11.05.2012 After the virus infection,
Milana Kuzhenova's blood counts are getting back to normal.
The doctors allowed the girl to go home for the summer. The only immunosuppressive
drug left to take is Ñóñlosporinum (to prevent the GVH reaction), the doctors decided
to stop using the hormones. Milana is taking Nozafil again as a part
of antifungal therapy.
11.05.2012 On May 10 Olga Ampleeva
began the mediastinal field radiation therapy at the Russian Research Center
for Radiology and Surgical Technologies. She will have about 20 sessions of
radiation. During radiation therapy a higher dose of Vfend is needed
(600 mg per day). Olga needs urgent help to buy the drug.
11.05.2012 Unfortunately
Zhenya Derenchuk's
condition is not improving. Catheter was installed so that Zhenya
could receive nutrition. The doctors think the boy needs a serious
rehabilitation course. Zhenya and his mother are staying in the
Solntsevo Scientific and practical center of medical help for children till
May 18. In the center, Zhenya gets massaged and receives the drugs
prescribed by the neurologist.
11.05.2012 Unfortunately
Volodya Telegin has a relapse. He doesn't feel
well and has become very weak. The boy was diagnosed with gastrostoma.
11.05.2012 Nika Baranova
is done with the last maintenance chemotherapy course. The medical
examination showed two fused ribs and a fluid-filled cyst in the intercostal
region. The doctors believe the current situation does not
require any surgical involvement. Nika was prescribed a course of Roaccutane.
Once every three months the girl will undergo medical examinations.
Nika's parents decided it's better to stay in St. Petersburg,
but Nika and her mother are going back home for one month.
11.05.2012 Danya Lutokhin
is done with the Cytozar course and is now administered Neupogen to
stimulate blood cells growth. He is soon having an MRI scan that will
tell the doctors if the boy is responding to the new
chemotherapy drug. If there is any improvement, the chemotherapy will
be continued. The doctors are also planning additional stem cell
harvesting for the upcoming autologous transplantation.
11.05.2012 At present
Varya Vlasova's
blood counts are normal. Varya is still undergoing maintenance chemotherapy.
Biochemical blood analysis has shown the transaminase count 6 times higher
than normal. The ultrasound shows that the liver and spleen
have in size, so Varya needs Geptral, Ursofalc (suspension) and No-Spa.
On top of all that, she also needs
the Purinetol anticancer drug (1 pill per day).
10.05.2012 Karina Kosareva
has been diagnosed with a relapse and has been hospitalized at
Children's City Hospital No. 1, where she is going to receive anti-relapse chemotherapy
under FLAG protocol.
10.05.2012 Vika Fedorina
underwent a chemotherapy cycle under FLAG protocol. Unfortunately, the remission
did not last long. Blasts have been revealed again. Vika was hospitalized
at R.M. Gorbacheva Institute of Hematology and Transplantation for the bone-marrow
transplantation with one of her parents as a donor.
10.05.2012 Fatima Turdy-Akhunova
has completed the main chemotherapy course and is now receiving the radiation therapy,
which she tolerates rather well. PET is scheduled for May 15 - the response to the
treatment will be evaluated depending on PET's results.
10.05.2012 Svetlana Egorova
is at the hospital and having another chemotherapy cycle. Unfortunately, the typing
showed that neither her sister Diana, nor her brother Nikita match as donors. Search
for an unrelated donor is being discussed.
06.05.2012 Igor Karev
is recovering after the chemotherapy course with Endoxan and Bleomycin.
For the next chemo Lastet is planned to be used. The groin lump has grown
a bit bigger and courses some pains. The possibility of an autologous
transplantation is still under question.
06.05.2012 AdVita Foundation initiated fund-raising
for the treatment of Evgeniya Arkhangelskaya.
04.05.2012 Anya Andreeva
is back home now, to the Krasnodarsky Krai. At the beginning of summer
she will come to St. Petersburg for the next course of photopheresis
at the R. Gorbacheva Institute of Hematology & Transplantation. Anya
feels great. Noxafil is still needed to prevent mycosis.
04.05.2012 Daniil Ryabov
feels well, the lungs CT showed some positive dynamics. Liver counts are
gradually going back to normal. Danya is doing the breathing and conditioning
exercises every day twice a day.
03.05.2012 Albina Ibragimova
finished the fourth cycle of high dose chemotherapy yesterday.
03.05.2012 On May 10
Svetlana Luchinskaya is having an MRI, which
costs approximately 17,500 rubles. The proper time for thyroid surgery
and the subsequent treatment with radioactive iodine depend on the
MRI results.
03.05.2012 In April
Elena Plis went to St. Petersburg for the planned tests.
It's been 300 days now since her BMT. The myelogram results are good.
Elena's hemoglobin and platelet counts are a bit low, and her liver counts
are elevated. The trophic ulcer on her leg is still healing, and Elena
can't walk properly. She still has the skin GVH reaction, Elena's legs
are particularly affected.
03.05.2012 Alexander Bystrichenko
is continuing treatment with Avastin. His general condition has not changed.
Alexander's treating doctor referred him for a consultation in Germany, but
the family has no money for it.
02.05.2012 On May 5
Diana Ibragimova is flying to Germany with her mom.
The hip joint replacement is scheduled for May 8. Money for the
surgery and the rehabilitation course has been raised, but Diana
and her mom don't have enough money to pay for the lodging.
02.05.2012 Marina Alyushina
underwent planned tests at R. Gorbacheva Institute of Hematology and Transplantation.
The test results are good, and she feels well. Vfend has been cancelled.
02.05.2012 Today was Natalia Kharatishvili's
fourth day of chemotherapy. She feels rather well.
02.05.2012 AdVita Foundation initiated fund-raising
for the treatment of Sofia Pinigina.
28.04.2012 Kostya Lee
came for a planned examination. He feels well, all the test results are
good and show a remission.
28.04.2012 Milana Kuzhenova
had to return to the clinic urgently because of high fever and dropping
blood count. She is undergoing an antiviral treatment, the doctors managed
to bring temperature down to normal, Milana's blood count is gradually
improving.
28.04.2012 Vladimir Maslennikov
underwent full examination at Kashkin Medical Mycology Research Institute.
There is some significant improvement with aspergillosis. Vfend was prescribed
to be taken during the chemotherapy.
28.04.2012 Vadim Gorbachev
feels well, his blood count is improving. There are signs of skin
involvement with GVHD. The doctors are considering a possibility of
discharging Vadik form the hospital to continue monitoring him on an
outpatient basis.
28.04.2012 Serezha Pudovkin
still shows signs of a skin involvement with GVHD. He is receiving therapy
with hormones and Enbrel. Noxafil is still needed.
28.04.2012 Sasha Agapitov
is at ICU. He has developed kidney failure as a result of sepsis. He
is undergoing hemodialysis. Puncture showed a remission.
28.04.2012 Roma Ignatovich
feels well and is monitored as an outpatient. Cytomegalovirus infection
has reactivated and Roma received treatment with Valcyte. The boy is in
remission now, Vfend is still needed.
28.04.2012 Veronika Mednikova
is monitored as an outpatient. She is in remission with full donor chimerism.
Intestinal GVHD is under control. Vika has a urinary tracts infection and
will receive antibiotics therapy.
28.04.2012 Adelya Faritova
is monitored as an outpatient. She still needs Pulmicort inhalations.
Hormone therapy is stopped. Vfend is still needed.
28.04.2012 Vika Gladinets
is monitored as an outpatient. The girl is receiving Heptral, Enbrel and
Mabthera to control the liver GVHD. She responds well to treatment.
Bilirubin level is considerably decreasing.
28.04.2012 Danya Zenevich
underwent an ophthalmological surgery at the Pediatric academy. He
is now recovering, but still has signs of skin involvement with GVHD.
Vfend is still needed.
28.04.2012 Albina Bostanova's
puncture showed full donor chimerism. Albina is in remission, but there
are symptoms of skin involvement with GVHD of 2d degree and hemorrhagic
cystitis. Vfend is still needed.
28.04.2012 Alina Irganova's
puncture showed full donor chimerism. Alina is in remission, although
white cell and hemoglobin counts are still a bit low. Doctors plan to
gradually stop basic immunosuppression therapy.
28.04.2012 Ksyusha Titaeva
has recovered after the first cycle of chemotherapy and is getting ready
for the second cycle.
28.04.2012 Veronika Nikulina
is being monitored as a day patient. There are some signs of infection,
she is treated with antibiotics and Pulmozyme inhalations.
28.04.2012 Svetlana Zolotynova's
condition has improved so the doctors allowed her to go home
for the holidays.
28.04.2012 Evgenia Arkhangelskaya
was examined at the Almazov Federal Center, the previous diagnosis was
changed to acute myeloblastic leukemia. Evgenia was administered a
chemotherapy course based on a new scheme. She is now recovering
from cytopenia.
28.04.2012 Natalia Chuprikova
is now having her next chemotherapy course in her home town of Penza.
Since remission hasn't been achieved yet Natalia's doctors in
St. Petersburg prescribed two chemotherapy courses with Atriance
and Mitoxantron.
28.04.2012 Irina Prikhodko
is in St. Petersburg where she had consultations for pain in her joins.
She needs to have both hip joints replaced with prosthetic implants.
The doctors recommended her to come back for more tests in August.
Currently she is undergoing a maintenance therapy in order to preserve
her other joints. Also, doctors are gradually reducing the
Tacrolimus dosage.
26.04.2012 In March Ilya Kirillov
was taken off maintenance therapy. The control puncture showed complete remission.
Ilya is in a good mood and he is gradually getting back to normal.
26.04.2012 Anton Yakushenkov
feels well and he is in a great mood. In April Anton came in for a checkup.
He got lacrimal point obturator implants that help with dry eye syndrome
resulting from GVHD of mucous tissues. The doctors will see Anton for planned
tests next year.
26.04.2012 Ramil Bulatov
came to the clinic for planned therapy with 11th cycle of photopheresis.
He tolerated procedures well and had improvement. His eyes are less dry
and bilirubin level is now normal. He still has joint pains and he walks
noticeably differently. A trauma specialist recommended to continue therapy
with Zometa, Fosamax, and calcium-D3 Nycomed. We also need to resolve the issue
with hip joint prostheses.
25.04.2012 A matching donor for
Leonid Sadikov
was found, but the transplantation has not yet been scheduled.
Leonid is continuing planned
therapy. He started the 4th cycle with Bendamustine which helps
reduce the tumor burden. Overall, Leonid feels well. He is undergoing
chemotherapy at the day patient facility.
25.04.2012 Oksana Koknaeva
had bone marrow transplantation on February 24. Everything went as planned; the girl
has already recovered after the transplantation. She remains under doctor's care at
the day patient facility. Oksana has no signs of GVHD. Confirmatory CT revealed foci
in her lungs, their origin is being tested.
25.04.2012 Vanya Novoselov
feels well. The puncture showed complete remission. Recently Vanya was hospitalized at
the Alexandrov hospital with high temperature. He was
discharged from the hospital after completing an antibiotic treatment course.
25.04.2012 Svetlana Gunya's
transplantation was rescheduled for May 5 because of her donor being sick.
Svetlana feels well now, she is getting ready for hospitalization.
25.04.2012 Marina Dobrova
underwent bone marrow transplantation on April 20. The girl is now in cytopenia,
she has developed mucositis.
25.04.2012 Volodya Akimov's
transplantation is scheduled for May 11.
25.04.2012 Marina Malikova
feels rather well and is preparing for the transplantation scheduled for May 12.
25.04.2012 Lesha Laptev's
transplant was rejected, but the donor agreed to the second stem cell donation.
Second transplantation is scheduled for May 12. Lesha is in cytopenia. Infectious
complications have been successfully treated.
25.04.2012 Konstantin Korytov
underwent ENT sinus surgery and feels rather well. A matching marrow donor was
found and the transplantation is scheduled for May 15.
25.04.2012 Viñtor Uryadnikov
is not feeling very well: after the treatment with Dacogen he is having periods of
elevated temperature, he had stomatitis. The transplantation is scheduled for May 19.
25.04.2012 The best matching donor for
Oksana Nosik
was found, but the transplantation had to be postponed due to a relapse.
Oksana is currently undergoing chemotherapy to achieve remission. The date
of the transplantation will be decided depending on Oksana's response to
the treatment. Oksana feels fine and is
tolerating chemotherapy rather well. She is eagerly waiting to know what
the response to the treatment would be.
24.04.2012 The doctors decided that
Daniil Lutokhin's
autologous transplantation cannot be postponed, even though complete
remission was not achieved.
On April 24th Danya and his mom were moved to the unit at the 2nd Adult
Department for pre-transplantation chemotherapy.
23.04.2012 AdVita Foundation initiated fund-raising
for the treatment of Oleg Kosinov.
23.04.2012 The tests discovered bilateral pneumonia
caused by fungal infection in Volodya Telegin's
lungs, as well as a viral infection. Volodya take Cancidas and other medications.
He now has appetite, but it is hard for him to eat. In the next few days he will
have immunologic tests.
20.04.2012 On February 27 Alexei Konovalov
underwent bone marrow transplantation. Unfortunately, the transplant failed to engraft.
Alexei is currently in cytopenia. He developed infectious complications and receives
therapy with antibiotics. The doctors are planning to conduct haploidentical transplantation
from his mom.
20.04.2012 Andrei Zakharchev
is being treated for bilateral pneumonia. A partially matching donor has been found, and
the bone marrow transplantation has been scheduled for June 2.
20.04.2012 Gleb Kalinyuk
was diagnosed with a relapse. He underwent chemotherapy under FLAG protocol, and, based
on control puncture, he is in remission. On April 23 Gleb is going to be hospitalized to
undergo haploidentical transplantation from his dad.
20.04.2012 Anna Smirnova
underwent a course of photopheresis, and another one is planned. She tolerated the course
rather well and had fever only for two days. Anya is being monitored by a pulmonologist and
receives antibiotic inhalations. She still needs Vfend.
20.04.2012 Sergei Maltsev
feels well. GVHD was successfully treated. After Ñóñlosporine was cancelled,
Serezha started having seizures, but now everything is back to normal. Planned tests
are scheduled for the end of May.
20.04.2012 Iliya Ipkeev
underwent surgery at G. Turner Pediatric Orthopedic Institute. In order to straighten
out his legs deformed due to the contracture, special plates have been inserted. Ilyusha
is gradually recovering his eyesight.
20.04.2012 Marina Alyushina
is traveling in for planned evaluation on April 23. She continues to take Vfend.
20.04.2012 Nina Korsak's
seizures increased, therefore the surgery cannot be postponed any longer. Nina will have
to undergo MRI and a medication therapy cycle before the operation.
20.04.2012 Maxim Zhuravlev
hasn't yet recovered from the transplantation and still has cytopenia. Due to low blood
counts Maxim has developed infections; also, neurological problems are present that have
to do with the shunt. He has been transferred to the intensive care unit.
20.04.2012 Anna Mirskaya
is being treated for sinus infection. Puncture of nasal sinuses revealed mucosa density.
To remove it, Anna will have to undergo laparoscopic surgery and is then going be hospitalized
at Kashkin Medical Mycology Research Institute, as there is no improvement in regards to the
fungal infection of the lungs based on several control punctures. Chronic GVHD with skin
involvement is still present. Vfend is still needed.
20.04.2012 Natalia Kovaleva
did control tests and went home. The test results are good. Based on control puncture,
Natasha is in complete remission. She continues to take Vfend.
20.04.2012 Nastia Ilder
feels relatively well, but her temperature is sometimes elevated. She has been
diagnosed with osteomyelitis and prescribed antibiotics. The primary
disease – osteopetrosis – is in such a stage that performing the transplantation is
pointless. Due to impaired immunity Nastia developed aspergillosis and therefore needs
the antifungal drug Noxafil.
20.04.2012 Igor Simonov
is being monitored as a day patient. A series of tests is being planned. Igor developed
toxic hepatitis and hepatomegaly and was prescribed Phosphogliv and Hepa-Merz. He still
needs Entocort to prevent recurrence of GVHD, as well as Vfend.
20.04.2012 Based on planned tests that Anton Gasnikov
did in March, he is in complete remission and has complete donor's chimerism. Every two months Anton
undergoes an evaluation at R. Gorbacheva Institute of Pediatric Hematology and Transplantology. He does
chess at the Children's Arts Center, sings at the theater choir and attends an educational preschool group,
as he is due to start school this year.
20.04.2012 The regional administration
purchased 8 more boxes of Tasigna for Evgeniy Senkin.
It should last him until December 27, 2012.
19.04.2012 Immunosuppressive therapy has been
canceled for Konstantin Shushlin because signs of
minimal residual disease are increasing and the platelet count is dropping.
Now that hormones are canceled Konstantin is feeling better. Vfend is still
needed.
19.04.2012 Unfortunately,
Danya Lutokhin's lungs and liver have metastases.
Aside from metastases, he also has fungal infection in his lungs.
19.04.2012 Lyubov Subbotina
was diagnosed with the skin GVH reaction and administered hormones therapy which
was hard on her. Her basic disease is in remission. Vfend is still needed.
19.04.2012 Gennady Makeev
is still on Sprycel. The latest follow-up examinations for the first time showed
no signs of the Philadelphia chromosome. If this result is confirmed by the next
punctures then Gennady will probably have a bone marrow autotransplantation since
he has no donors in the International Registry.
19.04.2012 Unfortunately a fully compatible donor for
Vladimir Davydov has not been found. Since the risk of
a relapse is still high the doctors decided to perform a bone marrow
autotransplantation.
19.04.2012 Varya Vlasova
had a follow-up examination on April 16. The liver counts are elevated. Varya
needs Geptral and Ursofalc on a regular basis.
19.04.2012 Sergei Sharov
is monitored at the Leningrad Regional Clinical Hospital. He has had radiation
therapy as well as donor lymphocytes transplantation to stimulate the functioning
of the donor bone marrow. As the result of this treatment the tumor decreased in
size and Sergei now has a skin GVH reaction. The follow-up puncture performed
after the radiation therapy testified to a bone marrow relapse but thanks to
the GVH reaction the blast counts are decreasing. Noxafil has been replaced
with Vfend.
19.04.2012 Zhenya Derenchuk
condition remains more or less the same: he is very weak and cannot eat or talk.
On April 17 Zhenya was transferred to a hospice in the Solntsevo district of
Moscow for 2 or 3 weeks. His mother and doctors hope that his condition will
gradually improve. If the boy's temperature gets stable and he is able to eat
on his own Zhenya won't have to be monitored by the doctors any more.
19.04.2012 Nika Baranova
is at home. The last chemotherapy course went well. Nika is feeling well.
19.04.2012 The last few days
Vova Telegin had a hard time swallowing
and he had a cough. On April 18th the cough transformed into a
seizure with a short-term breathing cessation.
Volodya was urgently moved into ICU. He is now somewhat better
and is back in his regular room. Tests were scheduled.
19.04.2012 Vladimir Maslennikov
has been admitted to the Kashkin Research Institute of Medical Mycology where he
is examined because of aspergillosis. As for his basic disease, he is taking
chemotherapy in tablets.
19.04.2012 Zakhar Korpusov
is back home in Syktyvkar. He is not feeling too well. Zahar was diagnosed
with mycotic lesions all over his body. His legs have been affected most,
Zahar cannot walk. Chronic skin GVH reaction is still there too.
19.04.2012 Akop Gulabyan
is feeling better and has been transferred back to the ward from intensive care.
There are signs of a neurological speech disorder.
19.04.2012 Ivan Buitov
had the transplantation performed as planned. There are signs of a skin GVH
reaction which is under control thanks to hormones therapy. Ivan has been
discharged to be monitored at the Leningrad Regional Clinical Hospital.
19.04.2012 Volodya Akimov
achieved remission! A donor was found, and transplantation was preliminarily
scheduled for mid-May. We urgently need to raise 2500 euros for delivery of
transplant.
18.04.2012 Based on test results,
Arthur Geroev was diagnosed with a relapse and
tuberculosis. He was hospitalized at Phtysiology and Pulmonology Institute
where he receives anti-TB therapy and chemotherapy with low dose cytosar.
He is in a serious condition.
18.04.2012 It was decided to irradiate
Igor Zhuikov's neoplasm using a different
radiation therapy approach.
18.04.2012 As no matching donor for
Asel Panabergenova was found in the registry,
it was decided to perform autologous bone marrow transplantation.
Acel arrived in St. Petersburg and was hospitalized at R. Gorbacheva Institute,
where she will undergo high-dose chemotherapy followed by cell harvest.
18.04.2012 After chemotherapy under FLAG regimen,
Daniil Ryabov received donor's lymphocyte infusion.
It then caused acute GVHD and cytomegaloviral infection also developed. Danya
is in remission in regards to primary diagnosis. He is now receiving therapy
for GVHD and infections. He feels much better and takes Valcyte, Vfend,
antibiotics and liver protecting drugs.
18.04.2012 Petr Mikhailov
recovered fully after transplantation and was discharged for outpatient monitoring.
He is in remission in regards to primary diagnosis. His blood counts are rather good,
except for low platelets.
18.04.2012 Alexander Volkov
recovered fully after transplantation and was discharged for outpatient monitoring.
He is in remission in regards to primary diagnosis. His blood counts are good, and
he has no infectious complications or GVHD. Alexander feels well.
18.04.2012 Alla Korotich
recovered fully after transplantation and was discharged for outpatient monitoring.
Alla did not tolerate tacrolimus well, but then she improved. Alla has signs of skin
GVHD, grade 2. She was prescribed hormonal therapy. Based on puncture results, she
is in remission, and her blood counts are rather good.
18.04.2012 Based on pre-transplantation tests,
Elena Kononenko had blasts in bone marrow and serious
cardiac issue. She is now undergoing pre-transplantation chemotherapy and is in
a satisfactory condition.
18.04.2012 After transplantation,
Irina Lokina was diagnosed with fungal infection and was
prescribed Mycamine. She now recovered fully from transplantation and was
discharged for outpatient monitoring. She does not feel very well yet due to
fatigue, dizziness, and elevated liver indicators. Mycamine was replaced
by Diflucan.
18.04.2012 Alexander Bonapartov
was hospitalized at R. Gorbacheva Institute for pre-transplantation chemotherapy.
18.04.2012 Elena Krapivnitskaya
recovered fully after transplantation and was discharged for outpatient monitoring.
She feels well. Elena is in remission in regards to primary diagnosis. She has no
infectious complications or GVHD.
18.04.2012 Elena Kozis
was hospitalized by ambulance with acute abdominal pain and underwent intestinal
surgery. She already returned home and is now recovering. Elena is in remission
in regards to primary diagnosis and still needs Valcyte.
18.04.2012 Based on control puncture,
Sasha Ustinov is in complete remission.
The lesions in his lungs are not yet verified. They look more like
aspergillosis, but the test results are not yet ready. Bronchoscopy
is also planned. Sasha is still receiving Vfend. Further therapy
is under discussion.
17.04.2012 Roman Belsky
was diagnosed with a relapse. Chemotherapy with Atriance is planned to be
followed by autologous stem cell transplant.
17.04.2012 Levon Karagezyan
had a good response to chemotherapy under the new regimen: the lesions
shrank insignificantly, and intensity of uptake decreased in half.
It was decided to administer two more cycles. Chemotherapy is rather
harsh, with lengthy cytopenia, but Levon feels rather well overall.
17.04.2012 Nikita Burenkov
feels well and is in complete remission. However, GVHD has become more
acute, and Nikita was prescribed hormonal therapy again.
Vfend is still needed.
17.04.2012 Danya Lutokhin's
PET results showed new lesions in lymph nodes.
Further therapy is under discussion.
17.04.2012 Unfortunately,
Igor Mishin is in relapse and is resistant
to chemotherapy. Igor was discharged home for palliation.
17.04.2012 Vika Fedorina
does not have complete matches as donors. After the 3dr cycle of
chemotherapy remission was not achieved. Vika is now exiting the 4th cycle.
It was decided to perform urgent haploidentical transplantation of
bone marrow from Vika's mom.
17.04.2012 Misha Stepanov's
donor's bone marrow did not engraft. He has blasts in bone marrow.
He is scheduled for head MRI for May 2nd to track the lesion in his brain.
17.04.2012 Zhenya Derenchuk's
condition stabilized. He is still under a pediatrician's watch.
He is fatigued and has a constant fever above 38.5C.
17.04.2012 Nikita Eremin
is in a serious condition. He is in ICU. Nikita developed ulcerous colitis
and got recurring intestinal bleeding, as well as hemorrhagic cystitis.
He needs regular blood transfusions. Nikita is in remission, but shows
signs of under-functioning transplant. As soon as his condition allows,
Nikita will get stem cell infusion to improve transplant function.
17.04.2012 Lenura Lukkonen
finished the 8th cycle of chemotherapy. She is in remission. The test results
show improvement with aspergillosis as well, and Vfend
therapy will continue.
17.04.2012 Olesya Kapustina
completed the 3rd cycle of chemotherapy. She tolerates it very
well and feels well.
17.04.2012 Dina Zvereva
underwent BMT. She feels well and is recovering. In the next few days
Dina is planned to be discharged for monitoring as a day patient.
We urgently need to transfer 19,924.15 euros to the registry for the
donor search for Dina.
15.04.2012 AdVita Foundation initiated fund-raising
for the treatment of Olga Osipova.
14.04.2012 Alexander Volkov's
transplantation took place, and a week has passed. Sasha's blood counts have not
yet recovered. He feels OK, except for pain syndrome, but appropriate therapy was
found. Sasha and his mom are very grateful to Grant Life fund for paying the bill for
transplantation! Delivery of transplant was paid for by AdVita fund.
14.04.2012 A donor for Tatiana Vasilieva
was found, but transplantation was postponed, as she was diagnosed with a serious sinus
infection. She is now being hospitalized at R. Gorbacheva Institute for antibiotics
therapy, and as soon as infectious complication is under control, transplantation
will take place. The funds for delivery of transplant were raised by Tatiana's
friends and relatives. However, the funds to pay for donor search are not yet raised,
and the help is needed urgently.
14.04.2012 Elvin Zeiniev
was allowed to go home to Novgorod for three days. On April 16th he will return
to R. Gorbacheva Institute to continue therapy and begin the 5th cycle of
chemotherapy. Elvin feels rather well, and he still needs Vfend.
14.04.2012 Anya Popova
finished three cycles of chemotherapy. She was not in remission after the 2nd cycle.
The results of a puncture after the 3rd cycle are not yet ready. Anechka did not
tolerate therapy well. She had serious complications and was taken to ICU.
She is now better. Between cycles, she was allowed to stay at a rental apartment.
The fourth cycle is planned to start in a week. If Anya's condition allows, a
decision may be made to initiate a donor search at the International registry,
despite small number of potential donors.
14.04.2012 Vanya Rusakov
feels rather well. Decision regarding transplantation will be made once we
get response from the registry and cord blood banks.
14.04.2012 Olga Kelina
has bilateral pneumonia. She is on oxygen, in a serious but stable condition.
She receives therapy with antifungal drugs and antibiotics.
14.04.2012 Maxim Zhuravlev's
transplantation took place on schedule, on March 30th. Delivery of transplant
was paid for by AdVita fund. The boy is now in cytopenia and he receives blood
transfusions continuously. Maxim is also receiving wide spectrum antibiotics and
albumin. He has severe mucositis as a complication, and is unable to eat or drink.
Symptomatic drugs are not helping yet. His condition should improve once his
leukocyte counts goes up.
14.04.2012 Vyacheslav Selyakov's
transplantation took place on April 9th. It is now 5th day post-transplant. Vyacheslav
is in cytopenia and receives antibiotics and Vfend.
14.04.2012 Maxim Ivanov
completed base chemotherapy and started maintenance. He feels rather well. The full
amount needed for donor search was raised, and the registry bill was paid.
14.04.2012 Unfortunately, Anton Pavdyurin
is not responding to Ribomustine, and it was decided to administer two cycles of chemotherapy
under ICE regimen. It will be done at Municipal Hospital No.15, for which we we need to buy
Carboplatin, currently unavailable at the hospital. The first installment of $1500 was
transferred to the Morsch registry by Advita Fund USA about a month ago, and now the registry
told us that the search is in the final stages. We need to urgently transfer the lacking amount
to cover donor search at the registry. Please help!
14.04.2012 Irina Scherbakova
finished the 5th cycle of chemotherapy at Botkin Municipal Clinical hospital in Moscow.
She was allowed to go home for a week, and it will be followed by the 6th cycle.
After the 4th cycle, Irina finally achieved remission.The first installment of $1500 was
transferred to the Morsch registry by Advita Fund USA about a month ago. A donor was not
found yet. Irina feels rather well.
14.04.2012 Elena Lebabina
is now monitored as a day patient. She does not feel very well due to GVHD involving skin,
liver and kidneys (hemorrhagic cystitis). Elena receives therapy with Octagam, Heptral, and Vfend.
Transplant is working well, and she is in remission.
14.04.2012 On February 27th Irina Sidelnikova
underwent autologous bone marrow transplantation. On April 6th she was discharged from Municipal
Hospital No.31 for monitoring by oncologists locally. Her blood counts recovered partially,
and she already received blood transfusion in Cherepovets hospital due to low platelets and
hemoglobin. Visually, all lesions appear to be gone after autologous transplant, but control
CT scan will be possible only after her blood counts recover, possibly in early-mid May.
14.04.2012 Volodya Akimov
finished 4 cycles of chemotherapy, but did not achieve remission. A donor was not yet found.
14.04.2012 Sergei Fedosov
recovered completely after transplantation and was discharged for day hospital. He is in remission
and transplant is working well. Sergei feels rather well, although he still gets nosebleeds and
his temperature rises periodically. Hormonal doses are being reduced, but Vfend is still needed.
14.04.2012 Olesya Kapustina
is now completing the 3rd cycle of chemotherapy and starting re-induction. She feels well and
tolerates erwinase well. She is in remission, and tehrapy is proceeding as planned. Chemotherapy
is planned to continue until the end of June.
14.04.2012 Arseny Kuznetsov
blood counts were recovering for a long time, and only the day before yesterday he
started showing first signs of exiting cytopenia: his leukocytes and platelets increased
slightly. He is in remission, and the test for antigen to zygomycota is negative
(for the first time since this infection was diagnosed!) Arceny's intake of Ampholip
was stopped, but he still needs Noxafil. A donor was not yet found.
14.04.2012 : On April 18th Eva Shaver
was transferred to R. Gorbacheva Institute for treatment and she received symptomatic therapy.
Eva refused anti-relapse chemotherapy and is now at home.
13.04.2012 Svetlana Luchinskaya
was diagnosed with a second oncological disease: papillary thyroid carcinoma
with metastases in the lymph nodes. Svetlana will have a surgery in Murmansk.
After the surgery she will need computed tomography of the whole body, which
requires a considerable sum of money. We kindly ask for your help.
13.04.2012 Zhenya Vasilenko
has had a surgery on his hip joint. Zhenya's mother is asking for
financial support.
13.04.2012 Almira Tashmetova
now has a little sister Alina. Unfortunately the cord blood cannot be used
for the transplantation. The doctors are now considering a relative bone
marrow transplantation from the father. Almira has had three chemotherapy
blocks and is now recovering.
13.04.2012 Katya Yastrebova
is feeling fine. Her blood counts are normal, and she needs fewer and fewer
blood transfusions.
13.04.2012 Karina Kosareva
is at the day patient facility, she is feeling fine. The doctors plan
another photopheresis course.
13.04.2012 On April 10
Zhenya Derenchuk had a convulsive attack
due to a sudden temperature rise. Zhenya was transferred to the
intensive care unit where he was examined. No issues had been diagnosed.
On April 12 Zhenya felt better but he is still in the clinic where he
is monitored by the pediatrician. However the clinic cannot
keep him for much longer.
12.04.2012 Inna Shakhmayeva
feels well and continues physical therapy, with much enjoyment.
Her pseudomonas aeruginosa infection is finally sensitive to
practically all antibiotics and even to related phage.
Inna will be treated with bacteriophage and undergo antifungal therapy.
11.04.2012 Timur Rudyko
is being followed as a day patient and feels rather well. He continues
to be treated under maintenance regimen. Timur regularly sees an
osteopath, as complications - leg pain - appeared after
high dose chemotherapy.
11.04.2012 Lera Nosova
was hospitalized at K. Rauhfus Children's City Hospital 19 with infectious
complications and high fever. Currently, combined antibacterial therapy
is being administered. As soon as Lera's condition is stable, she
is going to be transferred to City Hospital 31 to continue the
chemotherapy cycle.
11.04.2012 Maxim Rybakov
continues to be treated in regards to primary diagnosis, and there are
visible improvements. Noxafil is still needed to treat zygomycosis.
Maxim's lung condition is improving, therefore the doctors have
decided not to use Cancidas to treat the fungal infection for the
time being. This medication is going to be used as a reserve to
strengthen the effect of Noxafil, if needed.
11.04.2012 Hormonal therapy and Elidel cream have done
Serezha Pudovkin good: there are significant
improvements in regards to skin GVHD. The doctors have decided to
reduce hormone doses.
11.04.2012 Dima Chukreev's
transplant was rejected; however, he is in remission in regards to primary
diagnosis. The doctors at R. Gorbacheva Institute of Pediatric Hematology
and Transplantology have discharged Dima home. He is going to be monitored
by a hematologist locally, and in three months complete examination in
St. Petersburg is scheduled. At home Dima is going to continue treatment
with the antifungal drug Vfend, as well as Pegintron to recover the
liver function.
11.04.2012 Nikita Vasiliev
is starting his 16th chemotherapy cycle on April 15. After this one,
only two will remain. Nikita feels well, and his blood counts are
rather good. Nikita is going to attend evaluation and consultation
at City Hospital 31 in the middle of July.
11.04.2012 Igor Karev
began progressing, and autologous transplantation was postponed.
He is now at home where he receives therapy with endoxan and bleomycin.
Decision regarding further treatment has not been made yet.
11.04.2012 Yesterday
Sanzhima Lodoeva received Carboplatin and
Vinorelbine. She feels weakened, has pains in her legs and aches
in her right side and stomach. Sanzhima is losing appetite,
but is not nauseous yet.
10.04.2012 Ulyana Popova
is in complete remission based on the puncture as of the 100th day
after bone marrow transplantation. The doctors decided to release
Ulyana home for several months. Until the next check-up scheduled
for the end of May Ulyana is going to be monitored by a hematologist
locally. Vfend is still needed. Ulyana feels well, and
there are no signs of GVHD.
10.04.2012 Olga Ilyuncheva
arrived for planned tests on March 11. Bone marrow is clear of cancer cells.
There was cytosis in the spinal fluid; however, after three lumbar
punctures the spinal fluid was clear. The infusion of donor lymphocytes
caused a stronger GVH reaction with skin involvement, and Olga was
prescribed corresponding treatment. The next evaluation is scheduled
for June or July 2012.
10.04.2012 Danya Zenevich
is still treated for CMV infection and chronic GVHD with skin involvement.
He receives Ñóñlosporine, Cellcept, Gleevec and Vfend. Danya
feels rather well.
10.04.2012 Nastia Rodchenkova
completed the second cycle of high dose chemotherapy. Based on control
puncture, she is in remission. The treatment is going to be continued
under the same protocol.
10.04.2012 Nikita Kirichenko
developed acute pneumonia and pulmonary edema, and he is in intensive
care on artificial lung ventilation. His condition is serious. Nikita
is receiving therapy with antibiotics and immunoglobulins. Based on
control puncture, he is in remission in regards to primary diagnosis.
The transplant has engrafted.
10.04.2012 Misha Stepanov
underwent bone marrow transplantation on schedule. However, Misha's blood
counts soon dropped again, and control puncture revealed 16% of blasts
in his bone marrow. The test on the percentage of donor bone marrow
is still not ready, and further therapy is being discussed.
Misha feels well.
10.04.2012 Adelya Faritova
feels well, she continues to be followed as a day patient. Skin GVHD
manifests itself only slightly. Adelya was successfully treated for
sinusitis, but she came down with bronchitis and receives Pulmicort
inhalations. The doctors are gradually reducing hormone doses.
Vfend is still needed.
10.04.2012 To overcome GVHD with liver involvement
Vika Gladinets received Enbrel. The response
to this therapy has been good, and her liver counts began to decrease.
10.04.2012 Zhenya Derenchuk
underwent surgery on brain ventricles on March 28. Zhenya is very weak,
and his condition deteriorated substantially due to the operation.
He has difficulty swallowing and is mostly fed through a tube.
Zhenya is due to be discharged from the hospital tomorrow.
Zhenya's mom is afraid to take him away from Moscow, as she
understands that due medical surveillance is not going to
be available locally.
10.04.2012 Danya Lutokhin
feels well. CT scan is scheduled for April 16, and full-body PET
scan for April 17. Trephine biopsy has been scheduled for the second
half of this week. In the near future Danya will also have to undergo
a comprehensive pre-transplantation evaluation.
10.04.2012 Ruslan Kholmatov
underwent another chemotherapy cycle and feels well. However, he has
little appetite, and we have to rely on special nutrition PediaSure
to keep up his weight. Ruslan spends a lot of time in the playroom.
10.04.2012 Nika Baranova
was transferred to maintenance therapy in pill form and comes to
the hospital only for evaluation. Nika is developing rapidly and
is very sociable.
10.04.2012 Lera Bryukhacheva
underwent another chemotherapy cycle and is recovering from it.
She has become very moody and wants to stay in someone's arms all
the time, as she is teething.
10.04.2012 Ivan Kolesnikov
feels well. The third injection of SGN-35 is scheduled for April 13.
It is planned to administer 6 treatment cycles in total.
10.04.2012 Zhenya Derenchuk
underwent surgery on brain ventricles on March 28th.
Zhenya is very weakened, as the surgery significantly affected
his general condition. He can barely swallow, and is mostly fed
via feeding tube. Tomorrow he is due to be discharged.
Zhenya's mom is afraid to take him home, as she believes
he will not be able to get adequate medical control and
rehabilitation locally.
10.04.2012 Nastia Fedorova
is being followed as a day patient and she feels well.
Based on control puncture, she is in remission. She receives
chemotherapy under maintenance regimen.
10.04.2012 Veronika Nikulina
had a very hard time tolerating chemotherapy. She had high fever and
obstructive bronchitis, and is currently taking antibiotics and Vfend.
Based on control puncture, she is in remission, although signs of
minimal residual disease are present. Nika is now a day patient.
Complete examination is planned to be followed by transplantation
of bone marrow from her brother.
10.04.2012 Alina Irganova
is still followed as a day patient, and she feels well. She has no signs
of skin GVHD, except for mild pigmentation, so she was taken off hormonal
therapy. Test results show lowered blood counts, and control
puncture is planned.
10.04.2012 Albina Bostanova
recovered after transplantation and was discharged for day hospital.
Her GVHD symptoms are minor, and she has no signs of infection.
10.04.2012 Ksyusha Titaeva
finished the first cycle of high-dose chemotherapy.
She tolerated it well and is now recovering.
10.04.2012 Roma Ignatovich
is being followed as a day patient and he feels well. He is improving in
regards to aspergillosis and Vfend is still needed. Unfortunately,
Roma completely lost appetite and the only nutrition
he receives in Nutridrink.
10.04.2012 Lesha Laptev
continues having under-functioning transplant and has infectious complications.
He is receiving combined therapy with antibiotics and antifungal drugs.
He also had a bleeding episode, which was controlled with the help
of Feiba medication. We have not yet received a response from S. Morsch
registry regarding additional collection of donor's lymphocytes from a
donor for an infusion for Lesha.
10.04.2012 Marina Dobrova
was hospitalized at R. Gorbacheva Institute for unrelated transplantation.
10.04.2012 Sasha Agapitov
is now in cytopenia. From time to time he gets fever. He developed
severe mucositis and cannot eat anything.
10.04.2012 Another matching bone marrow donor for
Oksana Nosik was not found. It was decided to add
interferones to the base therapy and type Oksana's mom as a potential
bone marrow donor.
10.04.2012 PET study showed that
Olya Shmygleva has no signs of disease!
08.04.2012 A donor for
Elena Kononenko was found, and transplantation
was scheduled for April 26th.
08.04.2012 Anton Veretennikov
is being followed as a day patient. He is in remission and feels rather well.
He has GVHD symptoms involving upper GI and receives hormonal therapy.
Vfend is still needed.
08.04.2012 Evgeny Konovalov
completed another cycle of chemotherapy. He is now recovering at home and feeling
rather well. Based on control CT of lungs as of March 30th, he is improving, and
therapy with Vfend will continue.
08.04.2012 Artem Karnishin
is receiving therapy with photopheresis due to skin GVHD. He is in remission based
on control puncture, but donor's percentage in bone marrow has gone down. Artem was
taken off immunosuppressive therapy and he will be followed for some time.
08.04.2012 Unfortunately, Victoria Larina's
tests in March 2012 discovered a relapse. Based on a phone consultation with Blokhin
Oncology Center, she was recommended palliative therapy under CEM regimen. The first
cycle was complicated by drop in blood counts and bleeding. Vika is now at home where
she receives symptomatic therapy.
07.04.2012 Veronika Mednikova
is being monitored as a day patient. She feels rather well. Her intestinal GVHD
improved slightly, and she is continuing therapy with hormones and entocort.
Veronika is in remission. Vfend is still needed.
06.04.2012 Natalia Kharatishvili's
transplantation was scheduled for May 4th. She still owes the donor registry
and needs to pay for transplant delivery to St. Petersburg. Please help!
06.04.2012 Varya Vlasova's
CBC results are pretty good, but leukocytes are low and transaminase
levels are heightened again. Varya was prescribed heptral and she will
repeat ALT test in a week.
06.04.2012 Andrei Kazakov
was hospitalized at City Hospital No. 31 to continue chemotherapy.
06.04.2012 Sanzhima Lodoeva
underwent EGD and mammogram, and all is well. The next cycle of chemotherapy
will start on April 9th. Sanzhima's family is asking for help with paying
for medications: 30,000 rubles for Paclitera and 3600 rubles
for Vinorelbine.
06.04.2012 Vika Polukhina
needs surgery on her ankle. It is not clear where she can have it done.
The surgery may need to be paid for.
05.04.2012 Oksana Nosik
feels rather well. Based on control puncture, the disease is in a
chronic phase, but Oksana's condition is stable. Second bone marrow
transplantation has been recommended.
05.04.2012 Serafim Ovcharenko
arrived for planned tests. There are still fungal lesions in his brain;
however, Serafim's condition is unchanged. The doctors decided to cancel
Vfend until June.
05.04.2012 Arina Baboshina
feels well, she needs blood transfusions once every two months on average.
05.04.2012 Vitaly Shushmarchenko
underwent the evaluation and was allowed to go home. All the test results are
normal, complete remission has been confirmed. Vitalik studies at home a lot
to catch up with the school curriculum.
05.04.2012 Akop Gulabyan
has a very serious infection, and he is in intensive care with high fever.
05.04.2012 Igor Zhuikov
underwent radiation therapy. Unfortunately, the treatment was ineffective.
Igor does not feel very well, he is in pain. The facial tumor is getting
larger. Igor was prescribed antibiotics, Bleomycin and topical wipes.
05.04.2012 Vika Gladinets
developed GVHD with significant liver involvement. Her bilirubin count is high.
05.04.2012 Serezha Pudovkin
has GVHD with skin involvement, grade II. He was prescribed an ointment,
Elidel. The puncture results showed complete donor's chimerism, and blood
counts are increasing. Serezha is being monitored as a day patient.
He has no signs of infection. To prevent fungal infection, he takes Noxafil.
05.04.2012 On March 30th
Vadim Gorbachev underwent bone marrow transplantation.
His blood counts are all very low now and he needs help from blood donors.
Vadim feels unwell. He has fever, vomiting and diarrhea. He cannot eat
and is fed intravenously.
02.04.2012 Olga Shmygleva
finished the 5th cycle of chemotherapy with bendamustine.
In April she plans to have control PET. Olga feels well.
01.04.2012 Sanzhima Lodoeva
feels better, but her abdomen has only gone down slightly.
She is gradually getting her appetite back.
On March 27th she finished taking heptral.
01.04.2012 Viktor Kornyakov
is now at home, in Usinsk in Komi republic. Based on a consultation with
Professor B. Afanasiev, Director of R. Gorbacheva Institute, and Dr. Darskaya,
he was recommended two cycles of chemotherapy with Velcade for two month.
Second hospitalization and discussion of further therapy are planned for
the end of May 2012. Viktor has slight skin GVHD and lack appetite.
He still needs Vfend.
30.03.2012 Vladimir Maslennikov
is undergoing examination at Almazov Federal Center after completing
chemotherapy. Most likely, he will be on monthly maintenance
therapy for the next year. A decision regarding bone marrow transplantation
has not yet been reached.
30.03.2012 Kirill Belyaev
completed planned tests. PET showed that the tumor is not live.
Kirill goes to school and also takes choreography classes.
30.03.2012 Gosha Makarenko
finished another cycle of chemotherapy under RIST regimen. He lost weight,
but is now regaining his appetite. Gosha returned home, as the next cycle
of chemotherapy is scheduled for July 1.
30.03.2012 Maxim Rybakov
feels well overall. His lungs situation is improving. Ampholip was canceled
due to signs of kidney toxicity. Cancidas therapy is being planned.
He will also soon start taking Cyclosporine.
30.03.2012 Vova Gusev
is still receiving blood transfusions. He continues having high iron load
in blood, and as a result - cardiac problems. Due to high iron levels,
transplantation will not be possible in the near future, so the doctors
will let him go home for two months.
30.03.2012 Arseny Kuznetsov
completed the 3rd cycle of chemotherapy and he tolerated it well.
He is now recovering. Arseny is staying strong and continues studying
while at the hospital. The donor search is ongoing.
30.03.2012 Karina Kosareva
feels well. She recently finished the 2nd cycle of photopheresis, and she
has improvement of GVHD.
30.03.2012 Lera Bryukhacheva
recovered after the 4th cycle of chemotherapy. After examination, the 5th cycle
is planned. She feels well, is happy and active.
30.03.2012 Nikita Burenkov
is undergoing the 2nd cycle of maintenance chemotherapy under RIST
regimen and he is tolerating it well. He has no signs of minimal residual
disease. Nikita lost a lot of weight after cancellation of steroids.
He goes for physical therapy and walks a lot.
30.03.2012 Bronchoscopy results showed that
Anya Smirnova's issues with lungs are due to
activation of lung type of GVHD. To fight it, Anya will undergo a
course of photopheresis. She is now awaiting a federal quota for
this procedure.
27.03.2012 Unfortunately,
Yulia Vodopianova's
control puncture discovered a relapse. On March 26th Yulia
was hospitalized at Gorbacheva Institute for anti-relapse
chemotherapy cycle, which will be followed by donor's lymphocyte
infusion. Vfend is still needed.
27.03.2012 Nikita Eremin
completed the first cycle at Berezin Therapeutic and Diagnostic Center and
is now recovering. The next cycle will be done at Municipal Hospital No.31
and will start on April 3rd. If metastases shrink post-chemotherapy,
Cyber-knife surgery will be considered.
27.03.2012 Andrei Kazakov
completed the first cycle at Berezin Therapeutic and Diagnostic Center and
is now recovering. The next cycle will be done at Municipal Hospital No.31
and will start on April 3rd. If metastases shrink post-chemotherapy,
Cyber-knife surgery will be considered.
26.03.2012 It was decided that
Zhenya Derenchuk needs surgery to join
brain ventricles. It was scheduled for March 28th.
26.03.2012 Vika Smirnova
was hospitalized at R. Gorbacheva Institute for haploidentical bone marrow
transplant. She started pre-transplantation chemotherapy.
26.03.2012 Vova Telegin
feels better, but he cannot yet stand or walk by himself.
26.03.2012 Angelina Garanina
was discharged from the clinic, where she was confirmed to have a remission.
26.03.2012 Grisha Bakhvalov
keeps getting fevers in the evenings. The reason for it is still not certain.
Grisha was confirmed to be in remission.
24.03.2012 The third cycle of chemotherapy
is being postponed. Diana Mishukova is
recovering after the 2nd cycle very slowly. After the 3rd cycle
tests are planned, which results will help decide on the further treatment.
23.03.2012 Alina Irganova
is still being followed as a day patient. She feels rather well. Her doses
of hormonal drugs and immunosuppressive medications are being lowered.
23.03.2012 Vanya Efimov
has blasts and was prescribed chemotherapy in anticipation of transplantation.
Vanya has low blood counts and was diagnosed with a sinus infection.
He receives antibiotics and Vfend.
23.03.2012 Albina Bostanova
is gradually recovering after transplantation. Her blood counts are still low.
She receives immunosuppressive therapy and Vfend. She feels rather well.
23.03.2012 Veronika Nikulina
had the 4th cycle of chemotherapy, but residual minimal disease persists.
Veronika still needs antibiotics and antifungal drugs.
23.03.2012 Nastia Fedorova
finished the 7th cycle of high-dose chemotherapy and began maintenance regimen.
A donor has not been found yet, unfortunately.
23.03.2012 Veronika Mednikova
was diagnosed with GVHD of skin and intestines and prescribed hormonal
therapy. Based on control puncture, she is in remission.
Vfend is still needed.
23.03.2012 Lesha Laptev
had donor's lymphocyte infusion, but unfortunately, transplant is still
not functioning fully and Lesha depends on blood transfusions and
medications to stimulate bone marrow function. The doctors are
considering infusion of donor's stem cells.
23.03.2012 Roma Ignatovich
is being monitored at the day hospital. He feels well and has no signs of GVHD.
Based on control puncture he is in complete remission. Control CT scan
showed residual fungal lesions in his lungs, so Vfend is not yet canceled.
23.03.2012 Adelya Faritova
is being followed as a day patient. She has minimal skin GVHD, and based
on control puncture she is in remission. She has improvement with
aspergillosis, so Vfend is still needed. Recently Adelya was diagnosed
with sinusitis and prescribed antibiotics. She feels rather well.
23.03.2012 Sasha Agapitov's
BMT from his father was scheduled for March 28th. He started pre-transplant
chemotherapy and tolerates it well. Vfend is still needed.
23.03.2012 Surgery on
Danya Zenevich's eye is being postponed due
to reactivation of CMV. Danya has temperature and was prescribed
NeoCytotect. His skin GVHD is improving and the hormonal doses
are being lowered.
23.03.2012 Anya Andreeva
arrived for another cycle of photopheresis. She feels well and has no
signs of GVHD. She still needs Noxafil to prevent a fungal infection.
23.03.2012 Elena Plis
was in St. Petersburg for planned tests. The puncture results were good.
She had a skin biopsy, as she has spots on her leg that don't respond to
prior skin GVHD therapy. Elena still has edema in her feet.
22.03.2012 On September 17th
Inna Shakhmaeva needs to go for control tests
to Third Order clinic in Munich. She is planned to have tests for 2 weeks,
along with decannulation (removal of tracheostomy tube). She will have a
small surgery to close a fistula in trachea. The bill from the clinic
is for 16,681 euros, plus 1000 euros will be needed for translator's services.
Please help!
21.03.2012 The parts for prosthesis for
Maxim Matytsin were paid for at the end of November,
and ordered at Otto von Bock firm in Germany, based on an individual drawing.
The first try of the future prosthesis already took place. It was then sent
for additional work, and should be ready soon.
20.03.2012 Yesterday and today
Sanzhima Lodoeva underwent chemotherapy
with paclitaxel and carboplatin. She tolerated it surprisingly well.
19.03.2012 Zhenya Derenchuk
was installed drainage in the 3rd ventricle of brain. His condition is now more stable.
Zhenya began reacting to his surroundings, but situation is still very serious.
He was tested for infections, and results will be ready in a week.
19.03.2012 Delivery of transplant for
Dina Zvereva will come from Canada and
will cost approximately 150,000 rubles. Help with paying for
courier delivery is needed urgently.
19.03.2012 A donor for
Alexander Bonapartov was found, and
transplantation was scheduled for April 24th.
19.03.2012 A donor for
Elena Kononenko was found, and transplantation
was scheduled for April 26th.
19.03.2012 A donor for
Victor Uryadnikov was found, and
transplantation was scheduled for May.
19.03.2012 A donor for
Natalia Kharatishvili was found, and
transplantation was scheduled for late April.
19.03.2012 The donor search for
Natalia Shramenko was paid for in full.
She now needs help with raising funds for delivery of transplant.
18.03.2012 Ira Nikonova
feels well. She is preparing for college admission and continues
taking Peg-Intron and Zometa.
17.03.2012 Based on doctors' council decision,
Dima Chukreev was prescribed Peg-Intron,
an injection a week for six months. Dima already had four injections.
His blood counts are normal based on test results, and he is in complete
remission in regards to primary diagnosis. Next week he will have a
complete evaluation and he may be allowed to go home for follow-up
by local hematologists in Omsk. He is now taking Heptral,
Ursofalk and Peg-Intron and feels well.
17.03.2012 On March 7th
Olga Kelina came for evaluation to Gorbacheva Institute.
She has chronic GVHD affecting her skin and eyes. Olga is in remission in regards to
leukemia, with full donor's chimerism. However, CT scan of chest discovered a large
area of fungal infection and she tested positive to aspergillosa antigen. Olga does not
feel very well and needs Vfend. Please help!
17.03.2012 Tonight at around 10 pm, in a serious condition,
Zhenya Derenchuk was urgently hospitalized by
ambulance at Burdenko Neurosurgery Institute.
17.03.2012 Amir Shataev
and his mom need to fly to Germany for another examination.
The family is asking for help with paying for evaluation and lodging.
17.03.2012 Zhenya Vasilenko
came to St. Petersburg and was hospitalized at Vreden Trauma and
Orthopedics Institute for evaluation prior to surgery.
Zhenya and his mom are still in a difficult financial situation.
Their only income is Zhenya's disability pay.
17.03.2012 Ruslan Kholmatov's
chemotherapy was started. We are hopeful that he will continue therapy
without having to deal with discharge from the clinic.
17.03.2012 A donor for
Marina Dobrova was found, and transplantation
was scheduled for April 18th.
17.03.2012 Arseny Kuznetsov
started the 3rd cycle of chemotherapy. Based on test results, he is in
remission and it was decided to initiate a bone marrow donor search.
Arseny feels well and has no fever. He finally began gaining weight.
15.03.2012 Grisha Bakhvalov
has 5% of atypical cells in his blood, and ESR is heightened to 36.
Additional tests were scheduled for March 19th.
15.03.2012 Angelina Garanina
had anaphylactic shock during platelet transfusion. She now feels better.
15.03.2012 Ruslan Kholmatov
feels well. He needs to start the 4th cycle of chemotherapy, but Ruslan
and his dad have not been able to get and extension for their stay in
Russia, and the therapy cannot be continued.
15.03.2012 Danya Lutokhin
does not feel very well, but will start the next cycle of chemotherapy.
15.03.2012 Vika Smirnova
has no fluid in lungs, and metastases had significantly decreased.
However, a lesion in her back had grown. The doctors are now discussing
the timing for haploidentical transplantation from Vika's dad.
Vika feels very well.
15.03.2012 A donor for
Arsen Arustamyan was not found, and it was decided
to perform haploidentical bone marrow transplantation from one of his parents.
Arsen is now at Children's hospital No.1 where he is receiving maintenance
chemotherapy.
15.03.2012 Varya Vlasova
feels well and her liver counts had improved but remain higher than normal.
15.03.2012 Zhenya Derenchuk
will for now stay in Moscow and be monitored by the specialists.
The CSF fluid drainage is obstructed and there are signs of inflammation
at the surgery site. Zhenya's parents are looking for apartment in
Moscow and are asking for help with paying the rent, which will
likely be around 30,000 rubles a month. Zhenya still cannot move by
himself and receives food primarily via a tube.
15.03.2012 Lera Bryukhacheva
finished the 4th cycle. She is now undergoing tests. The little girl
turned 7 months, and she is learning to sit without support.
14.03.2012 Sanzhima Lodoeva
was found to have a tumor in the lower abdomen.
She again has ascites and back pains. The treating doctor prescribed
a new chemotherapy regimen that costs 42,500 rubles per cycle.
12.03.2012 Based on puncture results,
Oksana Nosik has insignificant increase in minimal
residual disease, but overall she is stable. It was decided to continue Tasigna
therapy for another month to evaluate its effectiveness. Repeat puncture will be
done in late March, and its results will be used to discuss repeat transplantation.
12.03.2012 Sanzhima Lodoeva
had acute pain attack, and her doctor referred her for series of tests:
CT scan, U/S, blood tests and oncomarkers, most of which she will have
to pay for. Sanzhima also needs help with apartment rent (15,000 rubles).
12.03.2012 Dima Yablochkov
has completely matching relate donor: his older brother. He is now undergoing
rehabilitation under guidance of MMA specialists. As soon as he recovers,
bone marrow transplantation will be scheduled. Dima is in remission.
12.03.2012 Igor Karev
was hospitalized at Petrov Oncology Institute for additional
diagnostics and preparation for autologous transplant.
This stage will last about 2 weeks. Until March 24th Igor will be in
St. Petersburg by himself, without family.
12.03.2012 Nikita Kirichenko's
BMT took place on February 29th. Nikita is now weak, has diarrhea and vomiting,
and is fed via a tube. He also receives antibiotics, antiviral and anti-fungal
drugs. His temperature jumps to 38-39C every day.
His blood counts are low for now.
11.03.2012 Stas Pryakhin's
transplantation was scheduled for April 19th.
11.03.2012 On March 5th
Varya Vlasova had another round of tests at the
hospital. She continues taking Purinethol, methotrexate, ursofalk, Hepa-Merz,
and essenciale.
11.03.2012 After his doctors took the infection under control,
Zhenya Derenchuk was again installed a shunt of a different
configuration. The doctors hoped that drainage would work, but hydrocephaly still persists.
Zhenya's condition is still very serious. On March 12th doctors' board will discuss
further treatment approach.
11.03.2012 Nika Baranova
feels rather well and sometimes has a good appetite. Unfortunately, yesterday she
pulled off her catheter. The next chemotherapy cycle will be probably in pill form.
It will start on Thursday.
11.03.2012 Kostya Makoveev
had a viral infection with strong allergic syndrome. His condition is now normal.
He is in remission.
11.03.2012 Danya Lutokhin's
blood counts are very low and he cannot start the next chemotherapy cycle.
After a planned cycle, Danya will be evaluated.
11.03.2012 Vova Telegin
had a hard time tolerating another infusion of Atriance: he had worsening
of pancreatitis and was transferred on intravenous nutrition. He also has
serious neurological complications: he cannot get up, but retains sensitivity.
Vova receives appropriate therapy. On March 30th Volodya is due to be hospitalized
at R. Gorbacheva Institute, but it may be postponed due to neurological issues.
11.03.2012 Katya Markova
is in ICU in a serious condition. She was diagnosed with subcutaneous emphysema
and mediastinal emphysema, and tomorrow she will have a surgery to remove them.
She was also found to have sinus infection caused by zygomycetes.
11.03.2012 Zhenya Zavorotynsky
still has hypo-functioning transplant, despite donor's lymphocyte infusion and
infusion of donor's bone marrow (BUST). Due to low blood counts, CMV infection
activated and Zhenya developed breathing difficulty. He was transferred to a
ventilator in ICU.
11.03.2012 Irina Prikhodko
was diagnosed with aseptic joint necrosis. She is consulted at Vreden Orthopedics
Institute regarding endoprosthesis.
11.03.2012 Sasha Novokreschenov
came in for planned tests. He is in remission and based on control CT scan he has
residual fungal lesions, so Noxafil therapy is continued.
11.03.2012 Nastia Dominikova
was hospitalized at Surgical unit of Pediatric Academy for surgery due to finger contracture.
11.03.2012 Adelya Faritova
is followed as a day patient. She feels well, although she has slight skin GVHD.
Adelya still receives immunosuppressive therapy and Vfend.
11.03.2012 Vadim Gorbachev
was hospitalized to the clinic for transplantation. In the next few days he will
start pre-transplantation chemotherapy.
11.03.2012 Katya Yastrebova
feels relatively well. She is starting to get up. From time to time she gets blood
transfusions. She still needs Exjade, Vfend and diapers.
11.03.2012 Unfortunately, information regarding
Lera Bryukhacheva's registration in St. Petersburg
and treatment under a quota was not confirmed. Lera is still billed for her
treatment at Municipal hospital No.31. Her parents received a new bill for
106,220 rubles.
11.03.2012 Based on the last donor search results,
Kirill Kuzmin has 7 donors at the registry.
It was decided to initiate donor search.
We received a bill for 18,000 euros.
08.03.2012 Anya Burilova
is much better. She goes for equine therapy, but still has GVHD.
01.03.2012 It has been eight months since
Alexander Yudin's BMT. Sasha is followed at
Almazov Federal Center. He feels well and is in remission.
He has signs of skin GVHD and is still on hormonal therapy,
but the doses are being gradually reduced. Vfend is still needed.
01.03.2012 Milana Kuzhenova
finished tests. She has slight skin GVHD and her liver counts are somewhat
elevated. Mila was taken off hormones and her cyclosporine doses are being
reduced. She was prescribed Heptral and Noxafil was replaced by Orungal.
The next round of tests was scheduled for June.
01.03.2012 Irina Redkova
is being followed at Municipal hospital No. 31. She was diagnosed with
cytomegaloviral infection and skin GVHD. She receives appropriate therapy.
01.03.2012 Misha Sogomonyan
comes for photopheresis therapy once a month.
He is stable and feels rather well.
01.03.2012 Vova Polyakov
completed radiation. His blood counts are still low, and re-induction
was not yet started. Vova is at home and studying as a homeschooler.
As soon as he recovers, chemotherapy will be continued.
01.03.2012 Lera Nosova
is undergoing 10-week chemotherapy cycles. It has been 6 weeks since the start.
Lera feels better: she talks, walks, regained her memory and consciousness.
29.02.2012 Denis Vasilashko
is feeling better: he is conscious and no longer on ALV. The transplant is
functioning ok. There are some positive dynamics with cytomegalovirus.
The doctors suspect a fungal infection, which is why Vfend has been
prescribed. As of today the major problems are neurological (resulting
from a neurological infection). Denis is working with massage therapists
and a speech therapist.
29.02.2012 Artur Geroev
is monitored at the day patient facility. A while ago he felt fine but
then about a month ago he had a high fever, and he has had it ever since,
which is why he is feeling very weak. The puncture testifies to a remission,
no infections have been found, no signs of a GVH reaction either, so the
reasons of the fever remain unclear and there will be more examinations.
Artur is taking a broad spectrum antibiotic and Biseptol.
29.02.2012 Nikita Vasiliev
has recovered after his 14th chemotherapy course. The follow-up examination
in St. Petersburg (City Hospital 31) is scheduled for July. Nikita has turned
14 years old.
29.02.2012 Katya Yastrebova
is monitored at the day patient facility. Her condition is stable, she's
administered Vfend and Exjade. No platelets transfusions, only erythrocyte
mass once a week. Thanks to Cerebrolysine and Unbichinon the pain in the
back has decreased, Katya is feeling better and can be more active.
She still needs diapers (size 5). The date of the transplantation
hasn't been set yet.
29.02.2012 Danya Zenevich
has been diagnosed with retinal detachment in one eye, and the eyesight
in the second eye is deteriorating too. The reasons of retinal detachment
are unclear. Most likely the boy will undergo laser correction at the
Pediatric Academy. The basic disease is in remission, toxoplasmosis
tests are negative after a course of antibiotics. Because of the skin
GVH reaction photopheresis has been resumed. Danya is feeling ok and
has no fever, but he is not eating well. His weight is only
sustained by Nutridrink.
29.02.2012 Leonid Sadikov
is feeling fine. The second Bendamustine course went well. Follow-up CT
is scheduled for the beginning of March, based on the results the
doctors will decide if they will continue with the Bendamustine course.
The donor has not been found yet.
29.02.2012 Anya Smirnova
had CT performed and it showed negative dynamics in the lungs. Reasons
are not clear yet. The two possible reasons are lung GVH reaction or
progressing aspergillosis. Bronchoscopy has been performed, the results
are coming in two weeks. The doctors plan photopheresis.
Vfend is still needed.
29.02.2012 Vika Smalyuga
continues with her experimental SGN-35 treatment course at City Hospital 31.
She is doing fine and showing some positive dynamics. The protocol will
take approximately a year. Based on the follow-up CT results the lungs
are clear, Vfend has been canceled.
29.02.2012 Artem Karnishin's
blood counts are normal, the transplant is functioning well, but the skin
GVH reaction has gotten worse, which is why Artem was prescribed photopheresis.
The boy has a low-grade fever all the time.
29.02.2012 This week
Lesha Laptev is having the last injection of
Mabthera, next week is follow-up puncture. Based on its results the
doctors will consider donor lymphocytes transplantation. Lesha still
needs blood transfusions because the platelet and hemoglobin counts
remain low. The boy is feeling ok and eating well, his temperature
is normal too. Based on CT results Ampholip has been replaced with
Noxafil. Lesha is also administered antibiotics, antiviral
drugs and Neupogen.
29.02.2012 Roma Ignatovich
has been discharged to the day patient facility. He has no fever, signs
of the skin GVH reaction are not grave, the boy's appetite has improved.
Because of the hormones therapy he has pains in his legs, but the doses
are gradually decreased. Vfend is still needed.
29.02.2012 Misha Stepanov
has been admitted to the Raisa Gorbacheva Institute of Children's
Hematology and Transplantology for a haploidentical transplantation
from his mother. Transplantation has been scheduled for March 13.
29.02.2012 Sasha Agapitov
has a relapse. On February 1 Sasha was admitted for treatment to the
Raisa Gorbacheva Institute of Children's Hematology and Transplantology
where he was administered a FLAG chemotherapy course. Unfortunately
there is no response. High-dose chemotherapy caused lung aspergillosis,
so Vfend was prescribed. The doctors are considering a haploidentical
transplantation from Sasha's father. The family really needs financial
help to be able to rent an apartment in St. Petersburg.
29.02.2012 Yulia Vodopianova's
platelet and hemoglobin counts continue to fall so she's getting blood
transfusions. Based on the puncture results Yulia is in remission and
there are no blasts, but the transplant is not functioning sufficiently.
Yulia is now administered a number of drugs that stimulate bone marrow,
as well as immunoglobulins and albumin. The doctors are considering
transplantation of donor lymphocytes. Yulia is feeling ok.
29.02.2012 Veronika Nikulina
had a fever, so the fourth chemotherapy course has been postponed and
the girl is now on antibiotics. Also she is administered Meronem,
Zivox, Tazocin, Cansidas and Vfend since she still has bronchitis.
29.02.2012 Anya Andreeva
feels great. She goes to school, walks a lot and makes colorful yarn
flowers. GVHD is under control.
28.02.2012 Nastia Maloryan
will need to undergo 2 cycles of chemotherapy with Vidaza.
One cycle costs 646,000 rubles. She has the money for the first cycle,
but not the second. Please help!
28.02.2012 On February 24-25
Olga Shmygleva underwent the 4th cycle of bendamustine.
It was accompanied by injection of dexamethasone. Olga tolerated it OK.
27.02.2012 Danya Lutokhin
has left 100,000 - 300,000 rubles to raise to pay for BMT.
He will also be billed for six cycles of chemotherapy. The first
bill is for 147,241 rubles.
26.02.2012 Arsen Arustamyan
achieved remission after the first cycle of chemotherapy. Further maintenance
chemotherapy will be discussed, as a donor was not yet found. Arsen takes Vfend.
26.02.2012 Arseny Kuznetsov
lost a lot of weight and suffers from constant nausea as he is receiving high doses
of anti-fungals. Recent anesthesia (for puncture and bronchoscopy) caused him to
lose 2 kg of weight he gained previously with much effort.
26.02.2012 Ruslan Kholmatov
completed the 3rd cycle of chemotherapy and has five more cycles left under
the regimen. He feels rather well.
26.02.2012 Vova Telegin
is undergoing the second cycle of therapy with Atriance. Right after completing
the cycle and recovery of his blood counts, autologous transplantation will
be performed. Volodya feels well.
26.02.2012 After Zhenya Derenchuk's
shunt was removed, he started feeling better. He is now undergoing therapy for diagnosed
staph infection. Afterwards, he is planned to be discharged, as the primary therapy is
completed. He is fed via feeding tube. In the next few days his rehabilitation therapy
will be discussed.
26.02.2012 Nika Baranova
needs Endoxan in 50 mg pills. She would then be able to take maintenance chemotherapy at
home instead of coming to the hospital for IV infusions.
25.02.2012 Vika Fedorina
had a relapse in December 2011. She was hospitalized at Leukemia department
of Children's Hospital No.1 where she started anti-relapse chemotherapy.
After the 2nd cycle she did not have a complete response, and the doctors
decided that BMT is needed. Vika had tests for HLA, and her
brothers (4 y.o. and 9 y.o.) will be typed as well. Typing for one person
costs 15,000 rubles. Only Vika's father can work, as her mom is with
Vika at the hospital. The family has no money even for essentials.
Please help!
25.02.2012 Amir Shataev
will undergo control tests scheduled for March 20th in Germany.
His mom is asking for help with paying for tests and travel expenses.
25.02.2012 Sanzhima Lodoeva
underwent another cycle of chemotherapy. Her oncomarker result is within norm.
She had issues with GI, but feels better now.
24.02.2012 AdVita Foundation initiated fund-raising
for the treatment of Mikhail Belyakov.
23.02.2012 Arseny Provorov
has had five chemotherapy and hormones courses at the local hospital. Three
more are planned. Once the treatment course is over the doctors will consider
a plastic surgery. Arseny is feeling fine and is having fun doing his classes.
23.02.2012 Vladimir Frantsev
is feeling ok. He is being treated for bronchitis at the day patient facility.
His basic disease is in remission.
23.02.2012 Karina Kosareva
still has signs of a GVH reaction of the skin and mucous membranes, which is why
photopheresis was prescribed. The first course went well and is now over, another
one is planned.
Karina is feeling fine, doing classes with teachers at home.
23.02.2012 Nadezhda Garbuzova
is monitored at the day patient facility. She is not feeling well, still having a
GVH reaction of the esophagus mucous membranes. Nadezhda is administered Tacrolimus.
Hepatitis has been overcome. Vfend is still needed.
23.02.2012 Nikita Burenkov
is administered maintenance chemotherapy (RIST protocol), all is going well.
The skin GVH reaction has been coped with, hormones have been canceled.
Nikita's thrombosis is monitored at the Pediatric Academy and there are
some improvements. His basic disease is in remission, but the minimal residual
disease is still there.
23.02.2012 Igor Simonov
is at the day patient facility. He is feeling fine and is administered Entocort
as prophylaxis of intestinal GVH reaction, and also Valcyte since his cytomegalovirus
titer has gotten higher. Sometimes Igor has a fever, which is why he is on antibiotics.
Vfend is still needed.
23.02.2012 Vladimir Davydov
is feeling fine. He is administered maintenance therapy, his basic disease is in
remission. Unfortunately Vladimir has no donors in the international registry.
23.02.2012 Katya Markova
has a lung GVH reaction complicated by an infection. The girl has had a pneumothorax.
At present Katya is being treated at the Raisa Gorbacheva Institute of Children's
Hematology and Transplantology, where she is administered hormones, antibiotics,
Vfend and photopheresis. She is slowly getting better.
23.02.2012 Elena Kozis
is at the day patient facility. She still has signs of a skin GVH reaction.
Protein levels have dropped, so Elena was administered albumin. Cytomegalovirus
titer is still positive, that's why Valcyte hasn't been canceled yet.
23.02.2012 Follow-up puncture for
Oksana Nosik is scheduled for February 27. Based on its
results the doctors with choose between continuing the Tasigna therapy and performing
the second bone marrow transplantation.
Oksana is feeling fine.
23.02.2012 Galima Bolshakova
is feeling fine, follow-up puncture testified to a remission. Since Galima has
glomerulonephritis she is monitored at the Leningrad Regional Clinical Hospital.
Vfend has been canceled.
23.02.2012 Irina Prikhodko
is feeling ok. Thrombophlebitis is gone but Irina still has problems with her joints.
23.02.2012 Danya Lutokhin's
cells have been collected for the autotransplantation, and now he's back to the
children's oncology unit. He will be administered three more chemotherapy courses,
which will then be followed by the bone marrow transplantation. The boy's blood
counts are extremely low but his mood is good.
23.02.2012 Nika Baranova
has had isotopic tests and computed tomography performed, which show that
there are some zones in the girl’s arm and chest that accumulate contrast.
The doctors suppose it might be scar tissue. On Monday maintenance chemotherapy
begins. Follow-up examinations are scheduled after the first four maintenance
chemotherapy courses.
23.02.2012 Anna Mirskaya
is in remission. Skin GVH reaction is treated with Sirolimus. The doctors decided
not to continue with photopheresis. Vfend is still needed. Anna now has sinus trouble,
she is administered the necessary treatment.
23.02.2012 Natalia Kovaleva
came to St. Petersburg for a follow-up examination. She is feeling fine, with
no signs of a GVH reaction.
23.02.2012 Artem Karnishin
is now at the Raisa Gorbacheva Institute of Children’s Hematology and Transplantology
recovering after the transplantation. There are minor signs of a skin GVH reaction.
Since the boy was diagnosed with aspergillosis he was prescribed Vfend.
23.02.2012 Kirill Vazhenin
his mother went to the same clinic in Naples for follow-up examinations and
further treatment.
23.02.2012 Andrei Kazakov
is going to have chemotherapy administered at the Treatment and Diagnostics
Center of the International Biological Systems Institute named after S.M.Berezin.
23.02.2012 Levon Karagezyan
is recovering after the second chemotherapy course. In a week he is having a follow-up
examination, after which the doctors with decide on further treatment strategy.
22.02.2012 Denis Alenichkin
came for planned tests. He is doing well, is in complete remission and has no
GVHD or infectious complications. His blood counts are normal.
22.02.2012 Sasha Obertyuk's
condition is stable and he was discharged for outpatient monitoring.
He receives metronomic chemotherapy. Sasha still has neuropathy and continues
to need Vfend.
22.02.2012 On February 27th
Gosha Makarenko will come for another cycle of
therapy under RIST regimen.
22.02.2012 Vladimir Maslennikov
completed chemotherapy. He has a hard time recovering. Afterwards, he
will have tests at Almazov Center and Mycology Institute.
Based on typing results, his brother, unfortunately, is not a match as a donor.
22.02.2012 Arina Baboshina
is being monitored as a day patient. From time to time she gets blood
transfusions, as her transplant is still not completely functioning.
Noxafil is still needed. It was decided to postpone haploidentical
transplantation and monitor her condition.
22.02.2012 Akop Gulabyan
has acute GVHD with involvement of lungs and skin again. He will have a
consultation with Prof. Afanasiev regarding further treatment.
Vfend is still needed.
22.02.2012 Timur Rudyko
is being followed as a day patient. He receives chemotherapy under
maintenance regimen and feels well. A donor was not found yet.
22.02.2012 Nikita Kirichenko
was scheduled for transplantation for February 29th. In the next few days
he will start pre-transplantation chemotherapy.
22.02.2012 Vika Gladinets
is being monitored at the day hospital. She feels well. GVHD is under
control and her hormonal doses are being reduced. However, she still
shows minimal residual disease. Noxafil is still needed.
22.02.2012 Misha Stepanov
was confirmed to have brain glioma. It was decided against radiation
therapy and for haploidentical transplantation. Hospitalization is planned
for the next week.
22.02.2012 Gleb Bogdanov
feels well. Planned tests confirmed remission and all the results were normal.
The next examination will be in 2-3 months. Noxafil is not yet canceled.
22.02.2012 Arseny Kochukov
had acute GVHD with intestinal involvement. He underwent hormonal therapy
and GVHD was taken under control. The doses of hormones are being
gradually reduced now. Arseny feels well.
22.02.2012 Gleb Kalinyuk
feels well. He is being followed at the day hospital. He continues
chemotherapy under maintenance protocol. A donor was not yet found.
22.02.2012 Vova Gusev
continues receiving regular blood transfusions and therapy with Exjade,
Neoton, and Noxafil. His iron load in blood still does not
allow for transplantation.
22.02.2012 Stas Vasiliev
feels well. He is undergoing maintenance chemotherapy with Purinethol
and Methotrexate.
22.02.2012 Anton Veretennikov
is being monitored at the day hospital. Based on control CT scan, he has
improvement with aspergillosis, but Vfend was not yet canceled.
Anton's hormonal therapy doses are being reduced. The lesions in his
eye are gradually going away.
22.02.2012 Alina Irganova
feels well and is being monitored as an outpatient. GVHD of skin was taken
under control. Hormonal drug doses are being gradually reduced.
Control puncture showed complete remission.
22.02.2012 Adelya Faritova
recovered after transplantation and was discharged for outpatient monitoring.
She has slight GVHD of skin and bronchi. Adelya feels rather well.
Vfend is still needed.
22.02.2012 A donor for
Samira Abdulkhairova was not found.
She continues to take Aldurazyme.
22.02.2012 Nastia Agapitova
started another cycle of therapy, which had to be stopped, as she did
not tolerate it well. She is very weakened and stays in bed.
22.02.2012 Slava Zhikharenko
responded to treatment very well, and he is now undergoing the third
cycle of chemotherapy with ribomustine and revlimid. He tolerates it well,
but his liver and spleen got enlarged.
22.02.2012 Igor Zhuikov
was diagnosed with squamous cell carcinoma. A therapy was not selected yet.
Igor is also continuing treatment for chronic GVHD of kidneys and skin with
immunosuppressive drugs. Igor does not feel very well and lost a lot of weight.
22.02.2012 Andrei Kazakov
was diagnosed with a relapse during scheduled tests. Chemotherapy and
hospital to administer it are being discussed.
22.02.2012 Maxim Merkulov
is continuing therapy under a clinical trial protocol as an outpatient.
He tolerates it well. Based on control CT scan he has improvement.
22.02.2012 Gennady Makeev
is still receiving maintenance chemotherapy and Sprycel that is still
available at the hospital. He feels well.
22.02.2012 Tatiana Kostrikova
was diagnosed with hypofunctioning transplant and she received lymphocyte
infusion from her brother. She has no signs of GVHD. Tatiana feels well.
Vfend is still needed.
22.02.2012 Sergei Sharov
was diagnosed with a neoplasm near skull base, which is suspected to
be an extramedullary relapse. He was referred for radiation therapy
at Leningrad Regional Clinical hospital.
22.02.2012 Oleg Pershikov
recovered with blast cells after transplantation. He and his parents
decided to stop further therapy and return home.
22.02.2012 Sasha Ustinov
got new blast growth in his peripheral blood. Today Sasha was consulted
at Gorbacheva Institute and on February 27th he will be hospitalized
for anti-relapse chemotherapy. Sasha and his sister will be typed,
as bone marrow transplantation is being considered.
22.02.2012 Igor Mishin
began recovering post-transplant. He is exiting cytopenia. Igor had signs
of veno-occlusive liver disease that were controlled. He has no GVHD symptoms,
but was diagnosed with lung aspergillosis and was prescribed Vfend.
22.02.2012 Denis Trufanov
is still on maintenance chemotherapy. Unfortunately, minimal residual
disease indicators are on the rise.
22.02.2012 Milana Kuzhenova
came in for planned tests. She feels well.
22.02.2012 Denis Osokin
came in for planned tests. He feels well and his test results are normal.
Vfend was canceled.
22.02.2012 Stas Pryakhin
underwent another cycle of chemotherapy and is now in cytopenia.
He has severe mucositis and it is painful for him to eat and speak.
Stas has fever and headaches. He can only eat baby food for now.
22.02.2012 Alexander Bonapartov
is undergoing the 2nd cycle of chemotherapy at Alexandrovsky hospital.
He feels rather well. A donor was not found yet.
22.02.2012 Katya Larionova
completed therapy with antibodies and RIST chemotherapy without significant
response. She then started new regimen that she tolerates much better and
had an improvement. The next examination is scheduled for March.
20.02.2012 We are sincerely grateful to Russian Help Fund
for their decision to open fundraising for donor search and medications for
Ivan Efimov. Therefore, we need to raise 2500 euros for
delivery of transplant.
20.02.2012 We are sincerely grateful to Russian Help Fund
for their decision to open fundraising to pay for special equipment needed to process
donor's transplant and medications needed for transplantation for
Nikita Kirichenko, as well as Grant Life fund for helping
pay for courier's tickets. The remaining amount for delivery was donated by AdVita
Fund's donors.
20.02.2012 We are sincerely grateful to Russian Help Fund
for their decision to open fundraising for Vlad Kitaisky's
treatment at Harley Street Clinic.
20.02.2012 Varya Vlasova
is at the hospital where she is treated for CMV. Her transaminase counts improved right
away. The last test for CMv was negative and her blood test was normal. Varya is
continuing maintenance chemotherapy.
20.02.2012 Lera Bryukhacheva
is now at the hospital where she is coming out of cytopenia. The 4th cycle of
chemotherapy is planned. She feels rather well.
20.02.2012 Stas Shamayev
had a late response to Atgam therapy: all blood counts recovered and within norm.
Stas feels well and no longer needs blood transfusions or further therapy.
20.02.2012 Vika Smirnova
feels well. Based on test results, her lungs are clear and breathing volume is normal.
Vika is completing the 4th chemotherapy cycle. On February 28th she is scheduled for
free radioisotope study at Municipal hospital No.31. In the last two months Vika gained
2 kg and grew much taller.
19.02.2012 Marina Alyushina
is doing well. She is at home. At the end of January she was in St. Petersburg
for tests. All the results are normal. She is continuing to take medications,
including Vfend. The next round of tests will be at the end of April.
15.02.2012 Nika Baranova
is undergoing the 8th cycle of chemotherapy. Afterwards, evaluation is
planned followed by transfer on maintenance chemotherapy. Nika did not
tolerate previous cycle well.
15.02.2012 Zhenya Derenchuk
underwent two more surgeries to install a shunt, but since CSF drainage is
still inadequate, a third surgery may be needed. Based on histology results,
the tumor transformed into a benign teratoma, and doctors believe it
does not require radiation therapy. Due to accumulation of CSF Zhenya
does not feel well, in fact, worse than after the first surgery.
15.02.2012 Igor Karev
completed the 4th cycle of chemotherapy and was transferred to the Russian
Academy of Sciences hospital that has blood transfusion unit.
Igor's family has no means even to afford food. We are asking for
urgent support. Upon his recovery after the 4th cycle, high-dose
chemotherapy followed by autologous bone marrow transplantation at
Petrov Oncology Institute are planned.
15.02.2012 We received a bill for prepayment for
Danil Lutokhin autologous transplantation for 700,000 rubles.
The total amount is expected to reach 1 million rubles.
15.02.2012 AdVita Foundation initiated fund-raising
for the treatment of Lera Nosova and
Ulyana Popova.
14.02.2012 To complete treatment,
Vlad Kitaisky needs to pay 82,050 pounds
to Harley Street Clinic. The debt for therapy already received
is over 13,000 pounds. Please help!
13.02.2012 A donor was found for
David Arshakyan! Today David completed the 7th cycle of chemotherapy.
Transplantation is being planned once the 8th cycle is completed. Since David is paying
full cost of therapy, he needs help with paying off his debt for the donor search (10,000 euros)
and paying for delivery of transplant (2500 euros), as well as covering the bills for treatment.
Please help!
13.02.2012 Natalia Shramenko
is now at home. She periodically checks into the hospital for maintenance chemotherapy
and blood transfusions. She feels rather well. The first installment was not yet
transferred to the registry.
13.02.2012 Ulyana Popova
is monitored as a day patient and goes for tests twice a week. Based on a
puncture results, she is in remission and has no GVHD symptoms. Vfend is
still needed. Ulyana feels well.
13.02.2012 Denis Vasilashko
was diagnosed with encephalitis along with CMV. He was put on a ventilator
and transferred to ICU where he receives appropriate therapy.
12.02.2012 Evgeny Shumakov
is continuing maintenance chemotherapy in Tula. Evgeny feels OK, but is very
fatigued and it is becoming more difficult for him to work.
A donor search was initiated.
11.02.2012 Dina Zvereva's
transplantation was scheduled for March 28.
11.02.2012 Lesha Laptev
was prescribed therapy with MabThera to stimulate donor's bone marrow function
(an injection every month). His blood counts are still low and he needs continuing
blood transfusions. Lesha also receives Ampholip, Tazocin, Leukostim and Albumin.
He feels relatively well and has no fever.
11.02.2012 Angelina Garanina's
third chemotherapy cycle was interrupted due to complications, and therapy was
resumed on January 10th. Afterwards, Gelya was recovering for a very long time.
Based on control tests, she is in complete remission. In addition, Gelya's parents
were able to get Russian citizenship, so all subsequent treatment (3 more cycle are
planned) will be administered based on a quota. A bill for the 3rd cycle has not
been issued yet. The therapy is planned to be completed in April 2012, after which
prosthesis installation will be discussed.
11.02.2012 It has been 220 days since
Anton Veretennikov's transplantation. He feels well, and
steroid dosage is being gradually reduced (he will be taking them for another 4-6 weeks).
Based on ophthalmologist's evaluation, Anton's vision in the right eye is practically
completely recovered, although he still has foci in his left eye. Anton started seeing
objects far away and his side vision expanded as well. Vfend is still prescribed.
Based on puncture results, he is in remission and has no GVHD symptoms.
11.02.2012 AdVita Foundation initiated fund-raising
for the treatment of Evgeny Konovalov.
10.02.2012 Elena Adamyants's
Eppstein-Barr viral load began to decrease. For now, she does not need
intensive therapy with MabThera. Elena continues taking nilotinib
and hormonal therapy. She exercises and goes for walks.
09.02.2012 Lera Bychkova will
undergo a cycle of chemotherapy in Germany. Unfortunately, antibodies stopped
containing tumor growth and new lesions were found.
08.02.2012 Danya Lutokhin
was transferred to BMT unit of City Hospital No.31 for harvesting of
stem cells for autologous bone marrow transplantation. Based on PET results,
remission was confirmed.
08.02.2012 Vova Gusev
has very low blood counts, and he lives only thanks to blood transfusions.
It was decided to perform repeat transplantation, but before it is possible
ferritin levels need to come down. To achieve that Vova's Exjade dose was
increased. He also still has cardiac problems, and after consulting
cardiologists it was decided to repeat Neoton therapy.
Noxafil is still needed.
08.02.2012 Based on
Danya Zenevich's MRI results, no lesions were seen,
but the vision in his left eye has not recovered and the reason for that
is unclear. His platelets are still low. Skin GVHD is under control,
but unfortunately, planned tests for infections discovered toxoplasmosis
and Danya is now receiving appropriate therapy. He feels rather well and
is being treated as a day patient.
08.02.2012 Timur Rudyko
underwent all cycles of high dose chemotherapy. After recovering,
he was discharged and now receives therapy under maintenance regimen
as a day patient. He feels well and is in remission.
A donor was still not found.
08.02.2012 Leonid Sadikov
had a cold and the second cycle of ribomustine was moved to another week.
08.02.2012 Oksana Nosik
is now taking Tasigna. Control tests are scheduled for late February.
Based on evaluation results, repeat transplantation will be considered.
08.02.2012 Anya Smirnova
feels well. Her blood counts are normal and she is in remission,
based on puncture results. Skin GVHD is still present.
Anya receives CellCept and Advantan. Vfend is still needed.
08.02.2012 Yulia Vodopianova
is being monitored as a day patient and receives hormonal therapy for skin GVHD,
Vfend and Entocort. CMV infection was taken under control. Based on
puncture results, she is in remission. Donor's bone marrow s functioning well,
but in the last CBC lower platelet count was observed, and a puncture
was repeated. The results of it are not yet ready. Yulia feels well.
08.02.2012 Roma Aseev
had two episodes of severe seizures. He is now in ICU on a ventilator
with severe bilateral pneumonia. He receives therapy with Ampholip and
wide spectrum antibiotics. He also has symptoms of mechanical intestinal
obstruction, but surgery is not possible at this time. His platelets are
low and blood transfusions are needed. Roma is in a serious but
stable condition.
08.02.2012 Maxim Rybakov
is continuing therapy for fungal infection as a day patient at Children's
hospital No.1. Maxim feels rather well, although his blood counts
went down and he needed blood transfusions. He is improving in regards
to zygomycosis. Based on CT scan results, the middle lung lobe began
functioning and the lower lobe is scarring gradually. All the antifungal
drugs are needed in the same doses.
08.02.2012 Anya Andreeva
had a very good response to photopheresis. GVHD was taken under control
and her skin is almost all healed. Anya is now at home and feels well.
Noxafil is still needed.
08.02.2012 On February 6th
Alla Korotich was transplanted from her mom.
On February 8th she had stem cell infusion. She is now in cytopenia,
in a stable condition. She feels OK.
08.02.2012 Volodya Maslennikov
is undergoing another cycle of chemotherapy that will be followed by tests
and discussion of further treatment.
08.02.2012 Eva Shaver
had a relapse. She is hospitalized at Alexandrovsky hospital.
08.02.2012 Aldurazyme, a medication that
Marusya Li vitally needs, is now subject of
re-registration and it will not be available in Russia at least
until March. Advita Fund was able to find and buy 3 bottles of
Aldurazyme for injection next week, but there will be no medication
available in the country afterwards.
08.02.2012 After bone marrow transplantation,
Zhenya Zavorotynsky had severe GVHD and he
received intensive therapy. GVHD is now under control, but percentage
of donor's cells in bone marrow plummeted, and on February 1st
Zhenya received donor's lymphocyte infusion to stimulate donor's
bone marrow. Hemoglobin and platelet counts are low, and Zhenya
is on constant blood transfusions. He receives immunoglobulins,
Cymevene, Albumin and Vfend.
08.02.2012 Olga Shmygleva
had to postpone chemotherapy for some time, as her condition worsened
drastically due to respiratory infection (pneumonia is suspected) and
herpes infection.
The whole month of January she had high temperature, fatigue, shortness of
breath and tachycardia. Olga's blood tests were showing high levels of
bacterial infection. She underwent therapy with 3 antibiotics.
She now feels better.
08.02.2012 Almira Tashmetova
and her parents are now in Israel and her mom is due to give birth soon.
If cord blood will be a match, Almira will undergo bone marrow transplantation.
The funds for Almira's transplantation in Israel are being raised by
Happy World fund.
08.02.2012 A donor for
Elena Krapivnitskaya was found.
Transplantation was scheduled for March 1.
08.02.2012 Dima Chukreev
had activation of hepatitis C. It had caused reduced transplant function.
Therapy with Roferon A was started. The hospital does not have it in stock.
08.02.2012 Veronika Nikulina
completed the 3rd cycle of anti-relapse chemotherapy. She is not tolerating
it well, as her mouth was affected and she had strong cough. Based on test
results, she was prescribed Cancidas. The duration of therapy will depend
on Veronika's response. She is now in cytopenia and gradually recovering.
08.02.2012 Gera Efimov
is practically always at the hospital (Tyumen Regional Children's Clinical hospital).
Every 5 days he gets blood transfusions, as he is not producing his own blood cells.
Until the time a donor is found, Gera will have to be hospitalized. A donor search
was paid for in full, but a donor was not found yet.
08.02.2012 A donor for Katya Emelyanenko
was not found yet, but a search is under way. About once a month, Katyusha gets
hospitalized for tests and blood transfusions.
06.02.2012 Varya Vlasova
has been examined at the Children's Infections Institute and diagnosed with acute
cytomegalovirus hepatitis. Treatment has been prescribed.
06.02.2012 Sasha Ustinov
had a cold in January so the puncture wasn't performed. The December puncture
showed 1.6% of blasts and normal blood counts.
06.02.2012 Volodya Polyakov
is done with the basic chemotherapy course. On December 23 he was discharged from
Children's City Hospital 1, and on January 12 he started with the radiation therapy
course at the Petrov Oncology Research Institute. The boy has had 12 sessions so far
and is going to have three more. Volodya is not feeling well, he has no appetite and
feels sick. He has lost a lot of weight too.
06.02.2012 Anya Korol
was done with the basic chemotherapy course back in November and then had a 2-weeks'
radiation therapy course at the Radiology Institute in Moscow. She did fine during the
treatment course itself but back at home she had a complication: otopyosis. Anya had to
spend two weeks at the Regional Hospital. 10 days ago the girl was finally discharged but
she will be administered treatment at home too. Anya is very weak, but she did have a birthday
party last Saturday, February 4! The girl turned 4.
06.02.2012 Zhenya Derenchuk's
condition is stable, he is conscious and can eat himself. The doctors are monitoring
the spinal fluid drainage.
06.02.2012 Fedya Bolshukhin
is still on ALV since the boy is too weak to breathe on his own.
06.02.2012 Danil Lutokhin
mother had to leave for Kazakhstan because her permit for stay in Russia had not
been prolonged, so she had to cross the Russian border again. Danya is now with his
father. His mother will come back as soon as she possibly can.
06.02.2012 Sasha Zipenkov
had a medical examination in Essen, everything is fine. Unfortunately he didn't have
the genetic research performed (it costs 1,500 euros) but it was scheduled for June.
For the first time ever the German doctors allowed him to come for the next examination
in half a year. Sasha got a glass prosthesis in Germany, but as soon as he came back home
he broke it and had to get a plastic one made in Russia.
06.02.2012 Vika Smirnova
is feeling fine. Since she still has liquid in her lungs she had a bronchoscopy performed,
and the punctate has been submitted for analysis. Tomorrow Vika is going to the Rauhfus
Hospital to see the pulmonologist who is going to test her respiratory function.
06.02.2012 Marina Alyushina
was in St. Petersburg for planned tests. All is well.
She still needs Vfend therapy.
06.02.2012 Natalia Kovaleva
is at home. She continues taking Vfend and feels well.
Natalia is in remission.
06.02.2012 It has been more than 6 months since
Olga Kelyina's transplant. She feels well and does not
have GVHD. Tacrolimus was canceled, as all Olga's blood counts are normal.
She has complete donor's chimerism and is in remission. The next round of
tests was scheduled for February 13th. Olga still needs help with buying Mycosyst.
05.02.2012 It has been over 8 months since
Elena Plis's transplantation. The recent
puncture had good results. Her blood tests show elevated liver
transaminase and she has slight skin GVHD. Elena also has
swelling in her feet and fatigue, but she is feeling positive.
05.02.2012 Diana Mishukova
underwent tests that showed improvement. She is slightly sick, but other
than that feels well and is in a good mood. The third infusion of
chemotherapy is scheduled for tomorrow.
02.02.2012 Fedya Bolshukhin's
condition is very slowly improving. He is now receiving water and special
nutrition that is digested in an unaffected part of intestine and drains
via colostomy. The doctors are hoping to take Fedya off the ventilator soon.
At the post-surgical wound Fedya developed a fistula through which necrotic
tissue fragments are passing.
02.02.2012 Zhenya Derenchuk
was operated and the tumor was removed almost completely. Surgery was
extremely difficult and Zhenya lost a lot of blood.
He is now in ICU and is stable.
02.02.2012 Olya Bogatova
is at the Infectious Unit of Children's Hospital No.1 due to a cold
with high fever. She is already feeling better and temperature is gone.
02.02.2012 Danya Lutokhin
is preparing for harvesting of stem cells for autologous transplant.
02.02.2012 Lera Bryukhacheva
received registration in St. Petersburg is now treated at City Hospital No.31
under a quota. Lera is now at home, on a break from chemotherapy until
February 8th. She feels well, is developing according to her age and will
soon get her first teeth.
02.02.2012 Ruslan Kholmatov
is continuing the 3rd cycle of chemotherapy and he feels well.
01.02.2012 Nikita Vasiliev
underwent tests. All is well, except for slight cardiac dysfunction.
Chemotherapy was extended for another 6 months. Nikita started 7th grade
classes. He successfully passed 6th grade exams in December.
01.02.2012 Leonid Sadikov
completed the first cycle of ribomustine. He feels relatively well.
He needs to buy medication for the 2nd cycle (in total, 4 cycles are planned).
A donor was not found yet.
01.02.2012 Roma Ignatovich
is recovering after transplantation. His blood counts are growing and
he started eating. He has no fever or symptoms of GVHD. Roma still
needs help with paying the bills for the medications that were needed
for transplantation and post-transplant period: Atgam, Mileran, Tavanic,
Tazocin, intravenous Vfend and Noxafil. Total debt for the medications
is 364,570 rubles. Roma's mom is also asking for help with
buying nutrition Modulen.
01.02.2012 Lesha Laptev's
donor's bone marrow percentage rose to 80%. On January 31st Lesha underwent
donor's lymphocyte infusion to stimulate donor's transplant function.
His blood counts are still very low. Lesha is continually receiving blood
transfusions. He feels rather well, but barely eats, and his temperature
rises in the evenings. New lesions appeared in his lungs, likely of
fungal nature. Vfend was temporarily replaced by Ampholip.
Lesha also takes Octagam.
01.02.2012 Adelya Faritova
is in 42nd day post-transplant. Her blood counts are good and she no longer
needs blood transfusions, but her temperature is elevated. Adelya takes
antibiotics and Vfend. She has no GVHD symptoms.
31.01.2012 Lyudmila Krasikova
was diagnosed with insufficient transplant function. She needs donor's
lymphocyte infusion. Infusion was scheduled for February 24th. We urgently
need to raise 2,500 euros for delivery of transplant.
31.01.2012 Sanzhima Lodoeva
feels well overall, and her legs no longer hurt or swell, except for
occasional bone aches. Her physician recommended another chemotherapy
cycle for February 17th. Sanzhima needs Paclitera and it costs 30,000 rubles.
Please help!
30.01.2012 Roman Belsky
responded very well to FLAG regimen and achieved remission. Hospitalization for the
second cycle of FLAG is planned for January 31. Based on preliminary search, Roman
has 11 potential donors at the international registry, and after a consultation with
specialists at R. Gorbacheva Institute, it was decided to initiate a search for the
matching donor. A bill will be issued shortly.
30.01.2012 Evgeniy Ostrovsky
is being monitored by hematologists in Vologda. Once a month he comes for tests
to St. Petersburg. Based on the last puncture, he is in remission, with 100% donor's
bone marrow engraftment. However, he is now having a fever, the reason for which is
being clarified. Vfend is still needed.
29.01.2012 A donor for Victor Didenko
was found, and transplantation was preliminarily scheduled for March. There are funds for
delivery of transplant, but close to 6000 euros need to be paid to the registry of donors.
Prior to transplantation, Victor will undergo scheduled chemotherapy.
29.01.2012 Sergei Sharov
was diagnosed with paralysis of throat muscles that causes difficulties with swallowing.
The reasons for that are being clarified. He is in remission and has no symptoms of GVHD.
Noxafil is not yet canceled.
29.01.2012 Vladislav Lanskikh
successfully underwent bone marrow transplantation, but unfortunately during planned
tests he was diagnosed with a relapse. He is now undergoing chemotherapy at Almazov
Heart, Blood and Endocrinology Federal Center. Repeat transplantation from his brother
is planned. Noxafil is still needed.
29.01.2012 Natalia Zelenevskaya
is undergoing the 5th cycle of chemotherapy. Based on CT results as of January 13th her
tumor lesions had shrunk. One more chemotherapy cycle is planned, to be followed by
evaluation and discussion of further treatment.
29.01.2012 A week ago, Konstantin Shushlin
was hospitalized by ambulance to Djanelidze Emergency Research Institute due to intestinal
bleeding. On Friday he was transferred to R. Gorbacheva Institute. His blood counts are
critically low. He is receiving intensive therapy. The reason for the bleeding is not yet
determined. On Monday, puncture results should be ready.
29.01.2012 Alexei Konovalov's
transplantation was moved to mid-January for reasons unrelated to the clinic.
During evaluation prior to transplantation, Aleksey was diagnosed with blast crisis.
He is now undergoing chemotherapy under FLAG protocol at Gorbacheva Institute.
29.01.2012 Unfortunately, Oleg Pershikov's
evaluation prior to transplantation discovered a relapse. However, it was decided to not delay
transplantation and perform it as scheduled. Oleg is now in cytopenia and recovering.
29.01.2012 Igor Zhuikov's
facial growth is getting larger. Based on results of two biopsies, he has contagious
mollusk that has not responded to any of the therapies yet.
29.01.2012 Unfortunately, Daniil Ryabov's
planned tests discovered a relapse. On Monday Daniel will start chemotherapy under
FLAG regimen.
29.01.2012 Petr Mikhailov
had tests in January at Vladimirsky Regional Clinical Research Institute in Moscow where
he was diagnosed with an aggressive relapse with CNS leukemia. On January 26th Petr was
hospitalized at R. Gorbacheva Institute in a critical condition. He started anti-relapse
chemotherapy.
26.01.2012 Svetlana Kotova's
viral encephalitis was taken under control thanks to Octagam. Svetlana is
now better, and of her complications, the most problematic is severe mucositis.
She can barely eat and is in a lot of pain. She is in remission.
26.01.2012 Lyubov Subbotina's
transplantation took place today. Lyubov is now recovering. She still owes
registry for the donor search.
26.01.2012 Equipment for haploidentical transplantation for
Alla Korotich was purchased. She started pre-transplantation
chemotherapy. Alla feels relatively well.
26.01.2012 Denis Vasilashko's
transplant engrafted. He is in remission. However, he had serious issues with
liver, the cause of which could not be determined for a long time.
The right therapy has been found eventually, and Denis's bilirubin went down.
26.01.2012 David Arshakyan
is completing the 6th cycle of chemotherapy under HyperCVAd regimen.
He is in remission. A donor search is continuing. David really needs
help with paying for the treatment.
26.01.2012 Igor Mishin
is in the 4th day post-transplant. He still owes the registry
for the new donor search.
26.01.2012 Stas Pryakhin
needs Sprycel. The hospital is currently out of it, and applying for a
federal quota can take several months. Medication will have to be purchased
privately during that time. A pack of the medication that lasts a month
costs 200,000 rubles. Please help!
25.01.2012 Danya Zenevich
had drastic loss vision in one of his eyes. MRI is scheduled for tomorrow.
His hemoglobin and platelet counts are low still, and in addition Danya continues
having chronic skin GVHD. He is in remission. Noxafil was replaced by Vfend again.
25.01.2012 Varya Vlasova
feels well. She regularly comes for tests and undergoes maintenance chemotherapy.
Her liver indicators are stable now. Until February 15th Varya and her mom are staying
at Rehabilitation Center in Olgino.
25.01.2012 Vika Smirnova
underwent the third cycle of chemotherapy and she feels rather well. CT scan showed
reduction of tumor mass, and she only has one of four previously seen lesions remaining,
which has fluid in it. In 2-3 weeks Vika will undergo repeat CT scan and further
treatment will be determined.
25.01.2012 The clinic in Israel billed
Egor Moskalenko $48,815 for
plastic surgery of larynx.
24.01.2012 Zhenya Derenchuk's
condition worsened. It was decided to perform surgery followed by radiation
therapy. Surgery will take place at Burdenko Neurosurgery Institute in Moscow,
under federal quota. Zhenya can only travel by ambulance. Cost of
transportation is 72,000 rubles. Please help!
24.01.2012 Danya Lutokhin
underwent second cycle of chemotherapy. Based on PET, there is significant
improvement, as cells accumulate less contrast.
24.01.2012 Vova Telegin
feels well. He is now at the hospital where he had a cycle of chemotherapy
with Atriance. Once more cycle is planned. One cycle of Atriance costs
220,500 rubles. Vova is responding very well to Atriance. His blast
count dropped to 5% from 90%. To strengthen results, Vova needs DepoCyt
which will need to be imported. Tepadina, drug for transplantation,
was paid by AdVita fund using donations sent to all patients.
24.01.2012 Ruslan Kholmatov
is undergoing the 3rd cycle of maintenance chemotherapy. He feels well.
Ruslan can now speak Russian on a good level and he plays with other kids.
24.01.2012 Lera Bryukhacheva
completed the 3rd cycle of chemotherapy and her blood counts plummeted.
She receives hypoallergenic formula HAH. Lera's mom is asking for help
with buying diaper of size 3.
24.01.2012 Akop Gulabyan
feels much better. Cellcept was canceled, but Vfend is still needed.
Akop was discharged for outpatient monitoring.
24.01.2012 Dasha Nekozyreva
underwent planned tests. She is in remission, feels well, and skin GVHD
is under control. It was decided to keep Dasha on low doses of hormonal
therapy and Gleevec for some more time. Dasha returned home.
24.01.2012 Denis Trufanov
feels well and his blood counts are fine. However, he again shows signs
of minimal residual disease. If there is a progression, a new therapy
will be discussed. A matching donor was not found yet.
24.01.2012 Diana Vaschenko
is being transferred for monitoring and treatment at Pediatric Hematology,
Oncology and Immunology Center in Moscow. Planned tests showed that her
brain tumor is unchanged. Decision regarding therapy with cladribine
was not made yet. Diana feels well despite symptoms of developing
steroid diabetes. She is receiving appropriate therapy.
24.01.2012 Igor Zhuikov
was diagnosed with sepsis during an intestinal infection and he received
appropriate therapy. He is now in a stable condition and was transferred
out of ICU.
24.01.2012 Marina Devyatkova
successfully completed planned tests and photopheresis sessions and
returned home. The next session and tests are scheduled for March.
Marina feels well.
24.01.2012 Serezha Popov's
condition is unchanged. He is still on a ventilator with signs of kidney
failure, in a serious condition.
24.01.2012 On January 5th
Nika Baranova started the next chemotherapy cycle.
Her blood counts are still low, although she feels relatively well.
Nika's dad came to see her. Nika's parents plan to stay in St. Petersburg
during the maintenance chemotherapy. They rented an apartment and Nika's dad
is looking for a job in St. Petersburg.
20.01.2012 Natasha Nikitina's
disease is progressing. The old lesions grew, and multiple new lesions appeared.
Nevertheless, Natasha feels OK, although she takes analgesics at times. She
plans to go see her oldest daughter Lidochka, while she leases her apartment
in St. Petersburg.
19.01.2012 Due to appearance of blast cells in bone marrow,
Irina Redkova was taken off immunosuppressive drugs
and administered donor's lymphocyte infusion. As a result, she achieved remission.
Irina is under doctors' monitoring. Twice a week she goes for blood tests.
She has skin, eyes and mouth GVHD symptoms.
19.01.2012 On December 21, 2011
Adelya Faritova underwent bone marrow transplantation.
Adelya feels pretty well, and control puncture showed complete engraftment
of bone marrow, although there are symptoms of hemorrhagic cystitis.
18.01.2012 AdVita received an invoice for
Lera Bryukhacheva's treatment for 264504.19 roubles.
18.01.2012 AdVita received an invoice for
Ruslan Kholmatov's treatment for 107865.37 roubles.
18.01.2012 Arina Baboshina
is at the day patient facility, the date of the transplantation has not been
chosen yet. She is feeling ok. The girl still needs Noxafil.
18.01.2012 Anya Burilova
still has a chronic skin GVH reaction. She does hippotherapy and there is
progress in the treatment of acrocontracture, and her mood has improved
greatly too. The girl does very well at school.
18.01.2012 Serezha Popov
condition has become a lot worse, the boy is now on ALV and there are signs
of a kidney failure.
18.01.2012 Almira Tashmetova
is in Israel where she's had a medical examination but not all results are ready yet.
Based on the results the doctors already have they say that the
remission is "formal" and not stable. Additional tests are required.
18.01.2012 Karina Kosareva is at the
day patient facility with an eye GVH reaction, she's administered CellCept. The AIF
Dobroe Serdtse fund provided Karina with Vfend until the end of January. Starting from
February AdVita will resume raising the funds for Vfend for Karina.
18.01.2012 Roma Ignatovich had the
bone marrow transplantation performed as planned, everything went ok, Roma is now
in cytopenia. The girl still needs Noxafil.
18.01.2012 Katya Yastrebova
is at the day patient facility getting blood transfusions. The doctors are considering
the second bone marrow transplantation.
18.01.2012 Vladimir Maslennikov
is done with another maintenance chemotherapy course, he is feeling fine. The
decision on the bone marrow transplantation hasn't been made yet.
18.01.2012 Sasha Novokreschenov
is at home feeling great. The examination has been rescheduled to a later date.
18.01.2012 Stas Vasiliev
is feeling ok, the treatment is going as per the protocol. There were problems with
the venous access, so a "deep venous line" catheter was installed.
18.01.2012 Anya Andreeva
had a medical examination performed and photopheresis administered. She went back
home feeling fine. Noxafil hasn't been canceled yet.
18.01.2012 Anton Veretennikov
is still at the day patient facility, the doses of hormones are being
reduced gradually. The boy is feeling fine. Vfend hasn't been canceled yet.
18.01.2012 Alina Irganova has
fully recovered after the transplantation, discharged from hospital and transferred
to theday patient facility. The signs of a skin GVH reaction are still there butthe
response to the Enbrel therapy is quite good so the hormone doses are now
being decreased.
18.01.2012 Yulia Vodopianova
is still in hospital struggling with the cytomegalovirus. Vfend is still needed.
18.01.2012 Igor Kechkin
developed acute neurologic symptoms including impaired states of consciousness.
MRI revealed a focus in the brain so Igor has urgently been transferred to the
Polenov Research Institute for a diagnostic surgery and biopsy.
18.01.2012 Igor Zhuikov
got into intensive care, the reasons why his condition got dramatically worse
are to be found yet.
18.01.2012 Nikita Vasiliåv
has had a follow-up examination at City Hospital 31, everything is fine.
18.01.2012 Based on the matching results
Veronika Nikulina's brother can be her donor! There
is a potential problem with the weight difference between Veronika and her
younger brother,because the number of cells the doctors will be able to collect
from Misha might not be enough for the transplantation. Veronika is now
administered the second anti-relapsechemotherapy course, and altogether
there is going to be six of them. Once she's done with all of them Veronika
is going to have a full examination, and the doctors will consider a bone marrow
transplantation.
18.01.2012 Unfortunately, planned tests discovered that
Stas Pryakhin had a relapse. Stas will be hospitalized at
City Hospital No.1 for anti-relapse chemotherapy with Sprycel and several medications
that will be administered intrathecally due to signs of CNS involvement. Depending on
response, possibility of transplantation will be considered. Unfortunately, there are no
fully matching donors at the international registry.
17.01.2012 Elena Adamyants
feels rather well, but she was discovered to have Epstein-Barr virus
infection and suspected arthritis of hands. Elena receives appropriate
therapy and goes for regular tests.
17.01.2012 Diana Mishukova
completed a cycle of chemotherapy and radiation therapy. She feels rather well.
16.01.2012 Svetlana Kotova
developed an infectious complication. The doctors suspect viral neural
infection. There are also symptoms of toxic damage to liver. Sveta
is now in ICU where she receives appropriate therapy.
Blood counts are still low.
16.01.2012 It has been a year since
Lilya Klepikovskaya's transplantation!
She is doing well. She is supplied with Vfend by Grant Life fund.
16.01.2012 Nikita Burenkov
continues therapy for thrombosis and will be monitored by surgeons at
Pediatric Academy. He is in remission. Skin GVHD is progressing slightly,
but is controlled by hormonal therapy. Russian Help Fund provided Nikita
with Vfend for 4 months.
16.01.2012 Maxim Rybakov
still needs full doses of Ampholip and Noxafil. He feels well.
15.01.2012 Fedya Bolshukhin
is on a ventilator and receives all necessary treatment, but is still in a critical
condition. Unfortunately, he developed bedsores. As his blood counts are more stable,
the doctors allowed turning him over every two hours to heal existing bedsores and
prevent appearance of new ones.
15.01.2012 Lera Bryukhacheva
rested at home until January 8th. She then returned to the hospital and resumed
chemotherapy. She feels great and her tummy is almost not enlarged. Lera is learning
to crawl and tries very hard. She is making progress.
15.01.2012 Zhenya Derenchuk
completed the 4th cycle of chemotherapy. With his dad's help he tries to get up
and walks a little. In the next few days further treatment will be discussed.
Radiation therapy is being considered.
15.01.2012 Just before the New Year, Ruslan Kholmatov
was allowed to spend a few days outside the hospital. Ruslan was very happy and felt great!
On January 10th Ruslan returned to the hospital to continue therapy.
13.01.2012 Igor Karev
returned to St. Petersburg and continued his treatment at Berezin Institute.
He is undergoing the 3rd cycle of chemotherapy. If his blood counts allow,
he will start the 4th cycle right after.
Igor feels well and his temperature is normal.
12.01.2012 Nastia Pogrebnaya
is still at the hospital. Based on control puncture, bone marrow engrafted,
but she developed serious complications. She receives appropriate therapy.
12.01.2012 Danya Zenevich
is being monitored as a day patient. His skin GVHD is improving. Danya receives
therapy with Enbrel and CellCept, as well as hormonal therapy. Noxafil is still needed.
12.01.2012 Based on Lesha Laptev's
control puncture, percentage of donor's bone marrow increased somewhat, to 50%.
Blood counts are low for now. Lesha feels rather well.
12.01.2012 Roma Aseev
continues therapy for intestinal GVHD with medications, such as Campath, Enbrel
and hormonal drugs. His skin GVHD is almost completely under control. Roma feels
well, but Vfend is still needed.
12.01.2012 Based on planned tests,
Nastia Dominikova's
minimal residual disease indicators have increased. She was prescribed
purinethol and methotrexate. In addition, donor's lymphocyte infusion
is planned to prevent a relapse. Nastia is now undergoing consultations
in regards to fingers' contracture (hand deformity) and surgery is being
considered.
12.01.2012 Vova Gusev
is being monitored as a day patient. He receives blood transfusions and feels well.
A doctor's Board is planned to discuss repeat bone marrow transplantation.
12.01.2012 Levon Karagezyan
will undergo 6 cycles of chemotherapy with trabectedin. Yesterday Levon had the
first infusion.
12.01.2012 Unfortunately, planned tests at the
end of December discovered that Volodya Telegin
had a relapse. Volodya is now undergoing anti-relapse cycle of chemotherapy at
City Hospital No.31. The bill for tepadina was paid from donations sent to all
patients. As soon as Volodya achieves remission, transplantation will be
performed immediately.
12.01.2012 A donor for Artem Karnishin
was found and transplantation scheduled for January 20th. The money for delivery of
transplant was also raised.
12.01.2012 On January 11th Lera Sukhoverkhova
underwent haploidentical transplantation from her mother.
12.01.2012 Slava Zhikharenko
had a very good response to therapy with revlimid and bendamustine. Visually, no lymph
nodes are seen. Slava is now undergoing the second cycle and he tolerates chemotherapy
very well. After finishing the second cycle he will have planned evaluation and discussion
of further treatment.
12.01.2012 Egor Moskalenko
returned home from Israel after evaluation, injection of cidofovir and
surgery to remove papillomas. He may need plastic surgery of his throat.
It will be determined upon evaluation and doctors' meeting in March 2012.
11.01.2012 We received a bill for SGN-35 for
Anna Marchenko.
The cost for 6 vials is 965,147 rubles.
11.01.2012 Fedya Bolshukhin
was urgently operated. He had intestinal bleeding at the post-surgical
scars and intestinal paralysis as complication after Vincristine therapy.
Fedya is currently at ICU. He had feeding tube and colostomy installed.
During surgery, Fedya had severe blood loss and he is receiving blood
transfusions. Due to intestinal bleeding, Fedya needs NovoSeven medication.
He is in a critical condition.
08.01.2012 Petr Mikhailov's
relatives were able to raise the full amount needed for donor search, and
the donor search was started. Petr still needs help with raising funds
for delivery of transplant. He is continuing maintenance chemotherapy
and it will continue until a donor is found. Petr does not feel well due
to high blood pressure, constant fatigue and weakness.
08.01.2012 Evgeny Shumakov
is being monitored by hematologists in Tula. He is on maintenance
chemotherapy and his blood counts are good. The fundraising is going
slowly, and the first installment to the registry has not been made yet.
08.01.2012 Victor Uryadnikov
is being monitored by hematologists locally, in Yaroslavl, and his
blood counts are low. Therapy with Dacogen (possibly, self-pay) is being
discussed to control blast growth until transplantation. The funds
for the first installment to the registry of 5000 euros were raised,
but additional 10,000 euros are required to pay for harvesting of
bone marrow from a donor, and 2500 euros for delivery of transplant.
08.01.2012 Oleg Gagulin's
friends and relatives were able to raise the full amount of money to pay
the bill from the registry. The donor search was started. Now Oleg
needs to raise money for delivery of transplant. He is undergoing
intensive chemotherapy according to anti-relapse protocol
locally, in Samara.
08.01.2012 Marina Dobrova
is being monitored at Pediatric Academy in St. Petersburg. Twice a month
she receives immunoglobulins, and she feels relatively well.
08.01.2012 A donor search for
Victor Didenko was started. Victor needs to
raise 9,000 euros to pay off the bill, as well as 2500 euros
for delivery of transplant. Victor is now monitored at City Hospital
No.31 where he receives maintenance chemotherapy and blood transfusions.
He feels relatively well.
08.01.2012 Igor Mishin
got ulcer and pre-transplantation chemotherapy was postponed. He is now in
a stable condition and was scheduled for complete evaluation. The results of
it will be used to discuss possibility of chemotherapy and a new date
for transplantation. There is a chance that transplantation may be
performed as previously planned. A donor was found urgently, on a loan,
under financial guarantee from AdVita fund, and we urgently need to pay
14,500 euros to the registry.
08.01.2012 It was decided to perform another
donor search and transplantation to Oksana Nosik
from a different donor. A bill for 14,500 euros was issued and it needs
to be paid as soon as possible.
08.01.2012 German doctors recommended
Maxim Rybakov to continue conservative
therapy with Ampholip and Noxafil. Maxim returned to St. Petersburg
and will be monitored at R. Gorbacheva Institute. Monthly cycle of
Ampholip and Noxafil costs 900,000 rubles. Help is still needed.
08.01.2012 Levon Karagezyan
was diagnosed with a relapse. Levon is now undergoing evaluation at The
Harley Street Clinic in London.
08.01.2012 Marina Knyazeva
fully recovered after surgery. Based on test results, she is in
remission and feels well. She plans to return to work. Marina will be
monitored at Petrov Oncology Institute.
07.01.2012 Ksenia Yakovenko
feels great, plans to start attending a gym and began studying English
by herself.
07.01.2012 Roma Ignatovich
started pre-transplantation chemotherapy on January 3. Roma is tolerating
it well for now. Transplantation is scheduled for January 12th.
Noxafil is still needed.
07.01.2012 Albina Bostanova
is undergoing the 4th cycle of anti-relapse chemotherapy. She feels rather
well and her temperature is normal. However, she is very tired of treatment.
A donor search was paid for, but a donor was not yet found.
06.01.2012 Olga Shmygleva
finished the 3rd cycle of bendamustine. She does not feel very well.
06.01.2012 Based on Alesha Laptev's
puncture results as of December 20th, donor's bone marrow engrafted at 30-40%.
On December 30th Alesha received donor's lymphocyte infusion. Blood counts
are still very low. Lesha is on continuing blood component transfusions,
and receives antibiotics, antiviral drugs, Vfend, ampholip and Octagam.
He feels rather well, eats by himself and has no mucositis or fever.
03.01.2012 Olya Shmygleva
had two cycles of therapy with bendamustine. She has improvement: the lesions
in her liver and lungs are smaller and take up less contrast. The plan is to
administer 6 cycles of bendamustine locally.
02.01.2012 Dina Samigullina
is doing well, except for mild mouth GVHD. In February 2012 she and her
mom plan to come to St. Petersburg for control tests.
01.01.2012 Lera Bychkova
finished a cycle of therapy with antibodies. It was not easy, but still
better than the first one. The next cycle is scheduled for January 23rd.
On January 6th Lera and her mom plan to travel home.
01.01.2012 Based on last test results, close to 50% of
Nadya Chernoknizhnaya's brain tumor disintegrated.
The tumor is responding well to chemotherapy.
15.05.2012 
