. Sergei has fever and will probably
need new cycle of chemotherapy.
15.02.2010 Danya Vlasov
feels well. He plays and draws. Once a month Danya comes for examination
to Children's hospital No.1. All the test results are normal.
15.02.2010 Diana Bairamova
is at home and feels well. On February 18th she will go to the
clinic for examination.
15.02.2010 Arsen Arustamyan
is now sick with a cold. He will continue maintenance therapy
until September.
12.02.2010 The test results showed
the reason for which Oleg Soshin was
having gastrointestinal problems: he suffers from toxic
hepatitis due to treatment side effects. Oleg's second cycle
was temporarily put on hold. He was prescribed supporting therapy.
12.02.2010 AdVita Foundation initiated fund-raising
for the treatment of Elena Adamyants.
11.02.2010 Alla Sinkevich
completed planned examination. She is doing well in regards to her main
diagnosis. However, she still suffers from gastrointestinal
complications and constant pains in her arm.
Alla was recommended the following: Lyrica (14 pills that last 3.4
days and cost 500 rubles), Katadolon (10 pills cost 500 rubles).
Alla really needs help with buying medications!
10.02.2010 Sasha Pakhomi
recovered fully after the autologous transplantation. The doctors found
it possible to let him go home to be monitored locally.
10.02.2010 Gulyuzum Tuisina's
transplantation went on schedule. She feels well, expect for total lack
of appetite. In the next few days, the doctors plan to transfer her to
the outpatient monitoring.
10.02.2010 Ilnur Yulaev
has slight symptoms of skin GVHD, but he feels well and was discharged
to stay at the rented apartment. On February 11th his infraclavicular
catheter will be removed. Ilnur was taken off suppressive therapy,
so at this time he only receives antibiotics and Mycosyst.
10.02.2010 After two courses of therapy
under VIDE protocol, Tanya Suchkova achieved
partial remission. In the next few days, she will start another
cycle of chemotherapy.
10.02.2010 Sasha Obertyuk
feels well. On February 9th, he started a second course under FLAG protocol.
10.02.2010 Alesha Dolgopolov
is recovering after autologous transplantation. In the next few days,
he will undergo CT scan (for free) and PET on two zones (it will
cost 10,000 rubles).
10.02.2010 Anton Koltunov
was diagnosed with aspergillosis. He needs 400 mg of Vfend a day.
10.02.2010 Nadia Zheleznaya
feels better and she is no longer nauseous. Unfortunately, she was diagnosed
with aspergillosis and needs 400 mg of Vfend a day.
10.02.2010 Kolya German
went for a review by Disability panel and received disability status
until he is 18 years old. Kolya needs Depakine chrono, which costs
3,000 rubles a month.
10.02.2010 Nastia Agapitova
underwent PET imaging. She is stable.
10.02.2010 AdVita Foundation initiated fund-raising
for the treatment of Oleg Soshin.
09.02.2010 Masha Petrova
needs to go for CT and PET imaging on February 23 and February 25, for the
total cost of 26,080 rubles. Masha's condition since worsened: she developed
constant cough, runs temperature all the time, and her blood counts are
not normal.
09.02.2010 Nilufari Sharifbek
underwent tests (U/S and CT) and all is well. She still has low platelets,
but Nilufari really wants to go home. The family friends promised to come
to St. Petersburg and take her home, where she will be cared for by her
aunt.
09.02.2010 Serezha Kazarezov's
condition stabilized and he feels relatively well. However, he is bothered
by aseptic necrosis of joint head.
09.02.2010 Dasha Smetanina
was transferred to surgical unit of Children's Regional hospital. She
was diagnosed with a crack in esophagus wall and prescribed treatment.
09.02.2010 Anya Golubyatnikova
is at home. She is recovering after a round of chemotherapy and will soon undergo
the next cycle of experimental therapy at Oncology Research Institute in Pesochny.
09.02.2010 Denis Trufanov
is planned to undergo immunotherapy with Roferon and Neostim.
09.02.2010 Ivan Nechaev
is still in intensive care with stage IV GVHD, but he is now stable. Ivan
urgently needs Albumin and enteral nutrition Intestamine.
09.02.2010 Based on examination by otolaryngologist,
Pavel Toptalo retains sounds transmission in one of
his ears, but not in the other. He was also prescribed Vfend again due
to suspected aspergillosis.
09.02.2010 Nastia Dominikova
was diagnosed with a relapse. She started chemotherapy under FLAG protocol.
09.02.2010 Sultan Rakhmanaliev
will now come for tests once a month. Sultan feels well and has
good blood counts.
09.02.2010 Oleg Soshin
prescribed NutriZone, nutrition for feeding tube, 0.5 l (3 bags at 107 rubles),
and Kabiven Central, 1.5 l – around the clock, intravenously (7 bags at
1,740 rubles each). The tests to determine the reasons for intestinal
dysfunction are ongoing.
09.02.2010 Egor Patsera
is on maintenance chemotherapy. His blood counts are staying good and
he feels well.
09.02.2010 Sasha Golubovsky
had complete engrafting of donor's transplant, but there are not enough
cells. This causes low blood counts. Sasha is still at the hospital.
09.02.2010 Zhora Smolyar
feels well. He is asking to help his mother who was diagnosed with a
brain tumor.
09.02.2010 AdVita Foundation initiated fund-raising
for the treatment of Maria Veselova.
08.02.2010 Based on PET imaging results,
Slava Zhikharenko has small progression of
his disease. He was recommended BIM chemotherapy followed by donor's
lymphocyte infusion.
08.02.2010 Sasha Zhukov
feels well. He studies and also draws. Sasha's grandmother with whom
Sasha lives now suffers from high blood pressure.
08.02.2010 Masha Petrova
had CT scan that showed no changes in the lesions. Masha needs to go
for PET imaging. She does not feel very well: has low blood counts and
constantly runs febrile temperature.
08.02.2010 Vlas Ekster
recently completed testing at hospital No.31. He is doing well.
The next round of tests is scheduled in four months. Vlas feels
well and enjoys studying.
08.02.2010 Zhenya Vasilenko
and his mom will come to St. Petersburg on February 10th. His mom is very
grateful to St. Petersburg's Parents Club for raising money for the fuel
surcharge (6,000 rubles) and help with buying medications.
08.02.2010 Maxim Dobrynsky
is continuing maintenance therapy and once a month he comes for re-inductions.
Maxim already completed 8 re-inductions out of 18 planned. He feels well and
is being home schooled. Maxim needs Depakine enteric.
08.02.2010 Lena Smelova's
maintenance therapy was finished in fall of 2009. Lena with her sister Vika
goes to preschool, to the 24-hour daycare, because their mom works shifts.
The girls stay at daycare for two days and at home for the other two.
The family is still in a very difficult financial situation. They need
clothes and shoes for the girls.
08.02.2010 Maintenance therapy for
Nazar Nesterov was planned to last until
April 5, 2010. Once every two weeks he comes for testing to the clinic.
He takes 6MP pills and Methotrexate.
06.02.2010 AdVita Foundation initiated fund-raising
for the treatment of Larisa Bodrilova.
05.02.2010 After the consultation with the
specialists of Pediatric Hematology and Transplantology Institute of
State Medical University, Vitaly Bukatiki
was switched from Dasatinib to Nilotinib (Tasigna) that costs
200,000 a package. Tasigna affects different types of mutations
than Dasatinib and it gives us a chance to fix the genetic mutations
that Vitaly currently has.
05.02.2010 Serezha Orlov
is now at home and he feels well. In the next few days, he will undergo
CT scan. Please help Serezha with paying for the test (7,000 rubles).
05.02.2010 Dima Trifoev
and his mom returned to the hospital today. He has low blood counts and
fatigue. Dima lies down and does not feel very well.
He cannot study for now.
05.02.2010 Tamara Zavradashvili's
condition has not changed – she is still in a coma.
05.02.2010 Sherzodbek Sharipov's
blood counts are low. He feels unwell and weak and has no appetite.
He does not leave the room and sleeps most of the time.
05.02.2010 Vika Smirnova
is at home. She feels well and is in a happy mood. On Monday she will
be hospitalized at the day unit of Gorbacheva center. Then she will
undergo stem cell collection for the autologous bone marrow transplant.
05.02.2010 The ultrasound showed that
Andrei Malozemov's splenic lesions have shrunk.
He will continue therapy with antibiotics.
04.02.2010 Ivan Nechaev
is at the intensive care unit due to worsening of intestinal GVHD.
He was put on enteral nutrition, Intestamine, which has to be purchased.
04.02.2010 Alexei Cherniy
underwent testing and he is doing well. Based on puncture results,
donor's bone marrow engrafted fully.
04.02.2010 Due to hormonal therapy,
Serezha Popov developed steroid diabetes.
He is at the hospital where he receives insulin.
He also still needs Vfend.
04.02.2010 Alena Azup
underwent transplantation from her father. She feels well,
except for mucositis.
04.02.2010 Ira Grushevskaya
was hospitalized at a hospital in Khabarovsk due to low platelet count and
high temperature. She receives antibiotics and urgently needs Valcyte!
04.02.2010 Dasha Smetanina
was hospitalized at Oncology Research Institute. Further treatment will be
decided upon after control tests – CT scan and a puncture.
04.02.2010 Hayal Ibaev
completed 9th chemotherapy cycle, after which his blood counts dropped.
For a long time, the counts stayed low and he had fever. Now Hayal is
more or less stable. He needs to finish the 10th cycle and then go
for radiation therapy.
04.02.2010 Olya Ilyuncheva
completed a course of radiation therapy. Based on control test results,
she will get donor's lymphocyte infusions from her sister once a month
to stmulate GVHD and prevent possible relapse.
04.02.2010 Vika Polukhina
underwent testing in Murmansk. Vika will go for regular testing locally.
Vika feels well. She is studying at home and quickly catching up with
the school program. She is in her last high school year and needs
to prepare for the final tests. The surgery will probably take place
after the exams.
03.02.2010 Andrei Ivanov
had the last reinduction. Andrei has grave hypoplasia and needs blood
transfusions.
03.02.2010 Vladik Murlin's
maintenance therapy is going to be over in a couple of days.
03.02.2010 Misha Markov
had a biochemical blood assay and based on the results he must take
hepatoprotectors for a long time. Misha is studying at home.
03.02.2010 Tima Yamin
has had an examination, everything is fine.
03.02.2010 German Kuzmin
is feeling fine, he is getting ambulatory treatment. The boy still
needs Pulmicort.
03.02.2010 Sveta Dedova
was prescribed Ampholip. Sveta is now in intensive care on ALV with low
leukocyte counts and a serious mycotic lesion. She needs donor
blood of group A Rh+.
03.02.2010 Dima Sobin
is feeling ok and has been transferred to the day patient facility.
03.02.2010 Vladimir Maslennikov
is now going through a chemotherapy course at the Almazov center and is feeling
ok. Autotransplantation has been postponed.
03.02.2010 Roma Gronsky's
condition has become stable, the bleeding has stopped but there remain
signs of a GVH reaction. Roman has become very weak since he is only
getting enteral nutrition. We need help with buying Intestamine.
03.02.2010 Alexei Dolgopolov
had an autotransplantation on January 20. He is now is cytopenia and is
not feeling well.
03.02.2010 Sasha Obertyuk
achieved remission after the first FLAG chemotherapy course. He must now
repeat the FLAG course for which he needs Fludara (2 bottles).
Please help buy it.
03.02.2010 Dmitry Safonov
is still in intensive care, he's on ALV. His condition is extremely grave,
he has bad edema and a grave intestinal GVH reaction. Dmitri constantly
needs Albumin, 2 bottles per day. One bottle costs around 2,500 roubles.
03.02.2010 Kostya Novitsky
completed treatment under his protocol. He is now at home and comes to the
hospital for tests. He feels well and is in a great mood.
The next round of tests is scheduled for March.
03.02.2010 Ludmila Krasikova
finished a course of Dacogen and will start the second one in a week. Please
help Lyudmila with buying Mycosyst.
03.02.2010 Slava Chistyakov
has positive dynamic and much fewer lesions. He is now at home. Once a week
he is visited by an osteopathic specialist and massage therapist.
Slava still needs therapy with Valcyte, Vfend, Heptral (pills), and Depakine
chronosphere (750 mg). His mom is asking for help with buying them. Slava
has gastrostomy, so he needs enteral nutrition, such as Nutrizone energy or
Nutrizone with fiber. He is running out of nutrition and needs help with
buying it.
03.02.2010 Tatiana Solomatina
needs to undergo transplantation, but at first she needs to get therapy
for aspergillosis with intravenous Vfend (300 mg twice a day). Tatiana
urgently needs Vfend - please help!
03.02.2010 Ekaterina Stepanchuk
was diagnosed with lymphogranulomatosis (stage 4 with bone metastases). She
started high-dosage chemotherapy. Ekaterina underwent two cycles of chemotherapy
and fully recovered. She now feels well. Ekaterina needs to undergo PET
imaging. It was scheduled for February 9 and will cost 16,000 rubles. Please
help with paying for the test.
03.02.2010 On February 1 Olya Malkova
started the first re-induction. She takes Dexamethasone and Vincristine. During
the break between the Vincristine injections, she was allowed to go home.
03.02.2010 Anton Yakushenkov
was prescribed Cellcept as immunosuppressive therapy. It will be needed
for a long time.
03.02.2010 AdVita Foundation initiated fund-raising
for the treatment of Ira Alexeeva
and Maxim Matytsin.
03.02.2010 Marina Lavrentieva
completed treatment. She will now look for a job and take her older daughter
to a doctor.
03.02.2010 Sasha Zipenkov
underwent planned tests and he has no areas accumulating contrast.
For the first time in two long years of traveling to Essen for
treatment and control, the doctors lengthened the time between
the control tests to three months.
03.02.2010 Svetlana Lukicheva
completed the second cycle of chemotherapy. She is now recovering.
Svetlana is at the hospital where she takes Vfend. Her son has to
purchase platelet mass for transfusions. Svetlana still needs
help with paying for the treatment.
02.02.2010 Diana Ibragimova
needs Cancidas again, for the total cost of 225,000 rubles.
02.02.2010 Last week blood donors from Kronshtadt
visited hospital No.31. These young people continue donating blood for
our kids and bring them presents. This time, Elena Grigorieva and
Svetlana Nikolaenko, as well as children and parents of elementary
school #427, collected art sets, paints and toys. Pictures
01.02.2010 Ira Sukhova
came for scheduled testing. Based on CT scan, there are no changes.
After getting sick with tonsillitis, Ira is bothered with leg pains.
She was referred for a consultation with an immunologist and a
rheumatologist. The consultations will not be covered by insurance,
and Irisha also needs a new corset that costs 7,000 rubles.
Ira's family is still in a difficult financial situation. Please help!
01.02.2010 Danya Pavlov
had second transplantation and is now recovering. At first he felt relatively
well, but his condition somewhat worsened afterwards. His leukocyte count
went down and he lost a lot of weight. The donor's bone marrow is being
stimulated by Neupogen.
01.02.2010 Ilya Kirillov
had a consultation with endocrinologist, and had CT scan of adrenal glands
scheduled for February 18th to better diagnose the reason for the
malfunctioning of endocrine system. Ilya does not feel very well.
He has a hard time recovering after chemotherapy and can barely walk.
01.02.2010 Ira Nikonova's
histology results weren't very good. There are live tumor cells.
On February 16th Ira has to come to the clinic and based on the
results of tests further treatment will be determined.
01.02.2010 Diana Vashchenko
has a new tumor. She is planned to be hospitalized on Wednesday.
01.02.2010 Maxim Bazulin
underwent examination. All is well. The next examination is scheduled
for March 2.
01.02.2010 Vika Alexandrova
did not have enough bone marrow collected. On February 3rd she is planned to
be admitted to hospital No.31 for a course for Cyclophosphane therapy,
followed by stem cell collection.
31.01.2010 Vitaly Bukatik
is at the hospital. He suffered from hemorrhagic syndrome, spontaneous
bleeding in the frontal lobe of his brain with seizures, hematomas and
splenic infarction, and worsening of pneumonia in both lungs. He is not
producing any platelets, and lives only on blood transfusions.
The blasts are also growing - they are now at 25-35%, and their
increase is restrained by Dasatinib only. Transplantation remains
an open question. Vitaly only has enough Dasatinib for two weeks.
31.01.2010 Matvei Baburov
was purchased hearing aids. He needs help with paying for hearing therapist's
visits. Matvei's family is still in a difficult financial situation.
31.01.2010 Vanya Mamai is
being monitored at State Medical University. Once a month he goes for
blood tests, and once a quarter has a puncture.
31.01.2010 Vika Fedorina
will receive maintenance therapy until June 2010. She is doing well.
Once every two weeks she comes to the clinic for tests.
31.01.2010 Dasha Grigorieva
completed mintenance therapy in October 2009. Dasha feels well and studies
at school under an individual plan.
31.01.2010 Anya Ryaboshapka
looks and feels well. Once a month she comes to the hospital
for control tests.
31.01.2010 Violetta Matveeva
was discharged for maintenance therapy, which is scheduled to last until
May 2011. Every Monday she travels with her mom from Kronshtadt for
tests and therapy. The family is in a difficult financial situation,
and Violetta's mom will be grateful for any help.
31.01.2010 Karina Vasilieva
is well. She got over the cold and goes to daycare. Once every three months
she comes to the clinic for tests. She still has heightened
titers of CMV and EBV.
31.01.2010 Lera Stepanova
is undergoing maintenance therapy. She comes to the clinic once every two
weeks. Lera feels well.
31.01.2010 Until September
Serezha Svalyavin will receive maintenance
therapy and re-induction once every 6 weeks (i.e. short-term
hospitalization for maintenance therapy). Since his father will
be without work until March, he cannot pay for taxi rides from
Rybatsky and back anymore. The family is in a very difficult
financial situation and needs help for paying for taxis or someone
to take them to the hospital.
30.01.2010 Vanya Chernozub
received the first part of the second cycle of maintenance therapy.
He will have an injection of Vincristine on February 2. Vanya feels
well, his test results are good and his hair is growing back.
The treatment requires 6,000 euros more to be completed.
29.01.2010 The fundraising for
Irina Gavrisheva is now closed.
We are enormously grateful to everyone who has helped!
29.01.2010 Based on results of PET and CT,
Kirill Belyaev does not have areas
accumulating contrast.
29.01.2010 Lisa Belova
had puncture that showed blasts in her bone marrow. She will be
hospitalized at Children's hospital No.1 on Sunday.
29.01.2010 Danya Patent
finished maintenance therapy. He feels well and goes to a daycare.
29.01.2010 Natasha Myasnikova
completed maintenance therapy. Based on control puncture results, she
is confirmed to be in complete remission.
29.01.2010 Anton Yakushenkov's
temperature went down and he started eating better. The test results showed
that he has a fungal infection and he was prescribed Mycosyst.
29.01.2010 Milana Kuzhenova
is at the hospital where she is undergoing therapy with Dacogen.
She feels well.
29.01.2010 Galina Molodtsova
underwent transplantation. She is now in intensive care unit with
severe swelling. She urgently needs Albumin.
29.01.2010 Natasha Plakhina
recovered after chemotherapy. She is planned to receive donor's
lymphocyte infusion.
29.01.2010 Sveta Dedova
is in deep cytopenia and has fever. On Wednesday she will have a consultation
with Professor Klimko from Mycology Institute.
29.01.2010 Anya Seryukova's
doses of hormones are being gradually reduced. For the first time during
treatment, it did not lead to skin GVHD. Anya is at home and feels well.
29.01.2010 Nastia Konycheva
urgently needs to start chemotherapy cycle with Temodal and Dasatinib, but
there is no money to buy Dasatinib.
29.01.2010 Yulia Dikan's
condition had stabilized after she had inflammation of pancreas.
On January 28th she had the last Cytosar injection.
Today her test results are good.
29.01.2010 Hayal Ibaev
completed the 9th cycle of chemotherapy. He now needs to finish
the last, 10th, cycle. Then he will go for radiation therapy.
29.01.2010 Masha Kokshina
was hospitalized at State Medical University for Atriance injection.
29.01.2010 Ksyusha Borisik
underwent planned tests. She is in remission in regards to main illness;
however, she has issues with endocrine system and osteoporosis.
She is now undergoing additional tests.
28.01.2010 Dasha Kuznetsova
recovered after transplantation and was transferred to outpatient monitoring.
She began showing first signs of skin GVHD.
28.01.2010 Anya Andreeva
was urgently hospitalized due to fever. She is now stable, has normal
temperature, receives antibiotics and feels well.
28.01.2010 Serezha Popov
feels well. He was transferred to outpatient monitoring.
During testing, he was diagnosed with aspergillosis, so he now
needs Vfend therapy (400 mg daily).
28.01.2010 Alena Azup
began pre-transplantation chemotherapy. She does not tolerate it well.
28.01.2010 Pavel Dolgachev
was scheduled for second transplantation for February 11.
28.01.2010 Olya Bogatova
started a scheduled cycle of maintenance therapy. On January 27th she had
a lumbar puncture and bone marrow puncture. Due to Dexamethasone therapy,
her blood sugar rose and she was assigned a sugar-restrictive diet.
She also wants to learn to play a guitar and would be very happy if
someone could give her the instrument. Olya's grandmother was hospitalized
due to hypertonic crisis and Olya is looking after by her mother.
28.01.2010 Sasha Tsoi
maintenance therapy will last until May. He comes to the clinic for
tests twice a month. He feels well and is in a good mood.
28.01.2010 Grisha Bakhvalov
was discharged for maintenance therapy. Since Grisha had some neurological
complications after chemotherapy, he undergoes special therapy prior
to re-inductions, so his family still needs financial support with
buying medications.
28.01.2010 Lisa Leushina
was discharged for maintenance therapy. Her family needs help of a volunteer
with driving them to the hospital, or financial support with paying for
taxis.
28.01.2010 Autologous transplantation was successful.
Katya Saifutdinova had already recovered and she
feels well.
27.01.2010 Grisha Barchenko
was operated due to peritonitis. He still has fever, although he tested negative
for fungal and other infections. Grisha's family is in a difficult financial
situation. They need help with paying for living expenses, such as food and
current medications.
27.01.2010 Igor Zhuikov
started a course of photopheresis. After the first two procedures, he has
some improvement. Igor still takes Vfend at 600 mg a day, as well as many
medications to improve liver and kidney function. His family needs financial
support.
27.01.2010 Sasha Trevoga
arrived for tests. Based on the puncture results, he has 10% of blasts in his
blood. The doctors are discussing further treatment. Thanks to Noxafil therapy,
he has much improvement of zygomycosis, so the surgery is not considered
necessary at this time. Sasha still needs Noxafil, as one bottle of this
drug lasts him 6 days and costs 80,000 rubles.
27.01.2010 Galina Alieva
was at the clinic for tests. She was prescribed one more course of Velcade,
which she is receiving now at her place of residence. She feels well.
27.01.2010 Gosha Makarenko
was discharged for outpatient monitoring.
27.01.2010 Pasha Toptalo
feels better. He was transferred to the room from intensive care unit.
27.01.2010 Nastia Chipak
came in for tests. Unfortunately, due to necrosis of hip joints, she can
barely walk and suffers from severe pain.
27.01.2010 Gaik Ishkhanyan
is continuing his studies, taking tests and planning to come for examination
to the clinic.
27.01.2010 Fortunately, Sasha Kurenkov's
sister matched as a donor, so he will not need to search for an unrelated donor.
Sasha was hospitalized at R. Gorbacheva Pediatric Hematology and Transplantology
Institute.
27.01.2010 AdVita Foundation initiated fund-raising
for the treatment of Dasha Shamanskaya.
26.01.2010 Lisa Kudasova
was examined. The tests showed double fold of the liver. She was prescribed
a course of Essenciale. Lisa is monitored by a neurologist after the
tests showed her brain supply is malfunctioning. She was prescribed
therapy with Hypoxen. At the end of November, Lisa's prosthesis was
corrected in Moscow.
26.01.2010 Vasya Semenov
was examined at the Cardiology unit of Pediatric Academy. Nothing serious
was discovered. Vasya feels well and was discharged home already.
26.01.2010 Toma Zavradashvili
underwent surgery, during which part of her tumor was removed. Toma's
condition is still critical: she is in coma and on artificial
lung ventilation.
25.01.2010 Olesya Boronina
was hospitalized due to worsening of chronic pyelonephritis, but today
she was discharged form the hospital. She will be on maintenance therapy
until June.
25.01.2010 Donor search and delivery of transplant for
Yuliana Rozhkova were paid for in full. We are very
grateful to Happy World fund!
25.01.2010 Serezha Goncharov
is undergoing treatment due to an infection. He is in leucopenia. CT scan
results show progression of his disease. As soon as his leukocyte counts rise,
he will continue treatment.
25.01.2010 Denis Trufanov
has blasts growth again. He underwent chemotherapy under FLAG protocol.
Denis is now at the clinic where he is recovering after the chemotherapy.
25.01.2010 It has been 11 days after
Nadya Zheleznaya's transplantation. She is now
in cytopenia, but feels reasonably well.
25.01.2010 Dmitry Safonov
is at the intensive care unit due to severe intestinal GVHD.
25.01.2010 Volodya Kurdyukov's
cystitis stabilized, but he developed symptoms of GVHD of mucous tissues in
his mouth and eyes.
25.01.2010 Unfortunately, donor's
bone marrow did not engraft, so Svetlana Dedova
is being considered for second transplantation from her father.
She needs two columns for cleaning of the donor's transplant.
The total price is 547680 rubles.
25.01.2010 Svetlana Lukicheva
started second cycle of chemotherapy. Her family is in a serious
financial difficulty.
24.01.2010 Serezha Kalmykov
has not been able to receive Gleevec for free, and the supply of the drug
that he received at BMT clinic will run out in a week.
24.01.2010 Denis Alenichkin
and his mom came to St. Petersburg for tests and treatment of chronic skin
GVHD with photopheresis. Denis feels well.
24.01.2010 Seva Korolev
completed main course of treatment under the protocol. He was referred
to a local clinic at his place of residence to undergo maintenance
therapy.
24.01.2010 Serezha Vasiliev
was diagnosed with aspergillosis. He was prescribed Vfend at 400 mg a day.
23.01.2010 Umid Pulatov
with his mom and sister flew back home. Umid is taking medications
according to the protocol offered by his treating doctor.
23.01.2010 Anya Kramarenko
finished maintenance therapy, and she will now come to the hospital
every six months. The next examination is scheduled for the end of April.
She feels well.
22.01.2010 Arsen Takaev
underwent autologous transplantation and recovered successfully.
He needs to go for series of tests at Petrov Oncology Institute
followed by a course of immunotherapy with Interleukin.
22.01.2010 Nastia Konycheva
was hospitalized at R. Gorbacheva clinic. Nastia needs Sprycel (Dasatinib).
A monthly course of therapy requires two packages, with each of
them costing 200,000 rubles.
22.01.2010 Tanya Suchkova
is undergoing chemotherapy under VIDE protocol. She feels rather well
and is not nauseous anymore.
22.01.2010 Lisa Belova
completed a course of rehabilitation therapy at the specialized clinic
in Kolpino and she will return with her father home to Ulyanovsk.
Lisa feels well and she is in remission.
22.01.2010 Dima Sobin's
transplantation took place on schedule. However, Dima now suffers
from GVHD in kidneys (hemorrhagic cystitis). He needs
Intraglobin and Albumin.
22.01.2010 Kostya Lee
came for control tests. He is doing well.
22.01.2010 Dasha Chernova
is at home and feels well. She goes to school and undergoes regular
testing.
22.01.2010 Andryusha Malozemov
had an ultrasound of abdominal organs that showed lesions in his spleen.
The doctors believe that they are due to infection and have no relation
to Andrei's main diagnosis. He was prescribed a course of two antibiotics
for 20 days.
22.01.2010 Dasha Smetanina
was discharged from Children's hospital No.1.
22.01.2010 AdVita Foundation initiated fund-raising
for the treatment of Svetlana Lukicheva.
21.01.2010 Olesya Chebakova's
port was removed and she is already at home.
21.01.2010 Ilya Smirnov
completed planned tests and he is doing well.
21.01.2010 Based on PET results,
Masha Kokshina has a lesion accumulating
contrast. She is planned for hospitalization at BMT clinic for a
course of therapy with Atriance.
21.01.2010 Kirill Ivanov's
condition stabilized somewhat after injections of Contrical.
21.01.2010 Anya Andreeva
recovered after transplantation and was discharged to stay at the
rented apartment.
21.01.2010 Masha Rozhdestvenskaya
started maintenance therapy. She feels well and is monitored as an outpatient.
Masha would be very happy to get a set of Little Doctor tools.
21.01.2010 AdVita Foundation initiated fund-raising
for the treatment of Nadya Zheleznaya.
20.01.2010 Andrei Golovin
had PET imaging of whole body. The test showed he has no tumor cells in
his body.
20.01.2010 Roman Gronsky
suffers from stage IV GVHD with internal bleeding. He receives Tranexam
to control bleeding and medications, inhibiting GVHD.
20.01.2010 Dasha Kuznetsova
is in the 10th day after haploidentical transplantation from her mother.
She is in cytopenia, but feeling well, except for a small rash.
20.01.2010 Kostya Makoveev
feels well. He is on maintenance therapy, and receives Ampholip and Vfend
to treat aspergillosis. Kostya's parents were discharged from the hospital
and undergo a rehabilitation course after a traffic accident.
20.01.2010 Tanya Suchkova
is recovering after the 2nd cycle of chemotherapy.
She was prescribed Vfend.
20.01.2010 AdVita Foundation initiated fund-raising
for the treatment of Sasha Chernysh.
15.01.2010 Ilnur Yulaev
is in the 34th day post-transplantation of bone marrow. He feels well.
15.01.2010 Tanya Bolshebryukhova
feels well. At the end of January she will travel to Krasnodar for
planned tests.
15.01.2010 On January 19th
Aleksei Cherniy will come to the clinic
for another round of tests. Alesha feels well and was taken off
Vfend therapy for now.
15.01.2010 Sasha Kaminsky
is supposed to go for planned examination at the end of January. He feels well.
His family's financial situation is desperate. Please help them with
paying for tests.
15.01.2010 Sasha Pakhomi
is in the 28th day post-transplantation of bone marrow. He feels mostly
well, except for cystitis.
15.01.2010 Andrei Ivanov
had the final re-induction. He will soon be discharged for outpatient
monitoring.
15.01.2010 Dima Krymov
feels well and attends school. His liver function improved and his
liver is gradually recovering.
15.01.2010 Nastia Agapitova
has positive dynamic based on MRI results. On February 4, Nastia is
scheduled to go for PET and it will require 14,000 rubles.
Please help!
15.01.2010 Nastia Dominikova's
leukocyte count rose and she was allowed to go home, to the apartment where
she stays with her family.
15.01.2010 Based on tomography test results,
Nikas Kossov will be administered chemotherapy
first to reduce the volume of surgery. Nikas will now be installed
Hickman catheter and on Tuesday he will start therapy.
14.01.2010 Umid Pulatov
has widespread relapse. All the treatment protocols have been tried
previously. Umid's condition is such that his mom decided to take him
home to Uzbekistan. In the next few days the doctors will select
medications that will alleviate his condition and Umid will be
able to travel.
14.01.2010 The results of trepanobiopsy of
Ksyusha Khomenya that
became known just prior to the New Year are encouraging:
there are no lymphoma cells. Tomorrow Ksyusha will start
the 6th cycle of chemotherapy.
14.01.2010 Sasha Obertyuk
had a relapse. He is now undergoing anti-relapse chemotherapy under
FLAG protocol at R. Gorbacheva Pediatric Hematology and Transplantology
Institute. A decision was made to initiate search for unrelated donor
at the international registry. We need to raise 15,000 euros for
the search and 2,500 euros for delivery of transplant.
13.01.2010 AdVita Foundation initiated fund-raising
for the treatment of Katya Minyukhina.
13.01.2010 Olga Shmygleva's
disease is progressing. In Russia she is only offered palliative treatment.
Olga is hoping to get enrolled into a clinical trial abroad with a new
promising treatment method - radioimmunotherapy. The treatment will be free,
but Olya will need money for visas, air travel and living expenses.
Please help!
12.01.2010 Sasha Zipenkov
needs to travel for another planned examination and a course of treatment
at Essen. From the previous trip, his mom has 1,200 euros left, so she
needs additional 1,500 euros.
12.01.2010 Katya Shikun
will fly to Germany on February 8th for endoprosthesis. Katya and her
mom need help with paying for medical insurance, visas and tickets,
as well as living expenses in Germany. Katya's family is completely
out of money.
12.01.2010 A donor for Yan
Korchenkov was found. Transplantation was scheduled for February.
We urgently need to raise 2,500 euros for delivery of transplant.
12.01.2010 Dinara Samigullina's
transplantation was scheduled for January 27th. The money for the delivery of
transplant was raised.
12.01.2010 A donor for Nastia Moklyak
was found. Transplantation was scheduled for beginning of February and actual date
is being verified.
12.01.2010 Petya Maltsev
relapsed. He underwent second transplantation, this time from his mother.
It is now the second week post-transplant. Petya is in a serious condition
at the intensive care unit.
12.01.2010 A donor for Dasha
Nekozyreva was found. Transplantation was scheduled for beginning of
February and actual date is being verified. The money for the delivery of
transplant was raised.
12.01.2010 Ilya Kirillov
needs financial support with buying medications and paying for the tests.
12.01.2010 Shamil Gasymzade's
family needs help with paying for treatment and renting an apartment.
12.01.2010 Matvei Baburin's
hearing has gone down significantly. He needs hearing aids made
by Istok Audio Trading that cost 60,000 rubles.
10.01.2010 Arina Miteleva
is at home and doing well. She achieved complete remission and was taken
off Roaccutane. Arina will now be monitored locally in Vologda, and will
come to St. Petersburg for tests in spring.
10.01.2010 On January 27th
Nilufari Sharifbek is planned to go for CT scan,
which will cost 18,000 rubles. Please help!
10.01.2010 Marina Lavrentieva
will need to go for CT scan at the end of January. The tests will cost close
to 8,000 rubles.
10.01.2010 Hudoidod Yazonov's
family urgently needs financial support.
10.01.2010 Sergei Scheblykin
still needs help with paying for rented apartment.
10.01.2010 Slava Chistyakov
was discharged for outpatient monitoring. He continues Vfend therapy.
Slava and his mom need financial help with paying for CT scan and taxi
ride from Siverskaya to the hospital and back.
01.01.2010 Dear friends,
The year end turned out to be so difficult that all the celebratory
words somehow faded to the background. It is always hard when someone
passes away... And this is why we do not want to talk about how we -
doctors, patients, blood donors, volunteers and supporters - somehow
got through this difficult year, gained priceless new experience, and
found new supporters and partners...
Dear friends! You are very important to us because you did not leave
our patients alone, despite everything. You know that almost everyone
who writes, calls or comes to our fund with a request for help,
receives an opportunity to address potential supporters. We do not
feel that we have the right to choose who is more promising, and who
is less. The patients we support are often very difficult, or most
difficult cases who could not get help anywhere else. We do not hide
the gravity of the situations and try to inform you about all the
events - happy and sad...
Charitable work can be organized in different ways. It is easier to
call on everyone and together raise the required amount and buy
medication or pay for surgery or a donor search for a certain patient.
It is much harder when we have to be close by every day and pay for
the prosaic and mostly anonymous (needed by many patients) reagents
for the lab, platelet equipment for the donors, disposable gloves and
probes, endless tests and examinations, rent apartments and fix
infusomats...
And here we would like to note one achievement that we consider very
important: the volume of unnamed donations had grown significantly.
It means that you trust the fund volunteers and are ready to join us
in this daily routine work - support of seriously sick patients in
many different ways - with the understanding that there are no
unimportant things in such a complex and multi-faceted undertaking.
You are ready to endure our difficulties and be with our patients in
the times of joy and suffering too. You share our convictions, which
really come down to an important principle: everyone has the right to
get help and live - despite their age, citizenship, and medical
prognosis. We are happy that many people feel the same way.
We are grateful to all of you! Good luck!
20.03.2010 AdVita Foundation initiated fund-raising
for the treatment of 
